Autism Spectrum Disorder
Family Resource Brief
Do you have questions about autism services? early intervention and special education? health care and insurance? emotional support for you or your other children? These resources will help you find people in your state who can help.
- Autism Speaks. Telephone 9:00 a.m. to 1:00 p.m., Eastern Standard Time: (888) 288-4762; (888) 772-9050 (en Español); E-mail firstname.lastname@example.org.
Resource Guide. Services from early intervention to speech and language therapy.
Community Pages. Link to a local chapter.
Autism Intervention Research Network on Physical Health (AIR-P): Contact a Site. Network of hospitals, physicians, researchers, and families at 14 centers across the United States and Canada working together to develop the most effective approach to medical care for children and adolescents with ASD.
for Parent Information and Resources (CPIR): Find Your Parent Center.
Contact information for the Parent Training and Information Center
(PTI) and Community Parent Resource Center (CPRC) in your state
and a national PTI for military families. PTIs and CPRCs offer
information about disabilities, early intervention (for babies
services (for school-aged children), therapy, local policies, and
much more. PTIs and CPRCs also offer training to parents on how
to participate more effectively with professionals in meeting their
needs. CPIR also offers resources on
topics ranging from accommodations to transition.
- Family Voices (FV). Family
Voices in Your State and Family
to Family Health Information Centers (F2F HICs) help you find resources and services to provide and pay for health care for kids and teens with special needs.
to Parent USA (P2P USA): Support.
Contact information for state parent-to-parent programs that provide
emotional support and information to families
of kids and teens with special needs, most notably by
matching parents who need support with
a trained and experienced parent who has shared the experience
of disability in the family.
offers technical assistance and
resources to parents interested
in building, improving, and evaluating
a parent-to-parent program.
- Autism NOW: National Autism Resource
and Information Center: Local Agencies. Advocacy, direct services, family support, and resources for people with autism and other developmental disabilities and their families. Telephone: (855) 828-8476.
Source™. Community-based autism-related
services and supports, ranging from assistive technology
to camps to respite services. Telephone: (800) 3-AUTISM (328-8476).
and Regional Asperger Syndrome Partnership
Online support networks and in-person support groups
for people with ASD and their families.
Support Project. Programs for the siblings of kids
with disabilities. Includes online
groups for siblings and parents and
publications for purchase that are
for and about siblings.
Parent Magazine offers an annual
resource guide containing directories
of organizations, associations, products,
and services for families who have children with disabilities, including
To receive a free copy, call (800)
- See OASIS @ MAAP: The Online
Asperger Information and Support Center.
- Also see the Community
Services Locator: An Online Directory for Finding
Community Services for Children and Families.
- Autism NOW: National Autism
Resource and Information Center.
Resources and information for individuals with ASD and other developmental
disabilities and their families.
Topics: Benefits and services, civil rights, community life, education, emergency preparedness, employment, family and relationships, health, housing, recreation, safety, self-advocacy, technology, and transportation.
A wealth of information about autism symptoms, screening, diagnosis, treatment,
impact on family life, prevalence, and research. Offers a database
services, a resource library,
toolkits, a technology guide, a collection of
video clips about diagnosis and treatment, news, and
Includes resources for military families and materials
in languages other than English.
Topics: New diagnosis, Asperger syndrome and high-functioning autism, treatments and therapies, medication decision aid, medication safety, managing anxiety while drawing blood, oral health care, managing constipation, toilet training, sleep, visual supports, challenging behaviors, employment, family supports, housing, Individualized Education Program (IEP), advocacy, participating in autism drug research, postsecondary educational opportunities, school, haircuts, transition, safety, wandering, bullying, and going out to eat.
Autism Network (IAN) Community. Information for parents of
a child newly diagnosed with ASD and articles about the challenges that
ASD and their families face, treatments and therapies,
and participating in and understanding
Topics: New diagnosis, therapies, treatments, education, challenging behaviors, sleep, parenting, autism and Down syndrome, adolescence, environmental factors, language delay, autism and epilepsy, transition, bullying, genetics, research, and more.
- National Autism
Association (NAA): Autism Safety Initiative. Information and
tools for families, first responders, health professionals, and school
personnel about wandering, restraint and seclusion, bullying, and suicide prevention.
- OASIS @ MAAP: The Online
Asperger Information and Support Center.
Articles, news, and online forums for people with Asperger
syndrome and high-functioning autism. Also lists sources for local, national, and international services.
for Autism Research (OAR): Life Journey Through Autism
Guides to research, assessment, navigating the special-education
system, and transition. Several guides are available
in English and Spanish, and one addresses the needs of military
- Pathfinders for Autism.
Articles and tips about a new diagnosis, parenting, education, treatment and therapies, environmental modifications, safety, and social stories. Includes checklists by age that list the health, social, education, employment, housing, transportation,
financial, advocacy, assistive technology, and support services needed and resources to get started on finding them.
- Food and Drug Administration (FDA). 2014. Beware
of False or Misleading Claims for Treating Autism. Silver Spring, MD: Food and Drug Administration (FDA). [Consumer update].
Need More Information?
- See the MCH Digital Library's knowledge path, Autism Spectrum Disorder, for resources about screening, diagnosis, treatment, care, and impact on family life. It includes tools for health care practices; training; improving state systems and services; research; and finding data and statistics, journal articles, reports, and other materials.
- See the MCH Digital Library's family
resource brief, Kids
and Teens with Special Health Care Needs.
- See the MCH Digital Library's knowledge path, Children
and Youth with Special Health Care Needs, for resources about
the family-professional partnership; medical home; financing services;
screening; community services; transition; advocacy; general health,
wellness, and safety;
Autism Spectrum Disorder: Family Resource Brief, 2nd ed. (March 2014). (Updated: July 2014).
Author: Susan Brune Lorenzo, M.L.S., MCH Digital Library.
Reviewers: Lauren Agoratus, M.A., parent of a child with autism, Family Voices and Family-to-Family Health Information Resource Center at the Statewide Parent Advocacy Network of N.J.; Lynn L. Cole, M.S., R.N., P.N.P., Strong Center for Developmental Disabilities at the University of Rochester Medical Center; Olivia K. Pickett, M.A., M.L.S., MCH Digital Library.
Editor: Ruth Barzel, M.A., MCH Digital Library.