Measure Status: Active
Evidence Level: No similar strategy found in the established evidence for this NPM. See similar ESMs (https://www.mchlibrary.org/evidence/state-esms-results.php?q=family+support&NPM=12&State=&RBA_Category=&MCH_Pyramid=&Recipient=&Status=Active) for this NPM or search for other strategies or promising practices
Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)
Service Type: Direct services level of pyramid
Essential Public Health Services: 7. Assure effective and equitable health systems
Service Recipient: Activities directed to families/children/youth
Goal: By September 2025, increase the number of families who receive support or services focused on improving transition to adulthood for CSHCN.
Numerator: Number of families who received support or services from the Family-to-Family Resource Center
Significance: Families of CSHCN face complex challenges, many of which only another family with similar challenges may understand. Family-to-Family Information Centers, Health Resources and Services Administration (HRSA) funded facilities, are a vital resource for families, and provide assistance with finding appropriate care, referrals to providers, and a range of other services (Family Voices, 2020). IPUL is a statewide organization committed to educating, empowering, supporting and advocating for individuals with disabilities and their families (IPUL, n.d.d). IPUL houses Idaho’s Family-to-Family Health Information Center and helps to facilitate informed choices for families concerning health care while providing training, information, and resources to approximately 5,000 families and professionals each year (IPUL, n.d.b). IPUL offers services at no cost to families (IPUL, n.d.b).
Family engagement plays a crucial role in successfully delivering health care services. Family participation engages families in the planning development, and evaluation of programs and policies at the community, organizational and policy levels (Association of Maternal and Child Health Programs [AMCHP], 2010). Multiple studies indicate that both family and patient engagement enhance patient health outcomes (Agency for Healthcare Research and Quality, 2017; Carman, 2013; Gunther, 2013; Ingoldsby, 2010; O’Sullivan, 2014). Research shows a successful first step to increasing family engagement is to improve the methods of recruitment and retention of parents and families in both MCH and CSHCN programs (AMCHP, 2016b). According to AMCHP, the most successful programs are those that require involvement from parents and families, regularly teach and train their staff about the importance of family engagement, and provide guidance for family and staff on effective methods of enhancing family engagement (AMCHP, (2016a); AMCHP, 2016b; Family Voices, 2008).
Data Sources and Data Issues: Family-to-Family Resource Center (IPUL)
Unit Type: Simple Count, Unit Number: 10