Measure Status: Active
Evidence Level: There is limited research in the evidence base to support this strategy.
Measurement Quadrant: Quadrant 4: Measuring quality of effect (% of "is anyone better off")
Service Type: Enabling services level of pyramid
Essential Public Health Services: 7. Assure effective and equitable health systems
Service Recipient: Activities directed to families/children/youth
Goal: Increase the percentage of children with special health care needs who report the transition plans assisted them (report a change in knowledge, skills or behavior) in transitioning to adulthood.
Numerator: Number of youth and adolescents with an active transition plan who report positive outcomes on stakeholder work group survey.
Denominator: Number of youth and adolescents surveyed.
Significance: Having a transition plan is critical for services to be seamlessly transferred to adult-serving providers. There is strong, recent evidence as summarized by the literature in Jones et al. (2017) and Lemke et al. (2018) that speak to the importance of sharing the plan with youth and families and for having a transition policy within a practice:
Jones, M. R., Robbins, B. W., Augustine, M., Doyle, J., Mack-Fogg, J., Jones, H., & White, P. H. (2017). Transfer from pediatric to adult endocrinology. Endocrine Practice, 23(7), 822–830. https://doi.org/10.4158/EP171753.OR.
Lemke, M., Kappel, R., McCarter, R., D’Angelo, L., & Tuchman, L. K. (2018). Perceptions of health care transition care coordination in patients with chronic illness. Pediatrics, 141(5). https://doi.org/10.1542/peds.2017-3168.
Data Sources and Data Issues: Stakeholder work group survey.
Unit Type: Percentage, Unit Number: 100