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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)

Annotation: The Support Organization for Trisomy 18, 13, and Related Disorders (S.O.F.T.) supports and educates families and caregivers of children with trisomy 18 or 13 and related trisomy disorders. The organization provides referrals, reference information and the following publications: Trisomy 18: A Book for Families, Trisomy 13: A Book for Families, Care of the Infant and Child with Trisomy 18 and Trisomy 13 and a bimonthly newsletter, SOFT Times. SOFT also provides some Spanish materials and sponsors conferences and workshops.

Keywords: Chromosome abnormalities, Edwards syndrome, Family support services, Genetic disorders, Health education, Patau syndrome, Support groups, Trisomy 6, Trisomy 13