Search Results: MCHLine

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Contact: San Diego State University, Mainstreaming Project, 6505 Alvarado Road, Suite 108, San Diego, CA 92120, Telephone: (619) 594-4373 Available in libraries.

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Annotation: These forms are a follow up survey of the former participants in the University Affiliated Cincinnati Center for Developmental Disorders training programs. Theyprovide space to record information about the participants and their comments and assessment of the program. One version is for former trainees with 300+ contact hours; the other is a modified version for trainees with 300+ contact hours who participated in the Interdisciplinary Leadership Core Curriculum since 1987-1988.

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Keywords: Developmental disabilities, Evaluation, MCH training, Surveys

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Annotation: This report assesses access to and use of oral health care among people with intellectual and developmental disabilities (IDD) in Tennessee. It synthesizes data from multiple sources to evaluate the readiness of the state’s oral-health-care infrastructure to address the needs of people with IDD in the state. The report introduces the issue and provides analyses of overall health outcomes, oral health outcomes, and wait times for oral health care for people with IDD in the state. Recommendations for improving access to oral health care for this population are included.

Contact: American Institute of Dental Public Health, 401 William Street, #5560, River Forest, IL 60305, Telephone: (210) 876-6943 Web Site: https://aidph.org/ Available from the website.

• Full Report
• Executive Summary

Keywords: Developmental disabilities, Intellectual development, Oral health, Special health care needs, State information, Statistical data, Tennessee

Annotation: This report provides information on a study of oral health professionals conducted to explore factors and policy incentives that influence their decisions on treating people with intellectual and developmental disabilities and on participating in government programs that provide oral health care coverage for this population. Topics includes research questions, input from the population, input from health professionals, demonstrating a return on investment, and promising practices.

Contact: National Council on Disability, 1331 F Street, N.W., Suite 850, Washington, DC 20004-1107, Telephone: (202) 272-2004 Secondary Telephone: (202) 272-2074 Fax: (202) 272-2022 E-mail: ncd@ncd.gov Web Site: http://www.ncd.gov/ Available from the website.

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Keywords: Chronic illnesses and disabilities, Costs, Developmental disabilities, Intellectual development, Oral health, Public policy, Research, Special health care needs

Annotation: This profile provides information on state Medicaid dental programs. For each state, the following topics are discussed: category of care provided (e.g., diagnostic, exam, screen, preventive, restorative); diagnostic code; description of category; whether adults over age 21, adults with intellectual and developmental disabilities, and pregnant women are covered; adult fees; whether the category is part of the Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) program; and EPSDT rates for pregnant women.

Contact: Medicaid | Medicare | CHIP Services Dental Association, 4411 Connecticut Avenue, N.W., #104, Washington, DC 20008, Telephone: (202) 855-3993 Fax: (202) 248-2315 E-mail: mfoley@medicaiddental.org Web Site: http://www.medicaiddental.org Available from the website.

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Keywords: Adults, Costs, Developmental disabilities, Intellectual development, Medicaid, Oral health, Pregnant women, Prevention, Reimbursement, State information, State programs

Annotation: This report examines racial and ethnic inequities in children's access to developmental services through California's Department of Developmental Services (DDS). It quantifies and evaluates inequities in service access and expenditures and examines the effectiveness of the set of measures developed by DDS to monitor and prevent inequities related to race, culture, and primary language spoken. A summary of findings is provided along with recommendations for legislative improvements that could help eliminate disparities to services for children with developmental disabilities in the state of California.

Contact: Public Counsel , 610 South Ardmore Avenue , Los Angeles, CA 90005, Telephone: (213) 385-2977 Fax: (213) 385-9089 Web Site: https://publiccounsel.org/ Available from the website.

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Keywords: Access to health care, Barriers, California, Children with developmental disabilities, Cultural factors, Ethnic factors, Racial factors, State legislation

Annotation: This report addresses questions on whether the Centers for Medicare & Medicaid Services should require state Medicaid agencies to implement Medicaid reimbursement and payment policies that promote access to oral health care for adults with intellectual and developmental disabilities (I/DD) and on whether doing so could be cost-effective. The report discusses barriers to accessing oral health care for adults with I/DD, Medicaid’s role in making oral health care accessible for them, an analysis of state Medicaid oral health dental coverage, Medicaid reimbursement rates, receipt of oral health care among this population, opportunities for change, and areas for future research.

Contact: National Council on Disability, 1331 F Street, N.W., Suite 850, Washington, DC 20004-1107, Telephone: (202) 272-2004 Secondary Telephone: (202) 272-2074 Fax: (202) 272-2022 E-mail: ncd@ncd.gov Web Site: http://www.ncd.gov/ Available from the website.

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Keywords: Access to health care, Adults, Costs, Developmental disabilities, Intellectual development, Medicaid, Oral health, Reimbursement, Research, Special health care needs

Annotation: This report discusses the "Learn the Signs. Act Early" (LTSAE) state systems grant program's impact on improving early identification and intervention for children with Autism Spectrum Disorder and developmental disabilities. It examines three key impact areas: 1) engaging stakeholders and strengthening partnerships across 29 states, 2) training and raising awareness among key stakeholders in 28 states, and 3) developing statewide systems improvements. The document provides detailed case studies from multiple states, including Virginia's success in developing diagnostic teams, Mississippi's statewide coordination efforts, and Massachusetts' multilingual outreach program. While states faced challenges like budget constraints and system coordination, the grant program successfully built state capacity for early identification and service coordination through formalized developmental monitoring, stakeholder engagement, and increased awareness among caregivers and providers.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org

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Keywords: MCH programs, State grants, Autism, Developmental screening, Developmental disabilities, Early intervention

Annotation: This transcript documents a coffee talk discussion hosted by AMCHP's State Public Health Autism Resource Center, featuring speakers Lydia X. Z. Brown and Dr. Jessica Horvath Williams discussing the intersections of disability, race, and gender oppression. The speakers explore how ableism operates as a foundational system of oppression that intersects with and reinforces other forms of marginalization, particularly focusing on how disability is used to dehumanize various marginalized groups. They delve into complex topics including respectability politics, privilege, guilt, and the responsibilities of those with relative privilege in advocacy spaces. The discussion emphasizes the importance of understanding how environmental racism and systemic oppression create and exacerbate disability in marginalized communities, while also addressing how to navigate spaces and conversations about marginalization when one holds both privileged and marginalized identities, concluding with guidance on appropriate ways to redirect opportunities to more representative voices within affected communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org

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Keywords: Race, Gender, Autism, Developmental disabilities,

Annotation: this resource presents disparities resource guides that provide rationales to address disparities in IDD services and supports experienced by individuals with intellectual and developmental disabilities, offer key definitions and conceptual frameworks for addressing disparities in IDD services and supports, including the role of cultural and linguistic competence, and provide a checklist as a structure to spur dialogue and self-examination, engage stakeholders, and plan individually and collaboratively across AIDD-funded programs to address disparities in IDD services and supports within the state or territory. Video narratives are included. The resource is available in English and Spanish.

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu

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• Spanish

Keywords: Child development services, Developmental disabilities, Intellectual development, Multimedia, Spanish language materials

Annotation: This digital toolkit assists clinicians in the recognition, diagnosis, and management of children with autism spectrum disorders (ASDs) across the life span. It contains American Academy of Pediatrics autism clinical reports and policy statements and expert ASD screening, surveillance, diagnosis, treatment, and referral guidelines. Fact sheets are provided along with coding and billing guidance, and a webinar with video and slides for additional clinician use. Family handouts, in English and Spanish, that discuss diagnosis, transition, financial assistance for families, school inclusion, medical home, adolescents and sexuality, teaching social skills, and child wandering are included.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org Order from the website for a charge. Document Number: ISBN 978-1-61002-363-4.

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Keywords: , Clinical coding, Adolescent development, Adolescents, Autism, Child development disorders, Children, Communication disorders, Developmental disabilities, Diagnosis, Psychosexual development, Psychosocial development, Resources for professionals, Screening, Spanish language materials, Special health care needs

Annotation: This white paper approaches family involvement from the perspective of the family discipline itself, and the ongoing paradigm shift in family-centered care--from fringe to fabric. This document includes a summary of the history of family involvement in the LEND network and a series of 8 individual handouts which detail the definition, need, benefits, resources and strategies associated with each type of family involvement.

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: aucdinfo@aucd.org Web Site: http://www.aucd.org Available from the website.

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Keywords: Children with developmental disabilities, Family centered care, Parent participation

Annotation: This report presents the extent to which oral health care is available for people with developmental disabilities in California. It discusses problems with access to oral health care, steps taken to address the problems, and causes of the problems. Recommendations for improving access to oral health care are provided.

Contact: California Legislative Analyst's Office, 925 L Street,Suite 1000, Sacraemento, CA 95814, Web Site: http://www.lao.ca.gov Available from the website.

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Keywords: Access to health care, Children with developmental disabilities, Children with special health care needs, Oral health

Annotation: This consensus study report provides a comprehensive analysis of health outcomes for school-aged children with disabilities. It reviews and assesses programs, services, and supports available to these children and their families and describes overarching program, service, and treatment goals. The report also examines outreach efforts and utilization rates; identifies which outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: customer_service@nap.edu Web Site: http://www.nap.edu

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Keywords: Access to care, Children with developmental disabilities, Children with special health care needs, Disabilities, Learning disabilities, Outcome evaluation, Outreach, Physical disabilities, School age children, Services

Annotation: This report analyzes purchase of services authorization data for race, ethnic, and language group disparities for infants, children, and youth from birth to age 21 in California; discusses possible root causes; and makes recommendations for addressing the disparities. Contents include background, 25 years of research studies on service disparities, data reporting requirements and compliance, study methodology and approach, a summary of findings, detailed results, recommendations, conclusion, and next steps.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: info@lpfch.org Web Site: http://www.lpfch.org Available from the website.

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Keywords: Access to care, Adolescents, Barriers, California, Children, Developmental disabilities, Ethnic factors, Financing, Geographic factors, Infants, Language, Legal issues, Policy analysis, State legislation

Annotation: This report focuses on the needs of adults with autism spectrum disorders who have more severe challenges, including those who have just left the special education system and those who are at the end of their working years, to look at differences in services and outcomes across the life course. It includes data on individuals with other forms of developmental disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: Drexel Autism Institute, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, E-mail: https://drexel.ed Web Site: https://drexel.edu/autisminstitute/ Available from the website.

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Keywords: Autism, Developmental disabilities, Developmental disability programs, Special health care needs, Statistics

Annotation: This document for primary care health professionals provides tips for promoting the identification of autism spectrum disorders (ASDs) and other developmental disabilities for children from immigrant families or from families whose primary language is not English. Contents include tips for culturally- and linguistically-competent autism screening; the Modified Checklist for Autism in Toddlers (M-CHAT) screening tool in English and in four translations (Chinese, Haitian Creole, Spanish, and Vietnamese); an assortment of materials from the Centers for Disease Control and Prevention's Learn the Signs. Act Early campaign for use in practice; and resource and referral information.

Contact: Massachusetts Act Early, MA Web Site: https://www.maactearly.org/ Available from the website.

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Keywords: Autism, Culturally competent services, Developmental disabilities, Developmental screening, Early identification, Immigrants, Infants, Massachusetts, Non English language materials, Public awareness campaign materials, Referrals, State initiatives, Young children

Annotation: This report summarizes findings from interviews and meetings with maternal and child (MCH) health program directors and other stakeholders about future directions for the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) and Developmental Behavioral Pediatrics (DBP) training programs. Contents include recommendations for strategic action in the following five areas: training pipelines for LEND and DBP programs; models of training and clinical care that are accessible and can be sustained; opportunities for trainees to learn and apply principles of MCH leadership training; collaboration with Title V and other partners; and policies and practices important to LEND and DBP programs, individuals with disabilities and their families, and the professionals who serve them. [Funded by the Maternal and Child Health Bureau]

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: aucdinfo@aucd.org Web Site: http://www.aucd.org Available from the website.

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Keywords: Behavior development, Child development disorders, Collaboration, Developmental disabilities, Developmental pediatrics, Leadership, MCH training programs, Model programs, Pediatric neurology, Policy development, Strategic plans, Title V programs

Annotation: This resource offers tips for preparing the office and staff for caring for young adults with intellectual/developmental disabilities. Topics include recommended transition actions that can be taken prior to the initial visit, during the visit, and after the visit. [Funded by the Maternal and Child Health Bureau]

Contact: Got Transition™/Center for Health Care Transition Improvement, National Alliance to Advance Adolescent Health, 1615 M Street, N.W., Suite 290, Washington, DC 20036, Telephone: (202) 223-1500 Fax: (202) 429-3957 E-mail: info@GotTransition.org Web Site: http://gottransition.org Available from the website.

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Keywords: Adolescents, Developmental disabilities, Health care delivery, Intellectual development, Patient care planning, Self care, Special health care needs, Transition planning, Young adults