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Strengthening the evidence for maternal and child health programs

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Displaying records 1 through 13 (13 total).

12.1 Percent of youths with Special Health Care Need (CSHCN) enrolled in the non-medical related programs to receive services. (Federated States of Micronesia)

Measure Status: Active

Measurement Category: Category 2: Measuring quality of effort (% of reach; satisfaction)

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to families/children/youth

Goal: Collaborate with Department of Education (SPED), IAC Department of Health and other NGOs to strenghten the services for CSHCN youths in each state.

Numerator: Number of CSHCN youth registered for non-medical related services

Denominator: Total number of CSHCN youth in the registry

Significance: In the FSM, the CSHCN Inter-agency Council has member representative from the private sector, people who run major businesses and hardware stores in the country. By involving business representatives on the council, it is our hope that the business community will learn more about the children and youths with special health care needs and the transition program and therefore provide them with employment opportunities.

Data Sources and Data Issues: CSHCN Data

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.1 Percent of youth ages 14 and older receiving services from the DPH Care Coordination Program who receive health transition information and support from their Care Coordinator (Massachusetts)

Measure Status: Active

Measurement Category: Category 2: Measuring quality of effort (% of reach; satisfaction)

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to families/children/youth

Goal: All families of youth with special health care needs (YSHCN) ages 14 and older who receive services from the DPH Care Coordination Program will receive the education and support necessary to assist and prepare their youth for successful health transi

Numerator: Number of YSHCN ages 14 and older who received services from the DPH Care Coordination Program that received health transition information and support

Denominator: Number of YSHCN ages 14 and older who received services from the DPH Care Coordination Program

Significance: As stated in the Clinical Report, Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home, jointly authored by the American Academy of Pediatrics, American Academy of Family Physicians and American College of Physicians, care coordination is part of transition planning for CYSHCN and may be instrumental in supporting the transfer of care from pediatric to adult medical subspecialists. Got Transition’s Six Core Elements cites care coordinators as key members of the collaborative team to support health care transition to adulthood. By providing information and support, DPH Care Coordinators can assist and complement the medical home’s work on transition readiness.

Data Sources and Data Issues: Data will be accessed from the DPH Care Coordination database. Care Coordinators track service delivery and record in the database the types of services provided to each client who received CC services during the reporting period. The database will need to be modified to include a data element on provision of health transition information and support. Systems will need to be put in place to flag youth who should receive these services.

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.1 Percent of families of transition age youth with special health care needs receiving professional help with their child’s transition to adulthood (Texas)

Measure Status: Active

Measurement Category: Category 4: measuring quality of effect (% of "is anyone better off")

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to families/children/youth

Goal: Assess the provision of transition services to evaluate provider education, outreach and promotion of best practices, and to inform efforts to support providers and families.

Numerator: Number of families of transition-aged youth with special health care needs (12 years+) surveyed who indicated they received professional help with transition services

Denominator: Total number of families of transition-aged youth with special health care needs (12 years+) surveyed

Significance: The AAP outlined guidelines to promote successful transition from pediatric to adult health care in a 2011 Clinical Report. The Got Transition Six Core Elements operationalized the components of health care transition support by establishing evidence-based tools for use by providers and families. According to the 2009/10 NS-CSHCN, Texas ranked in the bottom quartile of states and territories in the outcome of children receiving the services necessary to make the transition to adult health care (35.4% in Texas compared to 40% nationally). Approximately 20 percent of respondents (21.1%) to the 2018 CYSHCN Outreach Survey felt prepared for their child’s or their own transition to adulthood. Only 6.4% of respondents prepared for transition in at least four out of seven transition areas with a professional. Most respondents who indicated that they had prepared for their child’s transition had done so by themselves. The percent of families of transition-age youth who indicate they received professional help with transition services for their child is derived from the CYSHCN Outreach Survey. Data collected reflects the number of survey respondents who indicate that a professional helped them with four or more of the following areas of transition needs: medical, educational, independent living, financial, social, employment, and legal. Successful provider education, outreach, and promotion of best practices, including Got Transition’s Six Core Elements, will lead to increased knowledge, attitudes, and implementation skills for providing transition support. Successful family education, outreach, and support will lead to increased demand for quality transition services.

Data Sources and Data Issues: Data Source: CYSHCN Outreach Survey Responses to the CYSHCN Outreach Survey will be collected on an annual basis. The survey will be mailed out and dispersed electronically to families served by HHSC CSHCN health care benefits and MCHS contractors in both English and Spanish formats. The survey will be promoted through email communication, newsletters, and webpages. According to the Title V Five Year Needs Assessment, 38 of 454 respondents with transition-aged youth (8.4%) indicated they received professional help with four or more of the seven areas of transition services. Data Issues: Challenges associated with surveying a convenience sample include the potential to underrepresent subsets of the CYSHCN population in Texas according to geographical location or language spoken. The CYSHCN Outreach Survey seeks to combat these challenges by providing both online and paper access to the survey in English and Spanish. Geographical data is also gathered in order to examine areas of need for additional ongoing needs assessment activities including focus groups and interviews.

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.1 Percent of CYSHCN who have transition plans to adult health care in place by age 14 (Connecticut)

Measure Status: Active

Measurement Category: Category 4: measuring quality of effect (% of "is anyone better off")

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to families/children/youth

Goal: Increase the percentage of CYSHCN with a formal transition plan in place by age 14.

Numerator: The number of CYSHCN 14+ year olds with a transition care plan to adult health care

Denominator: The number of CYSHCN 14+ year olds

Significance: A Census Statement on Health Care Transition for Young Adults with Special Health Care Needs was drafted by the AAP, AAFP and ACPASIM and published in Pediatrics Vol. 110 No. 6 December 2012. It states that all young people with special health care needs have an identified health care provider who attends to the unique challenges of transition and assumes responsibility for current health care, care coordination and future health care planning. This starts with having a written health care transition plan in place by age 14 done together with the YSHCN and family. This is not limited to having appropriate providers in place. It also includes insurance, prescription plan, transportation, office hours, employer co-operation, and hospital of preference. For YSHCN entering college, this will mean assuring that college health services are adequate including: access for filling prescriptions; nutritional requirements; specialists; hospital of preference, if needed; having appropriate legal documents in place so home based providers can communicate with college based providers; and authorizing someone to make healthcare legal decisions if that becomes necessary. A well-timed transition from child-oriented to adult-oriented health care allows young people to optimize their ability to assume adult roles and functioning.

Data Sources and Data Issues: Data Source is MAVEN, the Department’s web-based reporting portal for CYSHCN. This web-based internet platform is an automated system that CT Medical Home Initiative for CYSHCN contractors utilize to enable collection, storage and transmission of data electronically to the Department. This includes data on the development of transition plans. CT School-Based Health Centers with Department Contracts will begin including data on transition plans for medical care after graduation in their 2015-2016 SBHC year-end report. The Department works closely with the State Department of Education (SDE) to encourage inclusion of health care goals and objectives in students’ transition Individual Education Plans. This data is monitored by SDE.

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.1 % of medical homes with trained staff on transition (Rhode Island)

Measure Status: Active

Measurement Category: Category 2: Measuring quality of effort (% of reach; satisfaction)

Service Type: Middle level: enabling services

Service Recipient: Activities directed to professionals

Goal: Increase % of medical homes with trained staff on transition by 2020

Numerator: Number of medical homes with trained staff on transition

Denominator: Total Number of medical homes

Significance: The Medical Home approach to caring for children focuses on the patient, his/her family, and their community and aims to improve outcomes related to health, relationships, education, and abilities. The Medical Home Portal is a unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a “one-stop shop” for their: •Families •Physicians and Medical Home teams •Other Professionals and Caregivers (medicalhomeportal.com)

Data Sources and Data Issues: Health Equity Institute; Office of Special Needs

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.1 Number of individuals who have received education and /or training on healthcare transition. (North Dakota)

Measure Status: Active

Measurement Category: Category 1: measuring quantity of effort (counts and "yes/no" activities)

Service Type: Middle level: enabling services

Service Recipient: Activities directed to families/children/youth

Goal: To increase the number of individuals (health professionals, youth/young adults, and families) who receive education and/or training on healthcare transition.

Numerator: Number of individuals who have received education and / or training on healthcare transition. Note: The data is collected based on federal fiscal year (October through September).

Denominator: Not applicable

Significance: The transition of youth to adulthood has become a priority issue nationwide as evidenced by the clinical report and algorithm developed jointly by the American Academy of Pediatrics, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Over 90 percent of children with special health care needs now live to adulthood, but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and healthcare are cited as two of the major barriers to making successful transitions.

Data Sources and Data Issues: Data Source: List of individuals who have attended care coordination education and / or training opportunities. Data Issues: None Note: The data is collected based on federal fiscal year (October through September).

Year: 2018/2020

Unit Type: Count, Unit Number: 1,000

12.4 The number of trainings to pediatric providers, families and youth that educate them on transition to adult health care. (New Mexico)

Measure Status: Active

Measurement Category: Category 1: measuring quantity of effort (counts and "yes/no" activities)

Service Type: Middle level: enabling services

Service Recipient: Activities directed to professionals

Goal: To increase the number of trainings provided

Numerator: The number of trainings presented

Denominator: N/A

Significance: Continuing education for providers is important, if not mandated by professional medical associations, if not by the employer. The reason is that it is important to stay current on best practices. Specific training provides practitioners with and in-depth understanding of the importance of health care transition. Providing trainings to families, patients and providers creates a greater likelihood that transition is handled correctly in order to maintain continuity of care and medical adherence.

Data Sources and Data Issues: Childrens Medical Services Program

Year: 2018/2020

Unit Type: Count, Unit Number: 100

12.4 Percent of school nurses, Local Education Agents (LEA), special education teachers, and paraprofessionals in kindergarten through high school who completed the Title V CSHCN training for school personnel (Arkansas)

Measure Status: Active

Measurement Category: Category 2: Measuring quality of effort (% of reach; satisfaction)

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to professionals

Goal: To allow for an easy transition from secondary to higher education/workforce for our CSHCN and make sure that they do not fall through the cracks of our healthcare systems.

Numerator: Number of school nurses, Local Education Agents (LEA), special education teachers, and paraprofessionals in kindergarten through high school who completed the Title V CSHCN training for school personnel

Denominator: Number of school nurses, Local Education Agents (LEA), special education teachers, and paraprofessionals in kindergarten through high school

Significance: Related to Healthy People 2020 Disability and Health (DH) Objective 5: Increase the proportion of youth with special health care needs whose health care provider has discussed transition planning from pediatric to adult health care.

Data Sources and Data Issues: Title V CSHCN Program Information

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.4 # of participants in Teen Outreach Program (Rhode Island)

Measure Status: Active

Measurement Category: Category 1: measuring quantity of effort (counts and "yes/no" activities)

Service Type: Bottom level: public health services and systems

Service Recipient: Activities directed to families/children/youth

Goal: Increase the number of Teen Outreach Program participants to 215 by 2020

Numerator: Number youth ages 11-18 served by Teen Outreach Program

Denominator: N/A

Significance: The Teen Outreach Program has served approximately 400 youth since 2013. Likewise, it has increased the number of youth participating in the TOP program from 186 in 2014-2015 school year to over 200 in 2017-2018 school year. The curriculum is based on a youth development approach and has a broad sexuality and family life component that aligns with current Rhode Island state requirements for a comprehensive sex education program. TOP has consistently demonstrated reductions in suspension rates, reduction in course failure rates, and reduction in pregnancy rates. There have also been observed reductions in school drop-out rates.

Data Sources and Data Issues: RIDOH Adolescent Health Program

Year: 2018/2020

Unit Type: Count, Unit Number: 300

12.4 Increase in transition provider education (Texas)

Measure Status: Active

Measurement Category: Category 1: measuring quantity of effort (counts and "yes/no" activities)

Service Type: Middle level: enabling services

Service Recipient: Activities directed to professionals

Goal: To increase the number of providers educated on health care transition best practices.

Numerator: Unduplicated number of users who completed the Texas Health Steps Transition Online Provider Education (OPE) module each fiscal year

Denominator: NA

Significance: The AAP outlined guidelines to promote successful transition from pediatric to adult health care in a 2011 Clinical Report. The Got Transition Six Core Elements operationalized the components of health care transition support by establishing evidence-based tools for use by primary care and specialty care providers. According to the NS-CSHCN 2009/10, 35.4% of Texas children received the services necessary to make the transition to adult health care, compared to 40.0% nationally. In the 2017 CYSHCN Outreach Survey, less than 20% of respondents (18.2%) felt prepared for their child to transition to adult health care. Further, over 40% of respondents indicated that they had not prepared for transition to adult health care. Most respondents who indicated that they had prepared for their child’s transition had done so by themselves. Respondents in Five Year Needs Assessment stakeholder meetings noted that few doctors have the passion or willingness to take on the primary care role and coordinate the many specialists usually seen by young adults whose medical needs are complex. Many adult providers cite lack of training as a barrier to providing care to young adults with special health care needs. In order to increase provider knowledge, MCHS promotes THSteps OPE modules to targeted audiences through web-based communications, conference exhibiting, trainings, webinars, meetings and presentations. After completing the activities of this module providers will be able to: 1. Formulate a strategy to address the health, education, and social needs of children and youth with special health-care needs at key transition points. 2. Differentiate and integrate the functions of health-care professionals involved in transition assistance for youth with special health-care needs. 3. Apply legal requirements and best practices for aiding the transition of children and youth with special health-care needs. Changes in provider knowledge of transition, in combination with support

Data Sources and Data Issues: Data Source: Texas Health Steps OPE module database State fiscal year data will be collected for the Texas Health Steps (THSteps) OPE module “Transition Services for Children and Youth with Special Health-Care Needs”. The goal of this module is to equip Texas Health Steps providers and others to employ transition services for children, adolescents, and young adults with chronic health conditions or disabilities at key transition points. Raw data are available annually and can be sorted by type of provider and date of module completion. Sorting module users by month will allow MCHS to detect increases in module use following targeted provider outreach efforts like conference exhibiting or presentations. Data Issues: Content updates are regularly scheduled for all THSteps OPE modules. The transition module updates might impact trend analysis.

Year: 2018/2020

Unit Type: Count, Unit Number: 7,000

12.5 Percent of key stakeholders and referral sources who participated in the CHC Health Care Transition training with increased knowledge of Health Care Transition and Health Care Transition services provided by CHC (Arkansas)

Measure Status: Active

Measurement Category: Category 4: measuring quality of effect (% of "is anyone better off")

Service Type: Bottom level: public health services and systems

Service Recipient: Activities related to systems-building

Goal: To allow for an easy transition from secondary to higher education/workforce for our CSHCN and make sure that they do not fall through the cracks of our healthcare systems.

Numerator: Number of key stakeholders and referral sources (school personnel, providers, youth, families) who participated in the CHC Health Care Transition (HCT) training whose post-test results demonstrate an increase in knowledge of HCT and CHC HCT services.

Denominator: Number of key stakeholders and referral sources (school personnel, providers, youth, families) who participated in the CHC Health Care Transition (HCT) training.

Significance: Related to Healthy People 2020 Disability and Health (DH) Objective 5: Increase the proportion of youth with special health care needs whose health care provider has discussed transition planning from pediatric to adult health care.

Data Sources and Data Issues: Sign in sheets from CHC Health Care Transition training and results of pre- and post-tests.

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.5 Percent of consumers and QI clinical teams that report that the Youth Health Readiness Assessment was helpful to transition planning (Wisconsin)

Measure Status: Active

Measurement Category: Category 4: measuring quality of effect (% of "is anyone better off")

Service Type: Bottom level: public health services and systems

Service Recipient: Activities related to systems-building

Goal: Evaluate the efficacy of the Youth Readiness Assessment

Numerator: Consumers and QI clinical teams that report Assessment was helpful

Denominator: Consumers and QI clinical teams that have taken the Youth Health Readiness Assessment

Significance: Promotes the adoption of transition policies and/or practices and enhance education through Care Coordination / Shared Plan of Care (SPoC) Quality Improvement (QI) grants that select Transition as a focus area.

Data Sources and Data Issues: REDCap, Quarterly surveys

Year: 2018/2020

Unit Type: Percentage, Unit Number: 100

12.6 Establish a baseline of Health Care Transition (HCT) knowledge and skills among Roosevelt SBHC users in order to develop health education class content. (District of Columbia)

Measure Status: Active

Measurement Category: Category 1: measuring quantity of effort (counts and "yes/no" activities)

Service Type: Middle level: enabling services

Service Recipient: Activities directed to families/children/youth

Goal: Develop health care transition health education class content for students at Roosevelt High School.

Numerator: N/A

Denominator: N/A

Significance: Health care transition needs for youth with and without special needs in the District of Columbia are not being adequately met. Although there has been a marked improvement in DC's transition performance for YSHCN since 2005/2006, DC still ranks among the lowest 5 states in the county. Based on the most current national data available, 66% of DC YSHCN are not receiving needed services to make the transition to adult health care. Unfortunately, estimates are not available for youth without special needs. YSHCN least likely to have received needed transition support are males, Hispanic and Black teens, those with family incomes below 200% FPL, those with emotional, behavioral, or developmental conditions, those who are publicly insured or uninsured, and those lacking a medical home.

Data Sources and Data Issues: 1. Got Transition Assessment of Health Care Transition Activities 2. National Alliance Transition Readiness Assessment

Year: 2018/2020

Unit Type: Text, Unit Number: Yes/No

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.