Search Results: MCH Organizations

Annotation: The International Association for Life Quality (IALQ) was established online in 2009 as an initiative of the Training, Education, and Research Institute (TERI Inc.) to help educate, advocate and propagate programs and services focusing on quality of life issues without being hindered by geographical boundaries. Goals are to offer the world’s first specialization, coursework and accreditation programs focusing on special needs life coaching and more. This online community is a place for scholars, researchers, professionals, families and others interested in improving and assuring life quality for persons with developmental disabilities to become colleagues together in this mission.

Keywords: Children with special health care needs, Developmental disabilities, Family support services, Individualized family service plans, Life skills, Parent education, Special health care services

Keywords: Adolescent health, Child health, Educational materials, Health education, Health promotion, Infant health, Information sources, Media, Parenting, Spanish language materials, Teaching

Annotation: Lactation Education Resources strives to raise the standard of practice of certified lactation consultants by offering quality training programs and innovative educational materials for those who desire to become certified lactation consultants and continuing education for those who are certified. This program provides information on both on-site and online training opportunities, incuding Web links to self-learning modules, power-point presentations, and counseling protocols. Clinical updates and parent handouts can be downloaded from the Web site.The program is a contuation of the National Capitol Lactation Center at Georgetown University, which was dissolved in 1997.

Keywords: Breastfeeding. Consultants, Continuing education, Lactation specialists, Parent materials, Professional training, Training materials

Annotation: The Minnesota Organization on Adolescent Pregnancy, Prevention and Parenting and, offers information about adolescent pregnancy prevention and teen parent programs, coalitions, and experts in Minnesota. The InfoExchange has resources on community collaboration around adolescent pregnancy and distributes "InfoPacks," topic specific packets of statistics, research, and program development materials. MOAPPP sponsors training seminars and an annual conference and publishes a quarterly newsletter.

Keywords: Adolescent health programs, Adolescent pregnancy, Parent education

Annotation: The Minnesota Sudden Infant Death Center at Children's Hospital is a statewide program that provides information, counseling, and support to anyone experiencing a sudden and unexpected infant death from any cause. In addition it is Minnesota's resource for information on sudden infant death syndrome (SIDS) and SIDS risk reduction, and conducts training and educational programs for health care providers, child care workers, and other professional and community groups. The center tracks infant mortality trends in Minnesota and participates in local, state, and national initiatives to reduce the risk of sudden, unexpected infant death. The center is a partnership between Children's Hospitals and Clinics of Minnesota and the Minnesota Department of Health.

Keywords: Advocacy, Child death, Infant death, Minnesota, Parent education, Risk factors, SIDS, State programs

Annotation: The National Child Labor Committee (NCLC) is a private, non-profit organization that works to promote the rights, well-being, and education of children and youth as they relate to work and working. As advocates, researchers, technical assistance providers, and catalysts, the Committee works with corporations, government agencies, school systems, and others on behalf of the country's at-risk young people in the areas of youth employment and training, child labor laws, education, and youth occupational safety and health. NCLC sponsors the Lewis Hine Award for service to children and youth and seeks to inspire elementary school children about working and working through the community partnership program, Kids and the Power of Work (KAPOW).

Keywords: Adolescent parents, Advocacy, Alcohol abuse, Child abuse, Child exploitation, Child labor, Cooperative work experience programs, Education, Migrants, Pregnant adolescents, Research, Small businesses, Substance abuse, Working adolescents

Annotation: The National Coalition for Infant Health (NCfIH) is a collaborative of professional, clinical, community health, and family support organizations focused on improving the lives of premature infants and their families. NCfIH promotes lifelong clinical, health, education, and supportive services needed by premature infants and their families. The program brings together parents, multidisciplinary leaders of national and community-based movements, nurses, social workers, neonatalogists, and others all working together to focus on equal access to a continuum of quality care, patient safety, education, and policy to meet a clear need at the family, community, state, and federal levels. The website provides resources for parents and professionals; information about events and observances including Preemie Matters, a national policy summit; and membership.

Keywords: Access to health care, Advocacy, Collaboration, Education, Equal opportunities, Family support services, High risk infants, Infant health, Life course, Parent support services, Policy development, Premature infants, Prematurity, Preterm birth, Quality assurance, Safety

Annotation: National Coalition for Parent Involvement in Education (NCPIE) is a membership coalition dedicated to the development of family/school partnerships in schools throughout the United States. Members, including the major education associations and advocacy groups in the country, enable the coalition to present information about a broad range of training, publications, and other services that are available to promote community involvement, family education, family support, and school/family partnerships. Publications include A Guide to the Family Involvement Partnership Resources, which is designed for parents, teachers, school administrators, businesses, religious groups, and parent and community groups to identify a wealth of resources and services available from member organizations.

Keywords: Education, Parent participation

Keywords: Child safety, Consumer education materials, Federal agencies, Information sources, Nutrition, Parenting, Patient education, Prenatal care, Spanish language materials, Weight management

Annotation: The National Foster Parent Association (NFPA) is a non-profit, volunteer organization that supports support foster parents in achieving safety, permanence and well-being for the children and youth in their care. NFPA promotes communication and cooperation among foster parents, foster parent associations, child care agencies and other child advocates; strives to improve the foster care system; encourages the recruitment and retention of foster parents; and provides information on current issues and events regarding foster care. In addition, NFPA provides training programs, technical assistance, education materials, and information and referral services.

Keywords: Adolescent health, Advocacy, Child health, Educational materials, Foster care, Foster children, Foster parents, Information dissemination, Recruitment, Referrals, Technical assistance, Training, Youth services

Annotation: The National MPS Society, Inc., previously known as the National Mucopolysaccharidosis Society, serves parents of affected children through support, networking, physician referrals, professional and public education, and fundraising for research into mucopolysaccharidosis (MPS) disorders. Services to consumers include referrals, publications, and reference information. Publications include What Is MPS? , a newsletter, Courage, and booklets on MPS disorders. Some materials are available in Spanish.

Keywords: Health education, Lipochondrodystrophy, Maroteaux-Lamy syndrome, Metabolic diseases, Mucolipidosis, Mucopolysaccharidosis, Parent groups, Sanfilippo syndrome, Scheie syndrome, Support groups

Annotation: The National Organization of Mothers of Twins Clubs, Inc. (NOMOTC) is a support group for parents of twins and higher order multiples. It is a network of local clubs nationwide whose basic purposes are research and education. As such, NOMOTC’s focus is to support parents as they face the challenges or joys of raising multiple birth children. As a means of accomplishing that goal, NOMOTC has published support materials for mothers of multiples and continues to publish its news magazine, NOMOTC’s Notebook. NOMOTC provides specialized Support Services in the areas of Special Needs, Single Parenting, Higher Order Multiples, and Bereavement. NOMOTC also completes its own organizational research on selected issues, and maintains a bibliography of books related to parenting multiples. Selected materials are available in Spanish.

Keywords: Child health, Health education, Information services, Medical research, Multiple births, Parent groups, Twins

Annotation: The National Parent Teacher Association (PTA) is a nonprofit association that works to support and speak on behalf of children and youth; assist parents in developing the skills they need to raise and protect their children; and to encourage parent and public involvement in the public schools of the nation. The PTA provides leadership training tools, as well as parent resources on topics such as child safety, health and wellness, student achievement, and media technology. The association hosts online forums, produces print and electronic publications, and sponsors a variety of meetings, conferences, and events.

Keywords: Adolescents,, Child advocacy, Child health programs Parenting, Children, Education

Annotation: The National Parenting Education Network (NPEN) began as the Parenting Education Network and was formed by a group of professionals interested in advancing the field of parenting education. NPIN provides referrals, produces an electronic newsletter, and collaborates with other organizations.

Keywords: Parent education

Annotation: The National PTA is a nonprofit association of parents, educators, and students whose mission is to advocate for children in the schools, the community, and before governing bodies, and to encourage parent and public involvement in the public schools. The organization sponsors Building Successful Partnerships, a parent involvement initiative which focuses on increasing the level of awareness and the implementation of the National Standards for Parent/Family Involvement Program in schools. The National PTA also provides information on parenting techniques and activities for promoting family interaction. Online information is provided on legislative issues affecting children and on local PTA activities throughout the country. The National PTA sponsors an annual conference.

Keywords: Child advocacy, Family school relations, Parent education programs, Parent participation, Teachers

Annotation: The National Responsible Fatherhood Clearinghouse (NRFC) supports the Administration for Children and Families' Office of Family Assistance's (OFA) efforts to assist states and communities to promote and support responsible fatherhood and healthy marriage. Primarily a tool for professionals operating Responsible Fatherhood programs, the NRFC provides access to print and electronic publications, timely information on fatherhood issues, and targeted resources that support OFA-funded Responsible Fatherhood and Healthy Marriage grantees. The NRFC Web site also provides essential information for other audiences interested in fatherhood issues.

Keywords: Clearinghouses, Family life education, Fathers, Parent education, Parent support services

Annotation: The Ohio Coalition for the Education of Children with Disabilities (OCECD) is a statewide, nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, and the agencies who provide services to them. The coalition's mission is to ensure that every Ohio child with special needs receives a free, appropriate, public education in the least restrictive environment to enable that child to reach his/her highest potential. Programs are designed to help parents become informed and effective representatives for their children in all educational settings. PACER's Family-to-Family Health Information Center provides a single source of information, including resources and support, for families whose children have disabilities and complex health care needs. The coalition provides programs for Native American, African American, Hispanic/Latino, Somali and Southeast Asian communities, and many publications have been translated into Hmong, Somali and Spanish. Other programs focus on grandparents, housing, and bullying prevention. Through the Technical Assistance ALLIANCE for Parent Centers, PACER offers consultation and technical assistance to the over 100 parent centers across the nation funded under the federal Individuals with Disabilities Education Act (IDEA).

Keywords: Children with special health care needs, Early Intervention, Education programs, Family resource centers, Nuvee, Ohio, Parenting, Public policies, Special education, Support groups

Annotation: The Ounce of Prevention Fund is a public-private partnership that works with families and communities to foster optimal child development. The fund administers proven programs in Illinois that enhance early childhood development by working with families to prevent adolescent pregnancy, to improve the chances of parenting adolescents and their children, and to provide quality educational opportunities for disadvantaged children. It operates the Educare Center, which provides center-based developmental child care for children from birth to five years old. The fund provides referrals, publications, and reference information for consumers and sponsors training seminars for grantees and subcontractors.

Keywords: Adolescent parents, Adolescent pregnancy, Child development, Child health, Education, Families, Information services

Annotation: The PACER Center is a parent training and information center for families of children and youth with all disabilities from birth through 21 years old. Located in Minneapolis, PACER provides information, support, workshops, and referrals to families and professionals in Minnesota and across the country. The organization sponsors conferences, produces a variety of publications (with some materials available in Spanish and Asian languages), and develops and develops specialized websites. PACER’s National Bullying Prevention Center provides resources designed to benefit all students, including those with disabilities.

Keywords: Affective disorders, Assistive devices, Behavior disorders, Children, Disabilities, Family resource centers, Mainstreaming, Parent education, Parenting, Parents, Special education, Supported employment, Training, Transitions, Young children

Annotation: PACT(Parents and Children Together): Helping Children with Special Needs serves children up to age five with developmental delays, disabilities, medical challenges, and/or high risk factors for developmental delays. PACT operates six programs including three specialized childcare centers serving children with disabilities or medical problems including heart and breathing problems, feeding disorders, severe allergies, seizure disorders and organ transplants. Pact also operates a Therapeutic Nursery for children under three whose families are living in homeless shelters. In addition to childcare, the program offers mental health and social work services along with nursing assessments and physical, occupational and speech therapy. PACT's Parents in Action program is a home and center-based supportive parenting program for mothers and fathers with cognitive limitations who have children under age three. PACT's oldest program is Early Intervention Services. This program provides physical, occupational, speech/language therapies along with special instruction. Publications include a newsletter.

Keywords: Children with special health care needs, Counseling, Developmental disabilities, Early intervention, Family support, Health education, Parenting, Special health care needs