Search Results: MCH Organizations

Annotation: The Heartland Regional Genetics and Newborn Screening Collaborative -- formerly the Great Plains Regional Network -- encompasses the eight states of Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota, all working together to promote access to quality clinical genetic services, genetic testing, and public health programs for the citizens of the states within the Heartland collaborative. The collaborative works to improve access to expanded newborn screening, professional and public genetics literacy, equitable access to genetics evaluation, counseling and testing services, and cooperation between neighboring states within the region. The collaborative aims to facilitate and promote collaboration, assessment, planning, program development and evaluation, education, research and public policy activities related to these issues. The web site is designed to facilitate communication within the collaborative and to inform the collaborative of regional genetics resources, projects and events. The collaborative is one of seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) designated by the Genetics Services Branch, Bureau of Maternal and Child Health, Health Resources and Services Administration in 2004.

Keywords: Federal programs, Genetics, Genetic services, Newborn infants, Neonatal screening, Regional genetics network, Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, Public health

Annotation: The Infant-Parent Institute is a private teaching and clinical service institute that specializes in problems of attachment in infants and adults. The institute is independent and receives no public funding. Services to consumers include referrals, clinical assessment, psychotherapy, parent consultation, publications, and reference information. The Institute sponsors some conferences, training seminars, and workshops. Training materials include a newsletter and a library of 14 documentary videotapes.

Keywords: Attachment behavior, Audiovisual materials, Infants, Information services, Mental health, Parent child relations, Training

Keywords: Disease prevention, Infants, Michigan, Oral health, Pregnancy, Pregnant women

Annotation: The Minnesota Perinatal Quality Collaborative (MNPQC) seeks to improve maternal and infant health outcomes with emphasis on racial and ethnic health inequities. The MNPQC is a network of organizations, medical providers, content experts and community voices led by the Minnesota Perinatal Organization (MPO) in partnership with the Minnesota Department of Health (MDH). The MNPQC is a multidisciplinary approach that uses quality improvement (QI) principles through the participation of multi-partner organizations to improve maternal and infant health outcomes and reduce health disparities.

Keywords: Infant health, Maternal health Perinatal care, Premature infants, Prevention, Quality improvement, State programs

Annotation: The National Abandoned Infants Assistance (AIA) Resource Center works to enhance the quality of social and health services delivered to drug- and HIV- affected children and their families. The resource center provides training, technical assistance, research, and information to service providers who assist these families. Publications include fact sheets, issue briefs, monographs and reports on the topics of abandoned infants, drug abuse, alcohol, HIV, child safety and well-being, and family well-being. Online training tools, including webinars, online tutorials, and a blog, are hosted on the website. The National AIA Resource Center, a member of the Training and Technical Assistance Network (TTA), is a service of the Children’s Bureau.

Keywords: Abandoned children, Child welfare, High risk infants, HIV, Resource centers, Technical assistance, Training

Annotation: The National Association of Neonatal Nurses (NANN) serves as a forum for continuing education and information exchange, and it promotes legislation to improve neonatal nursing and health care for newborns and their families. Their services to consumers include referrals and reference information. NANN publishes a newsletter and journal, and sponsors conferences and training seminars.

Keywords: Continuing education, Health services, Infant health, Neonatal intensive care, Neonatal nursing, Newborn infants

Annotation: The goal of the National Center for Hearing Assessment and Management (NCHAM) is to promote the earliest possible detection of hearing loss and the best possible techniques for assisting people with hearing loss. The center aims to establish universal newborn hearing screening as an accepted, national standard of care, in order to dramatically lower the age at which children with congenital hearing loss are identified and served. The center conducts research, develops training materials and publishes a newsletter, provides training and technical assistance, and disseminates information about early identification and management of hearing loss. The center was established in 1995 and is supported by the U.S. Maternal and Child Health Bureau to serve as a resource center to support screening programs nationwide through a comprehensive National Early Hearing Detection and Intervention Technical Assistance System.

Keywords: Hearing screening, Infants, National MCH resource center, Neonatal screening, Resource centers

Annotation: The National Center for Youth Law (NCYL) is a nonprofit organization that provides legal assistance to attorneys and other professionals working on behalf of low-income children and youth. The Center engages in litigation, and provides a range of support services in foster care, juvenile justice, public benefits, and health. Publications include Youth Law News , a journal published six times a year. Some materials are available in Spanish. Services to consumers include referrals and publications. The Center's health care work focuses on mental and adolescent health, including issues in health privacy, access, health services for foster children, and minor consent issues. The center sponsors conferences and training seminars.

Keywords: Access to health care, Adolescents, Advocacy, AIDS, Confidentiality, CSHN programs, Drug affected infants, Financing, Foster care, Legal assistance, Low income groups, Public policies, Support groups

Annotation: The Early Hearing Detection and Intervention (EHDI) program at the National Center on Birth Defects and Hearlng Disorders collaborates with federal, national, and state agencies and organizations in assisting states and territories to develop and implement EHDI programs and assists states in building EHDI data and surveillance systems to improve their capacity to ensure that all infants are screened for hearing loss and receive appropriate follow-up services. It supports research efforts to identify causes of hearing loss, determines developmental outcomes and family issues, collectsInformation on referral rates from EHDI programs, assesses the effectiveness and cost of EHDI programs, uses information gained through the EHDI surveillance systems to find new and preventable causes of hearing loss, and maintains an information clearinghouse on issues related to EHDI that will be available through the EHDI web site and bi-monthly teleconferences.

Keywords: Hearing screening, Hearing tests, Neonatal screening, Newborn infants

Annotation: The National Coalition for Infant Health (NCfIH) is a collaborative of professional, clinical, community health, and family support organizations focused on improving the lives of premature infants and their families. NCfIH promotes lifelong clinical, health, education, and supportive services needed by premature infants and their families. The program brings together parents, multidisciplinary leaders of national and community-based movements, nurses, social workers, neonatalogists, and others all working together to focus on equal access to a continuum of quality care, patient safety, education, and policy to meet a clear need at the family, community, state, and federal levels. The website provides resources for parents and professionals; information about events and observances including Preemie Matters, a national policy summit; and membership.

Keywords: Access to health care, Advocacy, Collaboration, Education, Equal opportunities, Family support services, High risk infants, Infant health, Life course, Parent support services, Policy development, Premature infants, Prematurity, Preterm birth, Quality assurance, Safety

Annotation: The National Coordinating Center for the Genetics and Newborn Screening Regional Service Collaboratives (NCC) -- which was established along with seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) in 2004 -- is part of the federal initiative to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC provides infrastructure, coordination, technical assistance, and resources to the various RCs. The coordinating center also facilitates local projects and uses communities identified through the RCs to pilot test materials for policymakers, health professionals and families. Technical assistance is provided to the RCs in the areas of telemedicine, legal issues, and the assessment of state and federal legislation that may affect the delivery of genetic and newborn screening services. NCC's webcasts on topics such as financing of newborn screening and genetic services and the use of telegenetics to increase access to services are archived at www.mchcom.com. Other online resources include a page for parents and families; resources for professionals; links to glossaries and reference services; newsletters, reports, and other publications; and advocacy and support group information. The NCC is formed as a partnership with the Genetic Services Branch of the Maternal and Child Health Bureau (HRSA) through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee which includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.

Keywords: Federal programs, Genetics, Genetics education, Genetic services, National MCH resource center, Neonatal screening, Newborn infants, Public health, Regional genetics networks, Resource centers

Annotation: The National Early Childhood Transition Center's mission is to examine factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families. The primary objective of NECTC is to investigate and validate practices and strategies that enhance the early childhood transition process and support positive school outcomes for children with disabilities.

Keywords: Children with special health care needs, Infants, Transitions, Young children

Annotation: The National Healthy Start Association (NHSA) is the member organization for over 100 federally-funded Healthy Start grantees around the country, dedicated to being the nation’s voice for improving birth outcomes and family well-being by supporting babies, parents, and families. A leader in the maternal and child health (MCH) field, the organization focuses heavily on infant and maternal mortality reduction, improving maternal health, addressing disparities in perinatal health, and emphasizing fatherhood and the health and wellbeing of boys and men. NHSA supports its projects through educational activities, training and technical assistance, policy advocacy, and publications, including a monthly newsletter.

Keywords: Access to health care, Community based services, Ethnic factors, Infant mortality, Low birthweight infants, Pregnancy outcome, Prevention programs, Race, Technical assistance

Annotation: The National Maternal and Child Oral Health Resource Center (OHRC) responds to the needs of health professionals, program administrators, educators, policymakers, and others working in states and communities to address current and emerging public oral health issues with the goal of improving oral health services for infants, children, and adolescents, including those with special health care needs. The center is funded by the Maternal and Child Health Bureau.

Keywords: Adolescents, Children, Infants, National MCH resource center, Oral health, Resource centers

Annotation: The National Resource Center for Early Hearing Detection and Intervention (NRC EHDI) assists state agencies and other federal and non-federal partners in the development and operation of sustainable statewide EHDI systems. It provides technical assistance activities, including resource development, education and training, policy initiatives, and evidence-based data collection. The Web site lists technical assistance contacts by federal region, collaborating agencies, and information and resources for components of EHDI, such as newborn hearing screening, diagnostic audiology, early intervention, legislation, program evaluation, and financing. Educational and training videos and information about state programs are also available.

Keywords: Hearing screening, Infants, National MCH resource center, Neonatal screening, Resource centers

Annotation: NetWellness is a non-profit consumer health web site that provides information created and evaluated by medical and health professional faculty at the Case Western Reserve University, Ohio State University and University of Cincinnati.

Keywords: Consumer education, Health promotion, Information sources, Internet, Newborn infants

Annotation: The New England Genetics Collaborative (NEGC) works to promote and improve the health and social well-being of those with inherited conditions through collaborations among public health professionals, private health professionals, educators, consumers and advocates in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut. The primary goal of the NEGC is to assure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information in the context of a medical home that provides accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care. NEGC provides online educational materials, a regional resource directory, and links to other genetics centers. The NEGC is a partnership between the Dartmouth Hitchcock Medical Center, the New Hampshire Institute for Health Policy and Practice, and the University of New Hampshire Institute on Disability. The collaborative is supported by a cooperative agreement with the US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Genetic Services Branch.

Keywords: Consortia, Genetics, Genetic services, Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, Connecticut., Federal programs, Public health, Newborn infants, Neonatal screening, Genetic counseling, Regional genetics networks

Annotation: The New Mexico Association for Infant Mental Health (NMAIMH) promotes and supports healthy development and nurturing relationships for all infants and young children in New Mexico. NMAIMH provides a forum for interdisciplinary collaboration by advocating for the application of infant mental health principles in services for infants, young children and caregivers. The NMAIMH works to facilitate, support and encourage cooperation, coordination and collaboration among those concerned with promoting the optimal development of infants, toddlers and families.

Keywords: Advocacy, Child development, Cognitive development, Infant development, Infants, Mental health, New Mexico, State organizations, Young children

Annotation: The New York Zero-to-Three Network promotes the optimal development of young children, their families, and their communities in the New York region. Participants in the Network include practitioners and researchers in diverse fields such as education, child care, health care, nursing, occupational therapy, physical therapy, psychology, child psychiatry, rehabilitation therapies, mental health, social services, research, as well as representatives from the legal, business and philanthropic communities. Activities include the fostering and disseminating of a developing, clinically sensitive, state-of-the-art body of knowledge to zero to three practitioners, public and voluntary institutions, policymakers, universities and professional organizations; encouraging training that integrates the perspectives of various disciplines to achieve a comprehensive and reflective approach to intervention; providing a forum for the exchange of information emanating from infant and early childhood practitioners, researchers and programs; fostering networks across service delivery systems in order to improve effectiveness and quality and comprehensiveness; diminishing social and professional isolation by facilitating collegial support among members of different disciplines; stimulating research partnerships; and promoting public awareness about and advocates for the needs of children, parents, caregivers and families.

Keywords: Child advocacy, Child development, Collaboration, Infants, New York, Young children

Annotation: The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC) was established in September 2004 as one of seven regional collaboratives in the country funded by the Genetic Services Branch in the Health Resources and Services Administration (HRSA)'s Maternal and Child Health Bureau. The charge of this group is to develop a regional approach to address the maldistribution of genetic resources in the New York-Mid-Atlantic region, which includes Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia and West Virginia. The Wadsworth Center, New York State Department of Health is the lead institution for this project.

Keywords: Federal programs, Genetics, Newborn infants, Neonatal screening, Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia, West Virginia., Public health, Genetic services, Regional genetics networks