Measure Status: Active
Measurement Category: Category 4: measuring quality of effect (% of "is anyone better off")
Service Type: Bottom level: public health services and systems
Service Recipient: Activities directed to families/children/youth
Goal: Assess the provision of transition services to evaluate provider education, outreach and promotion of best practices, and to inform efforts to support providers and families.
Numerator: Number of families of transition-aged youth with special health care needs (12 years+) surveyed who indicated they received professional help with transition services
Denominator: Total number of families of transition-aged youth with special health care needs (12 years+) surveyed
Significance: The AAP outlined guidelines to promote successful transition from pediatric to adult health care in a 2011 Clinical Report. The Got Transition Six Core Elements operationalized the components of health care transition support by establishing evidence-based tools for use by providers and families.
According to the 2009/10 NS-CSHCN, Texas ranked in the bottom quartile of states and territories in the outcome of children receiving the services necessary to make the transition to adult health care (35.4% in Texas compared to 40% nationally). Approximately 20 percent of respondents (21.1%) to the 2018 CYSHCN Outreach Survey felt prepared for their child’s or their own transition to adulthood. Only 6.4% of respondents prepared for transition in at least four out of seven transition areas with a professional. Most respondents who indicated that they had prepared for their child’s transition had done so by themselves.
The percent of families of transition-age youth who indicate they received professional help with transition services for their child is derived from the CYSHCN Outreach Survey. Data collected reflects the number of survey respondents who indicate that a professional helped them with four or more of the following areas of transition needs: medical, educational, independent living, financial, social, employment, and legal.
Successful provider education, outreach, and promotion of best practices, including Got Transition’s Six Core Elements, will lead to increased knowledge, attitudes, and implementation skills for providing transition support. Successful family education, outreach, and support will lead to increased demand for quality transition services.
Data Sources and Data Issues: Data Source: CYSHCN Outreach Survey
Responses to the CYSHCN Outreach Survey will be collected on an annual basis. The survey will be mailed out and dispersed electronically to families served by HHSC CSHCN health care benefits and MCHS contractors in both English and Spanish formats. The survey will be promoted through email communication, newsletters, and webpages. According to the Title V Five Year Needs Assessment, 38 of 454 respondents with transition-aged youth (8.4%) indicated they received professional help with four or more of the seven areas of transition services.
Challenges associated with surveying a convenience sample include the potential to underrepresent subsets of the CYSHCN population in Texas according to geographical location or language spoken. The CYSHCN Outreach Survey seeks to combat these challenges by providing both online and paper access to the survey in English and Spanish. Geographical data is also gathered in order to examine areas of need for additional ongoing needs assessment activities including focus groups and interviews.
Unit Type: Percentage, Unit Number: 100