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Strengthening the evidence for maternal and child health programs

Find State ESMs


Displaying records 1 through 14 (14 total).

ESM 12.1 Percentage of individuals age 14 to 21 served in SHS multidisciplinary clinics that received a transition assessment. (North Dakota)

Measure Status: Active

Evidence Level: This ESM measures access to/receipt of care, thus doesn’t align with a specific evidence-based strategy. Consider developing an ESM for one of the specific strategies in your state action plan to measure performance. Check MCHbest for examples to connect to the evidence.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to adult health care.

Numerator: Number of individuals ages 14 to 21 receiving transition assessments in SHS multidisciplinary clinics annually.

Denominator: Number of individuals ages 14 to 21 served in SHS multidisciplinary clinics annually.

Significance: The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a priority issue nationwide as evidenced by the 2011 clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: The North Dakota Department of Health. Division of Special Health Services. Utilizing State Fiscal Year Data as Reported by SHS Grantees

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of youth with special health care needs, ages 12 to 21, who have one or more transition goals achieved on their action plan by the target completion date (Kansas)

Measure Status: Active

Evidence Level: Moderate. Aligns with MCHbest strategy 12.4 "Transition Care Coordination Services". Find other NPM 12 practice/patient-level strategies in MCHbest.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Enabling services level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities directed to families/children/youth

Goal: To ensure that youth with special health care needs are better equipped to transition into adult life

Numerator: Number of youth program participants with special healthcare needs, ages 12 to 21, who have one or more transition goals achieved on their action plan by the target completion date

Denominator: Number of youth program participants with special healthcare needs, ages 12 to 21

Significance: The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a priority issue nationwide as evidenced by the 2011 clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002 Dec;110(6 Pt 2):1304-6. http://pediatrics.aappublications.org/content/110/Supplement_3/1304.

Data Sources and Data Issues: KS-SHCN Care Coordination Measurement Tool (Welligent)

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of PCP practices of transition age children (12 through 17) receiving Title V CSHCN services that participate in the Six Core Elements of Health Care Transition self-assessment (Arkansas)

Measure Status: Active

Evidence Level: Moderate. Aligns with MCHbest strategy "Six Core Elements Adaptation with Quality Improvement (QI)" (https://www.mchevidence.org/tools/strategies/12-6.php). Find other NPM 12 practice-level strategies in MCHbest.

Measurement Quadrant: Quadrant 2: Measuring quality of effort (% of reach; satisfaction)

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: To increase the number of Arkansas Medicaid Pediatric & Family Practice providers who develop a Transition Policy within their practice by implementing the Six Core Elements of Health Care Transition. Related to Disability and Health (DH) Objective 5

Numerator: The number of PCP practices of transition age children (12 through 17) receiving Title V CSHCN services that participate in the Six Core Elements of Health Care Transition self-assessment

Denominator: The number of PCP practices of transition age children (12 through 17) receiving Title V CSHCN services

Significance: Will enable CSHCN providers with the ability to be able to assist and teach families the Six Core Elements of Transition to optimize their ability to assume adult roles & activities to ensure that health care services are available in an uninterrupted manner. The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Therap reports of Title V CSHCN PCPs

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of individuals ages 14-21 with sickle cell disease who had transition readiness assessments completed, among those who were served through the Sickle Cell Disease Care Transition program and kept a routine medical appointment. (New York)

Measure Status: Active

Evidence Level: This ESM is based on state data and measures access to/receipt of care, thus doesn’t align with a specific evidence-based strategy. Consider developing an ESM for one of the specific strategies in your state action plan to measure performance. Check MCHbest for examples to connect to the evidence.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: The baseline value for this measure, from the 2018-19 program grant cycle, is 40.3%. The program has set an improvement target of 5% for 2022, to 42.3%.

Numerator: Individuals ages 14-21 with sickle cell disease who had transition readiness assessments completed

Denominator: Individuals ages 14-21 with sickle cell disease who were served through the Sickle Cell Disease Care Transition program and kept a routine medical appointment

Significance: Sickle cell disease (SCD) grantees at three (3) Hemoglobinopathy Centers (HC) work directly and exclusively with youth in support services. HCs conduct peer support groups to gauge barriers to care and transition for youth and young adults with SCD. Transition navigators at HCs engage youth with SCD to ensure compliance with care regimens and to understand that barriers youth experience in caring for themselves. In studies by Treadwell et al. (2011) and Telfair (2004) participants with SCD voiced a fear of leaving their pediatric health care providers, expressing concern that adult care providers might not understand their needs and might not believe their complaints of pain. The youth also expressed concerns about having limited information about transition and about adult health care programs. There is increased risk for individuals with SCD during this transition period.

Data Sources and Data Issues: Sickle Cell Disease Care Transition contractor reports

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of health transition training participants who reported a change in knowledge, practice, or policy (Nevada)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Provider Training/Workforce Development" (https://www.mchevidence.org/tools/strategies/12-1.php). Find other NPM 12 provider-level strategies in MCHbest.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Enabling services level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities directed to families/children/youth

Goal: Increase the percent of transition training participants with a change in knowledge, practice, or policy

Numerator: Number of transition training participants who reported a change in knowledge, practice, or policy

Denominator: Number of transition training participants

Significance: The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a statewide priority issue based on the 2020 Needs Assessment. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Title V MCH Program. The results of the pre- and post-test surveys administered to Health Care Transition training participants.

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Percent of CYSHCN ages 12-17 years served by Special Child Health Services Case Management Units (SCHS CMUs) with at least one transition to adulthood service (New Jersey)

Measure Status: Active

Evidence Level: Moderate. Aligns with MCHbest strategy "Transition Care Coordination Services" (https://www.mchevidence.org/tools/strategies/12-4.php). Find other NPM 12 patient/practice-level strategies in MCHbest.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: ESM 12.1 monitors over 20 services, within 7 categories: PCP; transition-specific services; employment; health insurance; Supplemental Security Income; Shared Plan of Care; and any service tied to ‘transition to adulthood’ as an exceptional event.

Numerator: Number of CYSHCN ages 12-17 years served by SCHS CMUs with at least one transition to adulthood service

Denominator: Number of CYSHCN ages 12-17 years served by SCHS CMUs

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Over 90% of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Successful transition to all aspects of adulthood is a critical life course measure for CYSHCN.

Data Sources and Data Issues: The data source is a statewide electronic documentation system used by all 21 Simple County SCHS CMUs. The Case Management Referral System (CMRS) is used to track and monitor services provided to CYSHCN and their families. Included in CMRS is the ability to create and modify an Individual Service Plan (ISP), track services, and create a record of each contact with the child and child's family. The primary limitation of the data is that it is limited to CYSHCN served by SCHS CMUs (i.e., excludes children without special health care needs and CYSHCN not served by SCHS CMUs).

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.1 Number of participants in Center for Youth and Adults with Conditions of Childhood (CYACC) clinical services. (Indiana)

Measure Status: Active

Evidence Level: This ESM is based on state data and measures access to/receipt of care, thus doesn’t align with a specific evidence-based strategy. Consider developing an ESM for one of the specific strategies in your state action plan to measure performance. Check MCHbest for examples to connect to the evidence.

Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities related to systems-building

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.

Numerator: Unduplicated cumulative number of participants

Denominator: Absolute number of participants

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Center for Youth and Adults with Conditions of Childhood (CYACC)

Year: 2020

Unit Type: Simple Count, Unit Number: 1,000

ESM 12.2 Percent of key stakeholders and referral sources who participated in the Title V CSHCN Health Care Transition training with increased knowledge of Health Care Transition and Health Care Transition services provided by Title V CSHCN (Arkansas)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Professional Training/Workforce Development" (https://www.mchevidence.org/tools/strategies/12-1.php). Find other NPM 12 provider-level strategies in MCHbest.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 8. Build and support a workforce

Service Recipient: Activities directed to professionals

Goal: To allow for an easy transition from secondary to higher education/workforce for our CSHCN and make sure that they do not fall through the cracks of our healthcare systems.

Numerator: Number of key stakeholders and referral sources who participated in the Title V CSHCN Health Care Transition (HCT) training whose post-test results demonstrate an increase in knowledge of HCT and Title V CSHCN services

Denominator: Number of key stakeholders and referral sources (school personnel, providers, youth, families) who participated in the Title V CSHCN Health Care Transition (HCT) training

Significance: Related to Healthy People 2020 Disability and Health (DH) Objective 5: Increase the proportion of youth with special health care needs whose health care provider has discussed transition planning from pediatric to adult health care. The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Sign in sheets from Title V CSHCN Health Care Transition training and results of pre- and post-tests

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.2 Number of educational opportunities provided to health care professionals/providers from Title V regarding health care transition. (North Dakota)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Provider Training/Workforce Development" (https://www.mchevidence.org/tools/strategies/12-1.php). Find other NPM 12 provider-level strategies in MCHbest.

Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 8. Build and support a workforce

Service Recipient: Activities directed to professionals

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to adult health care.

Numerator: Number of educational opportunities provided to health care professionals/providers from Title V regarding health care transition.

Denominator: N/A

Significance: The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a priority issue nationwide as evidenced by the 2011 clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: North Dakota Department of Health. Division of Special Health Services. Utilizing State Fiscal Year Data

Year: 2020

Unit Type: Simple Count, Unit Number: 50

ESM 12.2 Number of adult and pediatric providers who have received training in transition services and caring for CYSHCN. (Indiana)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Provider Training/Workforce Development" (https://www.mchevidence.org/tools/strategies/12-1.php). Find other NPM 12 provider-level strategies in MCHbest.

Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 8. Build and support a workforce

Service Recipient: Activities directed to families/children/youth

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.

Numerator: Unduplicated cumulative number of providers trained

Denominator: Absolute number of providers trained

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Center for Youth and Adults with Conditions of Childhood (CYACC)

Year: 2020

Unit Type: Simple Count, Unit Number: 1,000

ESM 12.3 Percent of transition age CSHCN (ages 12 through 17) served by Title V CSHCN who received transition services and supports in the past 12 months from Title V CSHCN (Arkansas)

Measure Status: Active

Evidence Level: This ESM measures access to/receipt of care, thus doesn’t align with a specific evidence-based strategy. Consider developing an ESM for one of the specific strategies in your state action plan to measure performance. Check MCHbest for examples to connect to the evidence.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Direct services level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities directed to families/children/youth

Goal: To empower families of CSHCN by educating them on all levels of transition and how to obtain needed information from providers

Numerator: Unduplicated number of transition age youth (ages 12 through 17) served by Title V CSHCN who received transition services and supports from Title V CSHCN in the past 12 months

Denominator: Unduplicated number of transition age youth (ages 12 through 17) served by Title V CSHCN

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Therapy unduplicated transition age youth reports, Title V CSHCN staff monthly activity reports and Title V CSHCN Health Care Transition Quality Improvement audits

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.3 Percent of participants who feel empowered to make decisions effecting their health and well-being (Indiana)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Training/Educating Youth (Including Communications and Social Media)" (https://www.mchevidence.org/tools/strategies/12-3.php). Find other NPM 12 youth-level strategies in MCHbest.

Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")

Service Type: Enabling services level of pyramid

Essential Public Health Services: 7. Assure effective and equitable health systems

Service Recipient: Activities directed to families/children/youth

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.

Numerator: Number of participants who self-assess as empowered to make decisions effecting their health and well-being

Denominator: Number of participants who received education on self-management of care

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Center for Youth and Adults with Conditions of Childhood (CYACC)

Year: 2020

Unit Type: Percentage, Unit Number: 100

ESM 12.3 Number of educational opportunities provided to school personnel from Title V regarding health care transition. (North Dakota)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Provider Training/Workforce Development" (https://www.mchevidence.org/tools/strategies/12-1.php). Find other NPM 12 provider-level strategies in MCHbest.

Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)

Service Type: Enabling services level of pyramid

Essential Public Health Services: 8. Build and support a workforce

Service Recipient: Activities directed to professionals

Goal: To increase the percent of adolescents with and without special health care needs who have received the services necessary to make transitions to adult health care.

Numerator: Number of educational opportunities provided to school personnel from Title V regarding health care transition.

Denominator: N/A

Significance: The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a priority issue nationwide as evidenced by the 2011 clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: North Dakota Department of Health. Division of Special Health Services. Utilizing State Fiscal Year Data

Year: 2020

Unit Type: Simple Count, Unit Number: 50

ESM 12.6 Number of parents and youth with special health care needs who receive leadership and self-advocacy training (Tennessee)

Measure Status: Active

Evidence Level: Emerging. Aligns with MCHbest strategy "Training/Educating Youth" (https://www.mchevidence.org/tools/strategies/12-3.php). Find other NPM 12 patient-level strategies in MCHbest.

Measurement Quadrant: Quadrant 1: Measuring quantity of effort (counts and "yes/no" activities)

Service Type: Public health services and systems level of pyramid

Essential Public Health Services: 3. Inform and educate the public

Service Recipient: Activities directed to families/children/youth

Goal: To increase the number of parents and youth with special health care needs that receive leadership and self-advocacy training.

Numerator: Number of parents and youth with special health care needs who receive leadership and self-advocacy training

Denominator: n/a

Significance: Youth and parents are provided leadership training and are able to provide mentoring and peer to peer support to other parents and youth with special health care needs. Trained parents and YSHCN are better equipped to become self-advocates and participate in the decision making process and policy development.

Data Sources and Data Issues: CYSHCN MCH/Title V Program data

Year: 2020

Unit Type: Simple Count, Unit Number: 150

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.