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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (73 total).

Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health and Autism Speaks. 2016. Experience matters: A view into the health and wellbeing of US children and families with autism spectrum disorder. Baltimore, MD: Data Resource Center for Child and Adolescent Health, 117 pp.

Annotation: This chartbook for families, advocates, policymakers, and researchers provides a national portrait of how children in the United States receive their diagnosis of autism spectrum disorder (ASD), how their daily lives are impacted, and how their families are doing. Topics include the prevalence of ASD, diagnosing ASD, the child's health, health care and related services, school and social wellbeing, and coping with ASD. The appendices contain information on the ASD data presented in the chartbook including a glossary, a crosswalk of the data sources, methodological information, and guidance for accessing the data. [Funded by the Maternal and Child Health Bureau]

Contact: Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: info@cahmi.org Web Site: https://childhealthdata.org Available from the website.

Keywords: Adolescent health, Adolescents with special health care needs, Autism, Child health, Child with special health care needs, Coping, Data sources, Diagnosis, Early intervention services, Family health, Prevalence, Relationships, Special health care services, Statistical data

Massachusetts Act Early. 2016. Considering culture in autism screening. [no place]: Massachusetts Act Early, 8 pp.

Annotation: This document for primary care health professionals provides tips for promoting the identification of autism spectrum disorders (ASDs) and other developmental disabilities for children from immigrant families or from families whose primary language is not English. Contents include tips for culturally- and linguistically-competent autism screening; the Modified Checklist for Autism in Toddlers (M-CHAT) screening tool in English and in four translations (Chinese, Haitian Creole, Spanish, and Vietnamese); an assortment of materials from the Centers for Disease Control and Prevention's Learn the Signs. Act Early campaign for use in practice; and resource and referral information.

Contact: Massachusetts Act Early, MA Web Site: www.maactearly.org Available from the website.

Keywords: Autism, Culturally competent services, Developmental disabilities, Developmental screening, Early identification, Immigrants, Infants, Massachusetts, Non English language materials, Public awareness campaign materials, Referrals, State initiatives, Young children

Children's Hospital and Health Center, Anderson Center for Dental Care. [2014]. Healthy smiles for children with autism [flyer]. San Diego, CA: Rady's Children's Hospital—San Diego, Anderson Center for Dental Care, 1 p.

Annotation: This resource for parents and health professionals provides oral health information specific to children with autism. Topics include facts about oral health in children and tips for preventing dental caries in early childhood. The resource addresses checking teeth for spots, introducing new textures, visiting the dentist, and oral sensitivities and toothbrushing. Information on finding a dentist, scheduling an in-home dental visit, and parent-to-parent support are included. The content is available in English and Spanish.

Contact: Children's Hospital and Health Center, Anderson Center for Dental Care, 3020 Children's Way, San Diego, CA 92123, Telephone: (858) 576-1700 Secondary Telephone: (800) 788-9029 E-mail: refsvc@chsd.org Web Site: http://www.chsd.org/body.cfm?id=255 Available from the website.

Keywords: Spanish language materials, Autism, Children with special health care needs, Dental care, Dental hygiene, Oral health

Rady's Children's Hospital—San Diego, Anderson Center for Dental Care. [2014]. Healthy smiles for children with autism [brochure]. San Diego, CA: Rady's Children's Hospital—San Diego, Anderson Center for Dental Care, 2 pp.

Annotation: This brochure provides information for parents and caregivers on how to help ensure good oral health for children with Down syndrome. The brochure provides information about how Down syndrome may affect children’s mouths and teeth, how to keep the teeth of children with Down syndrome healthy, tips for overcoming toothbrushing difficulties, and other ways to help prevent tooth decay.

Contact: Children's Hospital and Health Center, Anderson Center for Dental Care, 3020 Children's Way, San Diego, CA 92123, Telephone: (858) 576-1700 Secondary Telephone: (800) 788-9029 E-mail: refsvc@chsd.org Web Site: http://www.chsd.org/body.cfm?id=255 Available from the website.

Keywords: Spanish language materials, Autism, Children with special health care needs, Consumer education materials, Dental care, Dental hygiene, Oral health

National Institute of Mental Health, Office of Autism Research Coordination. 2014. Report to Congress on activities related to autism spectrum disorder and other developmental disabilities under the Combating Autism Act of 2006 and Combating Autism Reauthorization Act of 2011 (FY2010–FY2012). Washington, DC: U.S. Department of Health and Human Services, 104 pp.

Annotation: This annual report, required by public law, describes progress and expenditures made in autism spectrum disorder (ASD)-related research and services activities across the U.S. Department of Health and Human Services, the U.S. Department of Education, the U.S. Department of Defense, the U.S. Environmental Protection Agency and the National Science Foundation. Topics include progress and expenditures; prevalence of ASD; average age of diagnosis; average age for intervention; average time between screening, diagnosis, and intervention; effectiveness and outcomes of interventions; and adult services and supports. The appendices contain a list of acronyms, a summary of the previous report, and related publications.

Contact: U.S. Department of Health and Human Services, Interagency Autism Coordinating Committee, 200 Independence Avenue, SW, Washington, DC 20201, E-mail: iaccpublicinquiries@mail.nih.gov Web Site: http://iacc.hhs.gov/ Available from the website. Document Number: DHHS 14-8012.

Keywords: Autism, Costs, Early intervention, Family support services, Federal legislation, Interagency cooperation, Prevalence, Research, Screening, Treatment outcome

Eisenberg JM. 2014. Therapies for children with autism spectrum disorders: A review of the research for parents and caregivers. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 13 pp.

Annotation: This guide for parents and other caregivers describes research about the possible benefits and negative side effects of therapies for children ages 2 through 12 who have an autism spectrum disorder (ASD). The guide explains what ASDs are and summarizes the research on programs that treat ASD symptoms. Topics include behavior and development programs, education and learning programs, medications, and other treatments and therapies. Guidelines to help parents and caregivers choose the best therapy and programs for their child are included.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website. Document Number: AHRQ Pub. No. 14-EHC036-A.

Keywords: Autism, Child health, Children with special health care needs, Families, Research reviews

U.S. Agency for Healthcare Research and Quality, Effective Health Care Program. 2014. Comparative effectiveness of therapies for children with autism spectrum disorders. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 2 pp. (Clinician research summary, Developmental delays: Autism spectrum disorder)

Annotation: This report summarizes findings from a systematic review of research focusing on children who are at risk of being diagnosed with an autism spectrum disorder (ASD) or who have already been diagnosed with ASD. The report provides background information on ASD (including statistics on prevalence in the United States and goals for treatment) and information on comparative efforts aimed at medical, behavioral, educational, and allied health interventions. Intended for clinicians, the report includes a summary of the evidence on the effectiveness or harm of various treatments, including drug therapies (rating them on a confidence scale ranging from insufficient to low, moderate, and high). The report also describes the gaps in knowledge; discusses future research needs; and suggests topics to discuss with patients. The companion web site provides links to related products including consumer information and continuing education activities.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website. Document Number: AHRQ Pub No. 14-EHC036-3.

Keywords: Autism, Children with special health care needs, Literature reviews, Resources for professionals, Treatment effectiveness evaluation

Lorenzo SB. 2014. Autism spectrum disorders: Resources for families (2nd ed., upd.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Annotation: This brief is designed to help families find care, services, and support and websites about autism spectrum disorders. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.ncemch.org Available from the website.

Keywords: Children with special health care needs, Autism spectrum disorders, Bibliographies, Electronic publications, Families

Lorenzo SB. 2014. Autism spectrum disorders: Resources for schools (2nd ed., upd..). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Annotation: This brief is designed to help school personnel find resources and services for working with students with autism spectrum disorders. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.ncemch.org Available from the website.

Keywords: Children with special health care needs, Autism spectrum disorders, Bibliographies, Electronic publications, Families

Interagency Autism Coordinating Committee. 2014. 2013 summary of advances in autism spectrum disorder research. [Washington, DC: Interagency Autism Coordinating Committee], annual.

Annotation: This annual report lists scientific advances that represent significant progress in the field of autism spectrum disorder (ASD) research. Contents include short, plain language synopses of the top research breakthroughs selected by the Interagency Autism Coordinating Committee (IACC) from a pool of peer-reviewed articles nominated by members. The articles are grouped according to the questions of the IACC Strategic Plan for ASD Research. Citations of the articles selected, as well as a complete listing of those nominated, are included at the end of the document. Topics include the causes of autism and potential risk factors, clues that could lead to earlier diagnosis, and promising early intervention strategies. The advances also address the prevalence of ASD both in the United States and internationally, as well as the service needs of people with ASD across the lifespan.

Contact: Interagency Autism Coordinating Committee, National Institute of Mental Health, Office of Autism Research Coordination, 6001 Executive Boulevard, Room 6182A, Bethesda, MD 20892, E-mail: IACCPublicInquiries@mail.nih.org Web Site: http://iacc.hhs.gov Available from the website.

Keywords: Autism, Early intervention, Federal initiatives, Interagency cooperation, Life course, Prevalence, Program coordination, Research, Risk factors

Crosse M. 2014. Federal autism activities: Funding and coordination efforts. Washington, DC: U.S. Government Accountability Office, 12 pp.

Annotation: This statement updates the November 2013 report published by the U.S. Government Accountabilty Office on federal autism activities. Topics include the extent to which federal agencies fund potentially duplicative autism research and the extent to which the Interagency Autism Coordinating Committee and agencies coordinate and monitor federal autism activities. The report presents an analysis of agencies' data and documents, and interviews with federal agency officials. Recommendations are included.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: contact@gao.gov Web Site: http://www.gao.gov Available from the website. Document Number: GAO-14-613T.

Keywords: Autism, Federal agencies, Federal initiatives, Federal programs, Government financing, MCH research, Policy analysis, Program coordination

Vanderbilt Evidence-Based Practice Center. 2014. Therapies for children with autism spectrum disorder: Behavioral interventions update. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 476 pp. (Comparative effectiveness review; no. 137)

Annotation: This systematic review updates a prior systematic review of interventions for children (0–12 years) with autism spectrum disorder (ASD), focusing on recent studies of behavioral interventions. It gives background information, discusses how the review was conducted, presents results of the literature searches, and discusses key findings and strength of evidence. An executive summary and summaries for clinicians and consumers are available from the website.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website.

Keywords: Autism, Behavior, Children with special health care needs, Literature reviews, Therapeutics

Association of Maternal and Child Health Programs. 2014. Environmental scan: State strategies and initiatives to improve developmental and autism screening and early identification systems. Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This report provides initial findings of a search of state and other documents related to developmental screening activities and of the Title V Information System online database to identify states with priority needs and performance measures related to developmental screening and early identification, with a focus on children with autism spectrum disorders and developmental disabilities. It describes the Autism Cares Act and strategies to increase developmental screening and improve systems. It discusses issues of data collection, measurement, and infrastructure; coordinating systems and services; and challenges and barriers. State highlights are provided. An accompanying fact sheet lists state performance measures and objectives related to developmental screening and early identification.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Autism spectrum disorders, Child development disorders, Developmental screening, State programs

Center for Health and Health Care in Schools. 2014. Autism spectrum disorders and transitions from high school: Challenges and opportunities. Washington, DC: Center for Health and Health Care in Schools, multiple items.

Annotation: This website comprises information and resources from the Autism Transition Project (2012-2014), a two-year project to study how students with an autism spectrum disorder are being prepared to move from the public schools into employment or additional education in the community. Resources include a national and state scan; literature and resources; and the agenda and presentations from the Symposium on Autism Spectrum Disorders & Transition (June 16, 2014) and the Conference Autism Spectrum Disorders & Transitions from High School: Challenges & Opportunities (December 5, 2014).

Contact: Center for Health and Health Care in Schools, George Washington University Milken Institute School of Public Health, 2175 K Street, N.W., Suite 200, Room 213, Washington, DC 20037, Telephone: (202) 994-4895 E-mail: chhcs@gwu.edu Web Site: http://www.healthinschools.org Available from the website.

Keywords: Autism, Conference proceedings, Literature reviews, Students, Transition planning, Transition to independent living, Young adults

American Academy of Pediatrics. 2013. Sound advice on autism. Elk Grove, IL: American Academy of Pediatrics, Multiple items.

Annotation: This series answers parents' questions about autism spectrum disorders by offering audio interviews with developmental and behavioral pediatricians, a pediatric neurologist, autism researchers, and other parents of children with autism. Visitors can choose to hear responses to individual questions or listen to the entire interview. Edited transcripts are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org Available from the website.

Keywords: Autism, Electronic communications, Medical home, Multimedia, Parenting

Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health. 2013. National profile of children with special health care needs and autism spectrum disorders: Key findings from the 2009/10 NS-CSHCN and 2011/12 NSCH. Portland, OR: Child and Adolescent Health Measurement Initiative, 3 pp.

Annotation: This report summarizes key findings on children with special health care needs and autism spectrum disorders (ASD) from the 2007 National Survey of Children’s Health (NSCH). and the 2009/10 National Survey of Children with Special Health Care Needs (CSHCN). It explains what autism spectrum disorders are; discusses the impact of health system performance on families who have children with ASD; and assesses to what extent children with ASD are receiving the minimum quality of care based on measures derived from the national surveys. The report also discusses the extent to which home, school, and neighborhood environments influence CSHCN with ASD. [Funded by the Maternal and Child Health Bureau]

Contact: Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, Department of Population, Family, and Reproductive Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: info@cahmi.org Web Site: http://www.cahmi.org Available from the website.

Keywords: Autism, Children with special health care needs, Developmental disabilities, National surveys, Reports

Autism Speaks. 2013. Leading the way: Autism-friendly youth organization guide. New York, NY: Autism Speaks, 65 pp.

Annotation: This guide provides information to help community youth organizations develop programs to ensure that youth with autism are offered the same formative opportunities that are made available to their typical peers. The guide is designed to prepare community organizations to serve youth and families with autism and to learn how to integrate youth with autism into existing youth programs. Included are results from a national survey of community youth organizations conduced by Youth Speaks in 2012; an overview of autism and the challenges it presents to community organizations; and strategies for communicating with families and training staff who work with this population.

Contact: Autism Speaks, 1 East 33rd Street, Fourth Floor, New York, NY 10016, Telephone: (212) 252-8584 Fax: (212) 252-8676 E-mail: contactus@autismspeaks.org Web Site: http://www.autismspeaks.org Available from the website.

Keywords: Autism, Community programs, Developmental disabilities, Manuals, Program development, Youth

U.S. Government Accountability Office. 2013. Combating Autism Act: HHS agencies responded with new and continuing activities, including oversight. Washington, DC: U.S. Government Accountability Office, 36 pp.

Annotation: This report describes how U.S. Department of Health and Services (HHS) agencies responded Combating Autism Act of 2006 (CAA) by establishing some new autism activities and continuing others. Included are descriptions of activities carried out in response to the CAA by the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), the Health Resources and Services Administration (HRSA), and the Office of Autism Coordinating Committee (OACC). The appendices list funding amounts (in millions of dollars) provided for autism activities within each of the HHS agencies and also provides funding amounts awarded to individual grantees (organized by type of program) for the period 2008-2011. A description of autism and the challenges in diagnosing this developmental disability are included in the background information.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: contact@gao.gov Web Site: http://www.gao.gov Available from the website.

Keywords: Accountability, Autism, Federal agencies, Federal legislation, Regulation, Reports

American Psychiatric Association. 2013. Diagnostic and statistical manual of mental disorders. (5th ed.) (DSM-5). Washington, DC: American Psychiatric Association,

Contact: American Psychiatric Publishing, 1000 Wilson Boulevard, Suite 1825, Arlington, VA 22209, Telephone: 703-907-7322 Secondary Telephone: 800-368-5777 Fax: 703-907-1091 E-mail: appi@psych.org Web Site: http://www.appi.org $117.70, plus shipping and handling. Document Number: ISBN 0-89042-0254.

Keywords: Autism, Children, Mental health

Center for Autism and Related Disorders at Kennedy Krieger Institute, Maryland Chapter of American Academy of Pediatrics. 2013. Bringing the early signs of autism spectrum disorders into focus. Baltimore, MD: Kennedy Krieger Institute, 1 video (9 min., 3 sec.).

Annotation: This nine-minute tutorial consists of six video clips comparing toddlers who show no signs of autism spectrum disorders (ASD) to toddlers who show early signs of ASD. Each video is presented with a voice-over explaining how the specific behaviors exhibited by the child, as they occur on screen, are either suggestive of ASD or typical child development. Although developed as a resource for Maryland’s pediatricians, the tutorial is also available to parents and other professionals. [Funded by the Maternal and Child Health Bureau]

Contact: Kennedy Krieger Institute, 707 North Broadway, Baltimore, MD 21205, Telephone: (443) 923-9200 Secondary Telephone: (443) 923-2645 Fax: (410) 550-9344 E-mail: webmaster@kennedykrieger.org Web Site: http://www.kennedykrieger.org Available from the website.

Keywords: Audiovisual materials, Autism, Children with special health care needs, Developmental screening, Parent education, Resources for professionals, Toddlers, Videorecordings, Young children

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.