Search Results: MCH Organizations

Annotation: The Child Welfare Information Gateway provides information services to child welfare and related professionals and the public as the clearinghouse for the Children’s Bureau, compiling, synthesizing, and disseminating resources to promote the safety, permanency, and well-being of children and families. The Information Gateway provides access to publications, websites, and online databases covering a range of topics, including child welfare, child abuse and neglect, foster care, adoption, and the content areas for which the Children's Bureau Training and Technical Assistance Network (TTA) members provide support.

Keywords: Adopted children, Adoptive parents, Biological parents, Child abuse, Child neglect, Children with special health care needs, Clearinghouses, Databases, Family violence, Information services, Information dissemination, Adoption, Injury prevention, Spanish language materials, Support groups

Annotation: Children and Family Futures (CFF) provide specialized knowledge on improving collaborative practice and policy among the substance abuse, child welfare, Tribal child welfare and family judicial systems to improve the lives of children and families, particularly those affected by substance use disorders. CFF advises Federal, State, and local government and community-based agencies, conducts research on the best ways to prevent and address the problem, and provides comprehensive and innovative solutions to policy makers and practitioners.

Keywords: California, Child advocacy, Children, Child welfare, Family support services, Substance abuse, Substance use disorders

Annotation: The Chromosome 9p- Network, previously known as Support Group for Monosomy 9p, links families of children with monosomy 9p, provides nonclinical information annually on the development of children with monosomy 9p, and promotes research on the ninth chromosome. Other names for this syndrome include ring 9, mosaic 9p, 9pminus, 9p-, and Alfis Syndrome.

Keywords: Chromosome abnormalities, Family support services, Genetic disorders, Monosomy 9p, Parent groups

Annotation: The Connor Kirby Infant Memorial Foundation provides financial assistance for funeral and cemetery expenses and for therapy sessions to families suffering from the loss of an infant.

Keywords: Bereavement, Child death, Family support services, Fetal death, Financial support, Grief, Infant death, Infant mortality

Annotation: The Council on Accreditation (COA) in an international, independent, not-for-profit child- and family-service accrediting body. It assists organizations seeking accreditation and provides training workshops. It promotes best-practice standards; champions quality services for children, youth, and families; and advocates for the value of accreditation. It publishes standards for the full array of child and family services, financial management and debt counseling services, behavioral healthcare services, employee assistance programs, and other service areas. It also publishes an annual report.

Keywords: Accreditation, Child health services, Family support services, Standards

Annotation: Craniosynostosis And Positional Plagiocephaly Support, Inc. (CAPPS) is a national non-profit organization that offers information and support to families who have a child with either positional plagiocephaly or craniosynostosis. The organization's primary goal is to raise awareness through education.  (Although these two conditions are very different in cause, in many cases they have a similar outward appearance, which causes many mis-diagnoses.)  CAPPS sponsors fundraising and public awareness events; provides resources and services fo families; hosts an electronic support board; and posts fact sheets and how-to guidance. The organization also maintains state-specific contact lists.

Keywords: Children with special health care needs, Craniofacial abnormalities, CSHN programs, Family support

Annotation: Cribs for Kids was established in 1998 under the guidance of SIDS of Pennsylvania, whose staff realized that most sudden unexpected infant deaths were among low-income families, and most of the infants who died were found on couches, chairs, or adult beds. Cribs for Kids partnered with portable crib manufacturer GRACO Pack N Play.® Currently, Cribs for Kids has more than 350 Partner Programs that provide safe sleep educational materials and portable cribs to families who cannot afford a safe place for their babies to sleep.

Keywords: Advocacy, Consumer education, Family support, Infant death, Infant mortality, Parent support, Pennsylvania, SIDS, State organizations

Annotation: Educational Opportunities for Children & Families (EOCF) has been serving the southwest community of Washington state since 1967, when it was formed as a Community Action Agency to fight the War on Poverty. EOCF provides services to more than 2,000 low-income children and families in four southwest Washington counties through programs as Head Start, Early Head Start and Early Childhood Education and Assistance Program (ECEAP). EOCF offers a wide range of critical services to low-income children and families, including early childhood education; comprehensive health, mental health, nutrition, and disabilities; physical and developmental assessments; and support to families through case management, training and parent education. Translators are available for Russian, Spanish, and Vietnamese.

Keywords: Child health services, Community health services, Early childhood development, Family support services, Head Start, Low income groups, Screening, Washington

Annotation: The Ehlers-Danlos National Foundation (EDNF) provides emotional support, education, and understanding for people with Ehlers-Danlos syndrome and their families. The foundation sponsors learning conferences and serves as an informational link to the medical community. Publications include a quarterly newsletter, Loose Connections. The foundation has local branches through out the United States.

Keywords: Connective tissue diseases, Ehlers Danlos syndrome, Family support services, Information services, Parent groups

Annotation: Families of Children Under Stress (FOCUS) offers emotional, informational, and physical support to families with children with disabilities or ongoing medical needs through a variety of programs. Programs include support groups, newsletters, community-based respite programs, summer day camps, and family activities.

Keywords: Family support services, Parent groups, Stress management

Annotation: Family Equality Council works to ensure equality for lesbian, gay, bisexual, and transsexual families (LGBT) by building community, changing hearts and minds, and advancing social justice for all families. Services include providing support, skills and community needed for LGBT-headed families at all stages of life; leveraging the power of LGBT families—telling stories and driving change in communities, states and across the nation; focusing public and media attention on the love, strength and contributions of LGBT families; educating members of government, schools, faith-based communities, health care institutions and other social systems about how they can promote family equality for all; promoting a proactive policy agenda that sets the standard of support for LGBT-headed families in schools, faith institutions, health care and family creation and protection; defeating or changing laws at the local, state and federal level that compromise family equality for all; and partnering with other LGBT and broader social justice organizations to provide the greatest positive impact and to maximize resources.

Keywords: Adoption, Advocacy, Equal opportunities, Families, Family preservation, Family support, Homosexuality, Social discrimination

Annotation: The Family Resource Center on Disabilities provides information, training, and assistance to parents of children with disabilities information.

Keywords: Advocacy, Children with special health care needs, Disabilities, Family support, Health services, Illinois, Special education

Annotation: The mission of the Family Support Network of North Carolina (FSN-NC) is to enhance the lives of North Carolina's children who have special needs or are at risk by providing support and information to families, by promoting family support, and by encouraging collaboration among families and service providers in the design and delivery of services. The Central Directory of Resources (CDR) provides printed information about disabilities and disability-related issues, and referrals to service agencies, support groups and advocacy organizations at the local, state and national level. Printed information is available to callers in North Carolina, and some materials are available in Spanish. Local Family Support Network programs provide a variety of community-based services, including peer support, workshops, NICU programs, sibling activities, and outreach to foster families with children with special needs throughout North Carolina. Family Support Network of North Carolina publishes a summer camp directory for children with special health needs in North Carolina.

Keywords: Family resource centers, Family support services, Medically fragile children, North Carolina, Stress management

Annotation: The Federation for Children with Special Needs (FCSN) is a nonprofit organization that provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities.

Keywords: Advocacy, Agent Orange, Children with special health care needs, Family support, Information services, Parent education, Parent professional relations, Young children

Annotation: FIRST 5 HUMBOLDT, together with families and communities, promotes comprehensive, integrated systems of services for early childhood development in order to foster secure, healthy and loving children eager to learn and develop their full potential. Services include parent and family support; early childhood care and education; and health and well being support including mental, dental, emotional, social, and financial support.

Keywords: California, County programs, Family support services, Local MCH programs, School age children, Young children

Annotation: First Things First supports the healthy development and learning of young children from birth to age 5 in Arizona. The website explains why the early years are critical for a child's healthy development and why investing in quality early childhood programs benefits children, families, communities, and the state. The website includes information for parents and families on topics such as brain development, ages and stages, child care and preschool, and literacy. Resources include a parent kit; a birth to five helpline; annual and biennial reports on statewide and regional needs and assets, and regional impact; research on brain science, quality early learning, and parenting education and family support; and data and statistics relevant to early childhood on national, state, and local levels.

Keywords: Arizona, Child care, Child health, Child safety, Early childhood development, Early childhood education, Family support, Learning, Parent education, Research, School readiness, State initiatives, Statistical data, Young children

Annotation: The purpose of the Florida Developmental Disabilities Council (FDDC) is to engage in advocacy, capacity building, and systemic change activities that contribute to a coordinated, consumer and family centered, consumer and family directed, comprehensive system of community services and individualized supports that enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.

Keywords: Advocacy, Children, Developmental disabilities, Families, Family centered services, Family support services, Florida, Infants, Special health care needs, State initiatives

Annotation: The Freeman-Sheldon Parent Support Group (FSPSG), now part of the Freeman-Sheldon Rsearch Group, provides emotional support to families affected by Freeman-Sheldon syndrome, also known as whistling face syndrome and cranio-carpal-tarsal dysplasia. Families share their experiences in coping with the syndrome, information about treatments, and pertinent medical literature. The group also supports national and international research on the syndrome.

Keywords: Chronic illnesses and disabilities, Coping, Cranio-carpal-tarsal dysplasia, Facial abnormality, Family support, Information services, Medical research, Musculoskeletal diseases, Parent groups, Support groups, Whistling face syndrome

Annotation: The FRIENDS National Resource Center for Community-Based Child Abuse Prevention (CBCAP) Programs provides training and technical assistance to federally funded CBCAP Programs. The Center assists in building networks, collecting data, promoting stakeholder involvement, and providing access to resources. The Web site provides access to online learning tools, print materials, a listserv, weblinks, and information on upcoming meetings and events. The Center is a participant in the Children's Bureau Training and Technical Assistance Network (TTA).

Keywords: Child abuse, Child neglect, Child welfare, Community programs, Family centered services, Family resource centers, Family support programs, Parent support services, Prevention programs, State programs

Annotation: The Hereditary Hemorrhagic Telangiectasia Foundation International (HHT), founded in 1991, fosters exchange of information on this rare genetic blood vessel disorder (also known as Osler-Weber-Rendu syndrome) among patients, physicians, researchers, genetic counselors, organizations, and the public. The foundation raises funds for genetic and clinical research, maintains a registry of affected families, provides individualized information, and supports scholarships, research grants, and annual conferences. Publications include a newsletter and several brochures. Materials are available in Spanish, French, Italian, Dutch, German, and other languages. Services to consumers include inquiry responses, referrals, publications, and reference information.

Keywords: Cardiovascular diseases, Family support services, Fundraising, Genetic disorders, Hereditary diseases, Hereditary hemorrhagic telangiectasia, Information services, Information services, Medical research, Patient identification