
Family Health History
Professional Resource Brief
CDC Family Health History Resources & Tools
Online family history tools and guidelines developed for the general public, including downloadable forms and questionnaires, Web-based information-collection systems and guidelines on compiling a family health history.
Genetic Alliance: Family Health History Resources
Publications such as Does It Run in the Family Toolkit and How Do I Talk to My Family About My Genetic Condition? as well as How-To Guides, and other resources on understanding genetics and family health history. Many of the resources are offered in in English and Spanish.
March of Dimes: Your Family Health History
Information on gathering a family health history, a preconception/prenatal family health questionnaire, and links to information about a variety of genetic conditions.
MedlinePlus: Family History
Overviews, news, publications, research findings, clinical trials, and links to related information and organizations.
National Library of Medicine (NLM), Genetics Home Reference Handbook
Page on the importance of family health history with links to additional information.
NIH National Human Genome Research Institute’s Family History Initiative (NHGRI)
Public health campaign on the importance of family health history, with public service announcements, demonstration projects, and online tools and resources. Also includes the NHGRI and the U.S. Surgeon General's Family History Initiative, My Family Health Portrait, a Web-based tool to help users organize family-history information and then print it out for the family health professional. In addition, the tool helps users save their family history information to their own computer.
Additional Resources from the MCH Digital Library
- Genetic Services (Community Services Locator online directory)
- Genetics organizations list
- Genetics resource brief
- Newborn Screening bibliography
Authors: Beth DeFrancis Sun, M.L.S.; Olivia K. Pickett, M.A., M.L.S., MCH Digital Library
May 2009. Reviewed July 2012. Updated November 2024.