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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (1,487 total).

Pennsylvania Department of Health. n.d.. Local governance leads to strong families and strong communities. Harrisburg, PA: Pennsylvania Department of Health, 20 pp.

Annotation: This report looks at the philosophy of Pennsylvania's "Strong Families/Strong Communities" campaign, which stresses the importance of local governance and community strategies to state initiatives designed to preserve families and strengthen communities. It provides descriptions of state strategies and programs that involve community action designed to improve child and family outcomes.

Contact: Pennsylvania Department of Health, Health and Welfare Building, 625 Forster Street, Eighth Floor West, Harrisburg, PA 17120, Telephone: (877) 724-3258 Web Site: http://www.health.pa.gov Available from the website.

Keywords: Child advocacy, Community based services, Community programs, Families, Family preservation programs, Local initiatives, Outreach

Saenz T. n.d.. Family curriculum. Honolulu, HI: Baby S.A.F.E. Hawaii, and Big Island Substance Abuse Council, 16 pp.

Annotation: This document outlines a curriculum for families that includes information on self-knowledge, awareness of the effects of alcohol and other drugs, and developing more effective behavior. The materials used in classes are not included with the document. Baby S.A.F.E. is funded by the Hawaii State Department of Health, Maternal and Child Health Branch, and emphasizes prevention, early intervention, and treatment of substance-abusing women who use alcohol, tobacco, and legal or illegal drugs.

Contact: Hawaii Department of Health, Maternal and Child Health Branch, Baby S.A.F.E. Program, 741-A Sunset Avenue, Room 208, Honolulu, HI 96816, Telephone: (808) 733-9022 Fax: (808) 733-9032 Web Site: http://health.hawaii.gov/mchb/home/baby-s-a-f-e-program Price unknown.

Keywords: Curricula, Families, Prevention programs, Substance abuse, Treatment, Women

San Diego State University, Mainstreaming Project. n.d.. Including all of us: Caring for children with special needs in early childhood settingsā€”Manual for child care providers. San Diego, CA: San Diego State University, Mainstreaming Project, 218 pp.

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Contact: San Diego State University, Mainstreaming Project, 6505 Alvarado Road, Suite 108, San Diego, CA 92120, Telephone: (619) 594-4373 Available in libraries.

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Wittenmyer J. n.d.. Amelioration of Health Problems of Children with Parents with Mental Retardation: [Final report]. Madison, WI: Wisconsin Council on Developmental Disabilities, 51 pp.

Annotation: This project attempted to improve the health status of children in families in which one or both parents have mental retardation by reducing the risks associated with lack of immunization, poor nutrition, undiagnosed medical or developmental problems, injuries, and inadequate early stimulation. Efforts included both direct services (such as immunization, screening, and home care programs) and a consultation and technical assistance program aimed at improving the accessibility of the service delivery system for these children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-201051.

Keywords: Access to Health Care, Barriers to Health Care, Health Education, High risk children, High risk groups: Families, Mental Retardation, Parents, Parents with disabilities, Preventive Health Care, Primary Care

Holden E. n.d.. Families in Transition: [Final report]. Baltimore, MD: University of Maryland at Baltimore, 39 pp.

Annotation: Families in Transition (FIT) was a comprehensive health care program for homeless children and their families that was a collaborative effort between the University of Maryland School of Medicine and Health Care for the Homeless, Inc. The FIT program provided primary health care services and a wide array of psychosocial services to homeless children and their families. A substantial emphasis was placed upon outreach services that involved linking and collaborating with other service systems in the community. The FIT program developed an innovative model of service delivery that addressed the needs of thousands of homeless children and their families over its five years of operation. Material were developed and information was disseminated that will assist with the development and replication of these types of programs in the future. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB99-134876.

Keywords: Case Management, Families, Healthy Tomorrows Partnership for Children, Homelessness, Preventive Health Care

Berman C. n.d.. Project Zero to Three: [Final report]. Washington, DC: National Center for Clinical Infant Programs, 48 pp.

Annotation: The main goal of this project was to improve services for infants and toddlers with disabilities (or at risk for disabililties) and for their families by developing an interstate network for early identification and intervention services for this population. Activities included a national network meeting, two regional conferences, an intensive course, small topical meetings, consultations, publications, and a newsletter. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB92-103373.

Keywords: American Public Welfare Association, Children's Defense Fund, Collaboration of Care, EPDST, Early Intervention, Environmental Risk, Families, Family-Based Health Care, Healthy Mothers Healthy Babies Coalition, High risk infants, Networking, PL 99-457, WIC Program

Magrab P. n.d.. Networking and Community-Based Services for Children with Special Needs: [Final report]. Washington, DC: Georgetown University Medical Center, 45 pp.

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147130.

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Nelson R. n.d.. CHSC Parent Partnership Project: [Final report]. Iowa City, IA: University of Iowa , 46 pp.

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Gates A. n.d.. The Chronic Illness Program (CIP) [Final report]. New Orleans, LA: Children's Hospital, 21 pp.

Annotation: The goal of this project was to develop a regionalized system of care for chronically ill children and their families. To achieve this goal, the project identified the needs of children with chronic illnesses and their families, developed a network of existing resources for this population, and established new resources. Activities included developing a network of parents, community providers, and health professionals; conducting education/training sessions for school and Title V personnel, parents, and health professionals; producing educational packets and training materials; and developing a computerized information and referral system for state MCH and school system staff. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147080.

Keywords: Chronically Ill, Coordination of Health Care, Families, Networking, Play Therapy, Referrals

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Poisson S. n.d.. Maternal and Child Health Cooperative Agreement [Final report]. Rockville, MD: Reginald S. Lourie Center for Infants and Young Children, 52 pp.

Annotation: The goal of this project was to develop and implement comprehensive and family-centered approaches to early identification, assessment, and treatment of infants and young children who are at risk for or suffering from emotional and/or regulatory difficulties. To this end, the Regional Center for Infants and Young Children: (1) Monitored types of families and children referred to and receiving services from an agency specializing in the early detection of emotional disorders or potential risk; (2) developed principles and technology to identify infants and young children/families at risk for psychosocial and developmental difficulties; (3) developed comprehensive, family-centered approaches to assessment and diagnosis; (4) developed prevention-oriented, family-centered approaches to intervention; (5) developed and disseminated technical assistance and training approaches; (6) engaged State and local maternal and child health (MCH) agencies in the project; and (7) accessed multiple financial resources to support its efforts. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158236.

Keywords: Affective Disorders, Behavioral Disorders, Data Collection, Family-Centered Health Care, High risk groups: Families, High risk infants, Parents, Regulatory Disorders, Screening Tools, Temperament

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Pratt S. n.d.. Montana Project for Children with Special Health Care Needs [Final report]. Helena, MT: Montana Department of Health and Environmental Sciences, 16 pp.

Annotation: The overall goal of this project was to develop a replicable system of family-centered, community-based case management for children with special health care needs in a frontier State. Targeted communities were under 20,000 in population and served areas at least 50 miles from a level II facility. The project objectives were to: (1) Upgrade case management and assessment skills of local public health nurses; (2) develop family-centered, community-based case management programs that address the needs of the family and the child with special needs; and (3) develop community-based teams that empower families to actively participate in identifying and meeting educational, social, psychological, health, and financial needs for themselves and the child with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158640.

Keywords: Case Management, Chronically Ill, Community-Based Health Care, Education of Health Professionals, Families, Family-Centered Health Care, Public Health Nurses, Rural Populations

Davis J. n.d.. Improving Coordination of Services for Chronically Impaired Children and Their Families [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 18 pp.

Annotation: This project sought to increase coordination of service provision to chronically ill and disabled children, with a special focus on Native American children. Activities included organizing an annual conference, tracking legislation, establishing a committee which analyzed relevant portions of the state budget, and conducting a survey on the number of children receiving case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB91-241935.

Keywords: American Indians, Chronically Ill, Coordination of Health Care, Families, Fragmentation of Services, PL 94-142

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Benford M. n.d.. MATCH II: A Merged Database for Health and Developmental Disabilities [Final report]. Columbus, OH: Ohio Department of Health, 10 pp.

Annotation: The goal of this project was to improve coordination and continuity of early intervention and health related services to infants and young children who have, or are at risk for, developmental disabilities or delays. The project developed a collaborative mechanism via computer linkage for referring, tracking, and evaluating these children. A microbased computerized identification, referral, and tracking system has been developed for use at the local level. Through the merged database and tracking system, the project sought to improve child find, service coordination, follow-along, and program evaluation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161974.

Keywords: Case Management, Collaboration of Care, Computer Linkage, Data Bases, Data Collection, Developmentally Delayed/Disabled, EPDST, Early Intervention, Families, High risk infants, Medicaid, Referrals, WIC Program

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161891.

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.