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Strengthening the evidence for maternal and child health programs

Find State ESMs


Displaying records 1 through 2 (2 total).

ESM 12.1 Percent of YSHCN who receive care at the RPCs and has completed a transition readiness assessment in Puerto Rico by September 2021-2025 (Puerto Rico)

Measure Status: Active

Evidence Level: No similar strategy found in the established evidence for this NPM. See similar ESMs (https://www.mchlibrary.org/evidence/state-esms-results.php?q=readiness+assessment&NPM=12&State=&RBA_Category=&MCH_Pyramid=&Recipient=&Status=Active) for this NPM or search for other strategies or promising practices (https://www.mchevidence.org/tools/npm/12-transition.php).

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Enabling services level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities directed to families/children/youth

Goal: Increase the number of YSHCN who have a successful transition to an adult health care provider.

Numerator: Number of YSHCN 14 to 21 years of age receiving services at the RCPs who completed the Transition Readiness Assessment Tool.

Denominator: Number of YSHCN 14 to 21 years of age receiving services at the RCPs.

Significance: As youth get older, their ability to manage their medical needs becomes increasingly important, especially for YSHCN. The goals of a successful health care transition is to facilitate a proper process of transition from pediatric to an adult health care provider, and to improve the ability of YSHCN to manage their health care, based on their capacity to do so. The administration of the Transition Readiness Assessment Tool is the 3rd core element of the Evidence Based Got Transition Model. The purpose is to identify and discuss with youth and parent/caregiver their needs; concerns and aspirations in self-care and to jointly develop a written transition plan with goals, priorities and actions.

Data Sources and Data Issues: Data source: RPCs census. Data issues: No data issues are expected, but if issues arise, they would be discussed with the RPCs directors. When the EHR-IS is implemented, the method of data collection may be modified.

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of individuals ages 14-21 with sickle cell disease who had transition readiness assessments completed, among those who were served through the Sickle Cell Disease Care Transition program and kept a routine medical appointment. (New York)

Measure Status: Active

Evidence Level: This ESM is based on state data and measures access to/receipt of care, thus doesn’t align with a specific evidence-based strategy. Consider developing an ESM for one of the specific strategies in your state action plan to measure performance. Check MCHbest for examples to connect to the evidence.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: The baseline value for this measure, from the 2018-19 program grant cycle, is 40.3%. The program has set an improvement target of 5% for 2022, to 42.3%.

Numerator: Individuals ages 14-21 with sickle cell disease who had transition readiness assessments completed

Denominator: Individuals ages 14-21 with sickle cell disease who were served through the Sickle Cell Disease Care Transition program and kept a routine medical appointment

Significance: Sickle cell disease (SCD) grantees at three (3) Hemoglobinopathy Centers (HC) work directly and exclusively with youth in support services. HCs conduct peer support groups to gauge barriers to care and transition for youth and young adults with SCD. Transition navigators at HCs engage youth with SCD to ensure compliance with care regimens and to understand that barriers youth experience in caring for themselves. In studies by Treadwell et al. (2011) and Telfair (2004) participants with SCD voiced a fear of leaving their pediatric health care providers, expressing concern that adult care providers might not understand their needs and might not believe their complaints of pain. The youth also expressed concerns about having limited information about transition and about adult health care programs. There is increased risk for individuals with SCD during this transition period.

Data Sources and Data Issues: Sickle Cell Disease Care Transition contractor reports

Year: 2020

Unit Type: Percentage, Unit Number: 100

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.