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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (891 total).

National Center for Clinical Infant Programs. n.d.. Meeting the medical bills. Washington, DC: National Center for Clinical Infant Programs, 1 p., 1 videotape (VHS).

Annotation: This brochure describes a videotape by the same title that gives excerpts of a talk by Julie Beckett of Iowa on strategies for financing the health care needed by families of chronically ill children, and includes a glossary of terms used in the videotape. [Funded by the Maternal and Child Health Bureau]

Keywords: Child health, Children with special health care needs, Health care financing

MetroHealth Medical Center, Pediatric Service Coordination Program. n.d.. Working with your health insurance. Cleveland, OH: MetroHealth Medical Center, Pediatric Service Coordination Program, 16 pp.

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

Newacheck P. n.d.. Improving Health Insurance Coverage for Adolescents: Analysis, Dissemination, and Technical Assistance [Final report]. San Francisco, CA: Institute for Health Policy Studies, 12 pp.

Annotation: The goals of this project were to: (1) Heighten awareness of adolescent health insurance problems and potential solutions among policymakers, health care professionals, educators, business groups, and parents; (2) strengthen State-level capacity to plan and implement strategies for improving financing of health services for adolescents; and (3) update and expand our knowledge base concerning the financing of health services for adolescents. Activities included conducting workshops, providing technical assistance, and publishing reports and educational materials. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Data Collection, Education of Health Professionals, Financing Health Care for Adolescents, Health Insurance, Medicaid, Minorities

Hess C. n.d.. Primary Care Assistance and Accountability Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs, 43 pp.

Annotation: The Primary Care Assistance and Accountability Project (PCAAP) was designed to identify the leadership roles of state Title V MCH and children with special health care needs (CSHCN) programs and address accountability for planning and ensuring the delivery of effective, comprehensive and coordinated services, especially in regard to primary health care services for children. The project was implemented by staff experienced in State Title V programs in consultation with a national advisory committee and workgroups, additional national MCH experts, the Association's Executive Council, and with the participation of interdisciplinary teams of State Title V directors. Activities included development of an information base on state Title V programs from surveys and analysis of state and national reports; in-depth study of Title V roles and activities through site visitation to 10 state programs; development of draft model guidance for state accountability documents and contributions to guidance and policy frameworks developed by federal agencies or other national policy entities; and assistance to states both on an individual basis and through information dissemination to all states through the AMCHP Updates, conference and training workshop presentations, and production of eight major publications. Information was provided on State Title V programs and local counterpart programs to over 9,000 individuals. [Funded by the Maternal and Child Health Bureau]

Keywords: Coordination of Health Care, Data Collection, Data System, Financing of Health Care, Medicaid, Primary Care

Magrab P. n.d.. Networking and Community-Based Services for Children with Special Needs: [Final report]. Washington, DC: Georgetown University Medical Center, 45 pp.

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Kaufman J. n.d.. A Model for Home and Community Care for Children who are Technology Assisted [Final report]. Baltimore, MD: Children's Medical Services , 13 pp.

Annotation: This project developed a model for public/private sector collaboration in the financing and case management of home care for technology-assisted children. The project also developed a methodology for educating professionals in case management for family-centered care; identified and analyzed options to hospitalization; and provided family-centered case management services. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Community based care, Financing, Home care, Technology dependent, Ventilator dependent

Anderson B. n.d.. Collaboration Among Parents and Health Professionals (CAPP) [Final report]. Boston, MA: Federation for Children with Special Needs, 66 pp.

Annotation: This project worked with the Technical Assistance for Parent Programs Project and the U.S. Office of Special Education Resources in order to increase and enhance parent involvement in the health care of children with disabilities and special health needs. The project sought to (1) prepare parents to assume an integral role in the health care of their children with disabilities; (2) promote effective communication and collaboration among health care professionals and parents in order to enhance health services for children; and (3) develop a national support system to ensure that parents have access to essential information and peer support. [Funded by the Maternal and Child Health Bureau]

Keywords: 99-457 Financing Intervention, Early Association for the Care of Children's Health (ACCH) Parent Networks, Health Professionals, L, Parent Education Parent Professional Communication Peer Support P, Parents

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

van Dyck PC. n.d.. Methods of Funding Nutrition Services for Children with Developmental Disabilities [Final report]. Salt Lake City, UT: Utah Department of Health, 16 pp. (van Dyck Collection)

Annotation: The purpose of this project was to develop and apply a model for providing comprehensive nutrition services for children in Utah who have certain developmental disabilities or disease conditions. The objectives of the project were to (1) provide comprehensive nutrition care and expand resources; (2) demonstrate the costs and benefits of providing nutrition services to those children with selected developmental disabilities using an economic model; and (3) obtain third-party reimbursement for nutrition services provided to children with selected special health needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Cystic Fibrosis, Developmentally Delayed/Disabled, Financing Health Care, Inborn Errors of Metabolism, Neonatal Intensive Care Unit(NICU), Nutrition, Reimbursement

Camic N. n.d.. Families in the Changing Health Care Marketplace [Final report]. Madison, WI: Center for Public Representation, 21 pp.

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

Sievers K, Clark MB, Douglass AB, Maier R, Gonsalves W, Wrightson AS, Quinonez R, Dolce M, Dalal M, Rizzolo D, Simon L, Deutchman M, Silk H. 2026. Smiles for Life: A national oral health curriculum (4th ed.). Leawood, KS: Society of Teachers of Family Medicine, multiple items.

Annotation: This curriculum for health professionals and educators comprises nine courses addressing oral health. Courses focus on the relationship between oral health and systemic health; child oral health; adult oral health; acute oral health problems; pregnancy and women’s oral health; caries risk assessment, fluoride varnish, and counseling; the oral exam; oral health for older adults; and silver diamine fluoride. The courses can be taken for continuing education credit or simply to gain knowledge on the topics.

Keywords: Adolescents, Children, Continuing education, Curricula, Distance education, Financing, Infants, Mobile applications, Multimedia, Older adults, Oral health, Oral health care, Pregnant women, Resources for professionals, Spanish language materials, Training, Young children

Handler A, Johnson K, Farrell N. 2026. Strengthening Title V: A nationwide examination of variability in state budgets for the MCH Block Grant . Chicago, IL: University of Chicago, School of Public Health, 54 pp.

Annotation: This report examines the role of the Title V Maternal and Child Health (MCH) Services Block Grant in addressing maternal and infant health disparities. It analyzes fiscal investments for pregnant women and infants across 59 states and territories using budget data from the Title V Information System. The document explores the ratio of federal to non-federal funding, identifies state-level variability in budgeting, and investigates correlations between spending patterns and rates of maternal and infant mortality. It presents findings on state overmatch contributions and provides recommendations for federal and state policy modifications to strengthen investment in the reproductive and perinatal continuum; appendix tables provide detailed state-level budget percentages and mortality data

Keywords: Child Health, Financing, Health care disparities, Maternal health, Statistics, Title V, Trends

Buettgens M. 2025. Reducing federal support for Medicaid expansion would shift costs to states and likely result in coverage losses. Washington, DC: 20024, 40 pp.

Annotation: This research report examines the potential impacts of eliminating enhanced Federal Medical Assistance Percentage (FMAP) for Medicaid expansion, focusing on state budget implications and health coverage consequences. It presents data showing that if enhanced FMAP were eliminated in 2026, the 41 expansion states would need to increase spending on acute care for the nonelderly by an average of 25.6 percent to maintain current eligibility levels. If all states dropped Medicaid expansion in response, Medicaid enrollment would decline by 15.9 million people, with 10.8 million becoming uninsured. The report describes how Medicaid expansion has benefited enrollees through improved health care access and financial security, while also providing fiscal benefits to states through additional savings and revenue. Using the Urban Institute's Health Insurance Policy Simulation Model, the analysis examines various scenarios of state responses and includes detailed data tables showing state-by-state impacts on coverage and spending.

Keywords: Financing, Health care reform, Health insurance, Health policy, Medicaid, State aid

Jacobs LS. 2025. Medicaid and Title V: Considerations when braiding funds. [no place]: Center for Maternal and Child Health Medicaid Partnerships , 5 pp.

Annotation: This brief introduces opportunities to use braiding for Medicaid and Title V funds. It defines braiding, provides an overview of Medicaid and Title V MCH Block Grant programs, and discusses considerations related to braiding Medicaid and Title V funding. It also explores how braiding funds can help state agencies align resources more effectively to provide higher-quality, coordinated services for women, children, and adolescents.

Keywords: Adolescent health, Financing, Medicaid, Title V programs, Women's health

CareQuest Institute for Oral Health. 2025. From silos to synergy: Integrating oral health into whole-person care through interprofessional practice. Boston, MA: CareQuest Institute for Oral Health, 3 v. (White paper)

Annotation: This paper defines interprofessional practice (IPP) as it relates to the oral-systemic connection and the integration of oral health care and other health care to provide whole-person, comprehensive care. It discusses the role of IPP, practice settings, sustainable IPP models and financial models, barriers to and facilitators of implementing IPP programs, and future directions for oral-health-related IPP programs. The paper is accompanied by use cases from organizations across the United States. zzz

Keywords: Case studies, Financing, Oral health, Service integration

Foster CC, Turchi RM, . 2025. Financing of pediatric home health care: Policy statement. American Academy of Pediatrics,

Annotation: This policy statement from the American Academy of Pediatrics describes the role of home health care for children with disabilities, medical complexity, and chronic conditions in supporting their daily health and community participation. It outlines the legal obligations of payers under federal programs and mandates, including Medicaid’s Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) provision and the Americans with Disabilities Act. The document identifies systemic barriers such as workforce shortages, low reimbursement rates, and the significant financial and emotional burden of unpaid caregiving on families. Recommendations are provided for the Centers for Medicare and Medicaid Services to improve regulatory oversight, standardize pediatric electronic data structures, and expand paid family caregiver programs.The statement also advocates for payment reforms to support workforce retention, the provision of specialized medical equipment, and the use of telemedicine for remote clinical support.

Keywords: Barriers, Child health, Children with special health care needs, Federal legislation, Financing, Home visits, Medicaid, Pediatrics, Policy, Policy development

Kelly L, Bartels A, Cram A . 2024. Opportunities for public health agencies to advance sustainable financing of community health worker programs . Arlington, VA: Association of State and Territorial Health Officials, 19 pp.

Annotation: This report examines how state and territorial health agencies can advance sustainable financing for community health worker (CHW) programs as COVID-19-related grant funding expires and new Medicare and Medicaid reimbursement opportunities emerge. It presents strategies for state/territorial health agencies to establish clear CHW policies, support effective implementation of Medicaid and Medicare CHW policies, help community-based organizations develop sustainable funding models, and align CHW training and certification programs with financing opportunities. The report includes examples from multiple states' approaches to CHW program sustainability and provides detailed appendices on state staffing structures, relevant federal grants, and CHW-related strategies in state health improvement plans.

Keywords: Community health workers, Financing, Health agencies, Medicaid, Medicare, Models, Policy development, State initiatives

Supported by the Community Health Acceleration Partnership, Merck for Mothers, and Pritzker Children's Initiative. . 2024. Postpartum Medicaid implementation issue brief (Version 1.5). Afton Bloom, 20 pp.

Annotation: This issue brief discusses the extension of postpartum Medicaid coverage from 60 days to 12 months following birth, which states have been able to implement since April 2022. It examines how this extension supports improved access to perinatal and postpartum care but requires complementary state actions to be fully effective. The brief highlights key challenges in postpartum care, including care fragmentation, workforce shortages, and barriers to implementation at system, community, and individual levels. It outlines four solution areas: developing comprehensive standards of care, expanding dyadic care models, increasing workforce support, and providing education and technical assistance. The document concludes with specific recommendations for funders to support implementation efforts at local, state, and national levels to improve maternal health outcomes and advance health equity.

Keywords: Barriers, Financing, Health care reform, Initiatives, Maternal health, Medicaid, Model programs, Perinatal care, Postpartum care, Resources for professionals, patient education materials

National Academy for State Health Policy. 2024. State efforts to extend Medicaid postpartum coverage (state tracker). Portland, OR: National Academy for State Health Policy,

Annotation: This interactive map and chart summarizes state efforts to extend Medicaid postpartum coverage by tracking state laws, Medicaid waivers, and state plan amendments designed to prolong coverage during the postpartum period. Extending Medicaid postpartum coverage beyond 60 days to 12 months is a key state strategy intended to improve maternal health and address the maternal mortality crisis. This resource is intended for professionals addressing policy areas such as Women’s and Children’s Health, specifically focusing on Maternal and Family Health.

Keywords: Government financing, Maps, Medicaid, Policy, Policy development, Postpartum care, State legislation

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.