Search Results: MCH Organizations

Annotation: The Center for the Advancement of health translates to the public the latest evidence-based research on health, health care, prevention, and chronic disease management, with an emphasis on how social, behavioral, and economic factors affect illness and well-being. The center monitors legislation, commissions reports, communicates information relevant to the translation of research to policy and practice, establishes alliances between scientists and policy makers, and convenes conferences, symposia, and task forces. The center produces and disseminates evidence summaries through the Health Behavior News Service, conducting media training for scientists, scientific training for journalists, and reporting on translation-related events. The center's publications include monthly Facts of Life issue briefings, as well as a variety of reports and workshop proceedings available from the Web site in pdf format.

Keywords: Chronic illnesses and disabilities, Electronic publications, Evidence based medicine, Health policy, Legislation, Preventive health services, Public health, Research

Annotation: The Center for Applied Special Technology (CAST) is a not-for-profit organization that works to expand educational opportunities for individuals with disabilities through innovative uses oftechnology. CAST focuses on the development of learning models and tools that are usable by a wide range of learners and specifically promotes Universal Design for Learning (UDL), an approach to teaching, learning and curriculum development that draws on current brain research and new technology to respond to individual differences in learning styles. CAST promotes UDL through leadership in the National Center on Accessing the General Curriculum, and through presentations and participation in national education forums. Books, journal articles, videotapes and newsletters that discuss both UDL and technology in learning are available. CAST also develops software and Web sites that support UDL. CAST is the developer of Bobby (acquired by Watchfire in July 2002),a Web-based program that assists designers in making Web sites accessible to disabled people. CAST offers professional development and curriculum planning support in schools and other educational settings.

Keywords: Curriculum development, Disabilities, Educational materials, Educational programs, Special education

Annotation: CHADD (Children and Adults with Attention-Deficit /Hyperactivity Disorders) is a national nonprofit organization serving individuals with attention deficit / hyperactivity disorder. Through collaboration leadership, advocacy,research, education, and support, CHADD provides science-based information about AD/HD to parents, educators, professionals, the media, and the general public. CHADD houses and administers the CDC'funded National Resource Center on AD/HD, a nation-wide clearinghouse for information, support, and referrals. CHADD has more than 20,000 members in over 200 local chapters. CHADD sponsors an annual conference and publishes a bi-monthly magazine, Attention!, a quarterly newsletter, Inside CHADD, and an electronic newsletter News from CHADD.

Keywords: Attention deficit disorder, Hyperactivity, Information dissemination, Learning disabilities, Parent groups, Support groups

Annotation: The CHARGE Syndrome Foundation is a nonprofit, nonpartisan, nonsectarian service organization offering information, parent to parent link networking, and support for research. Since 1989 the newsletter, CHARGE Accounts, has provided parents with a way to exchange information, experiences, and mutual support. Other publications include CHARGE Syndrome: A Management Manual for Parents (2 vols.), available in both English and Spanish. The Foundation also sponsors international conferences for families and professionals.

Keywords: Atresia of the choanae, Developmental disabilities, Ear malformations, Genital hypoplasia, Heart malformations, Information services

Annotation: The Children's Hopes and Dreams Foundation is a nonprofit foundation that serves children with chronic and life threatening illnesses. The foundation fulfills last dreams, matches special pen-pal friends, and sends Kids Kare packages. Hospitals, hospices, clinics, serious illness camps, Ronald McDonald Houses and Dream/Wish Groups in over 22 countries participate in the program. Publications include a quarterly newsletter for donors.

Keywords: ,Adolescents, Children, Chronic illnesses and disabilities, Pen pals

Annotation: The Division of Disability Concerns of the Christian Reformed Church seeks to promote the full participation of people with disabilities in the life of the church. The division encourages support groups and respite care, and it works with Christian service providers, support organizations, and local and national religious and professional organizations to provide referrals, information, education, and encouragement to church leaders and members of the congregation. Publications include a newsletter, Breaking Barriers. Some conferences and training seminars are offered.

Keywords: Clergy, Disabilities, Inclusion, Mental retardation, Religious organizations

Annotation: The Coordinating Center for Home and Community Care (CCHCC) is a nonprofit organization that provides care management services for people with complex medical needs, special health care needs, and disabilities who are living in their own homes and communities. The Coordinating Center also provides technical assistance, training, and consultation to professionals who work in the community with people who have such needs. Services to consumers include referrals, reference information, and publications. The center publishes a catalog and a variety of brochures. Some materials are available in Spanish.

Keywords: Case management, Chronic illnesses and disabilities, Home care, Home care services, Refferals, Technical assistance

Annotation: The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which works to ensure early and accurate diagnosis of CdLS; promote research into the causes and manifestations of the syndrome; and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. Services to consumers include referrals, publications, and reference information. Publications include Facing the Challenge: A Parents' Guide to CdLS, Facts About Cornelia de Lange Syndrome, CdLS Foundation Album, and a bimonthly newsletter, Reaching Out. Some materials are available in Spanish. The foundation sponsors a conference every other year.

Keywords: De Langes syndrome, Developmental disabilities, Parent groups

Annotation: The Council on Quality and Leadership (CQL) offers consultation, accreditation, training and certification services to organizations and systems that share the vision of dignity, opportunity and community for all people, focusing on improving the quality of life for people with disabilities, people with mental illness, and older adults. It is an international not-for-profit organization.

Keywords: Accreditation, Advocacy, Alternative medicine, Children, Developmental disabilities, Disabilities, Hospitalization, Quality Enhancement Certificate Program, Special health care needs

Annotation: Courage Center is a nonprofit organization providing rehabilitation and independent living services for children and adults with physical disabilities and speech, hearing, and vision impairments. Programs are offered for persons from Minnesota, Wisconsin, North Dakota, South Dakota, and Iowa, while other programs have a national referral base, including ham radio and a transitional living program, Courage Residence. Services are offered in the following broad areas: Medical Rehabilitation and Education, including clinic locations in Golden Valley, Stillwater, Burnsville and Forest Lake, MN; Leisure and Recreation including camping at two accessible camps in Minnesota, and a wide variety of adapted sports and recreation programs; Work and Learning; and, Mental Health and Family Support. Courage Center hosts a list serve and sponsors conferences, training seminars, and workshops. A Class Catalog is also available with alternative formats available upon request.

Keywords: Disabilities, Habilitation, Transition to independent living

Annotation: The DC Health Resources Partnership (DCHRP) seeks to expand the community health care capacity for individuals with intellectual and other developmental disabilities in Washington, DC. Funded by the D.C. Mental Retardatrion and Developmental Disabilities Administration, the partnership is a collaboration between a number of community partners, including Georgetown University's Department of Family Medicine, DC Area Health Education Center, Inc., George Washington University Medical Center, D.C. Primary Care Association, Project Action, DC State Policy Council on Family Supports, the Arc of DC, the Quality Trust for Individuals with Disabilities, and the DC Coalition of Service Providers. The partnership, which is administered through GU's Center for Child and Human Development, convenes expert panels (these groups meet four times annually), provides an online database of Washington-area providers, and posts information and publications for consumers and professionals on its Web site.

Keywords: Collaboration, Community programs, Developmental disabilities, Health care systems, Local government, Online databases, Regional programs, Special health care services

Annotation: The Directors of Health Promotion and Education (DHPE) builds on principles and practices of health promotion and education to strengthen public health capacity in policy and systems change to improve the health of all and achieve health equity. Resources include news, a calendar of events, community market analyses, online groups, and links to information on careers, health equity, health policy and advocacy, health policy and environmental change, health-related organizations, school employee wellness, school health, state worksite wellness programs, and training and professional development. DHPE is an affiliate of the Association of State and Territorial Health Officials.

Keywords: AIDS, Chronic illnesses and disabilities, Health education, Health promotion, HIV, Injury prevention, Nutrition, Professional societies, Public health programs, Public health services

Annotation: The Disability and Health Data System (DHDS) is a state-level disability surveillance tool designed to assist partners, researchers, advocates, and the general public in the assessment of the health and wellness of people with disabilities. The DHDS features three types of data: disability, psychological distress, and disability-associated health care expenditures. The data are presented in a variety of formats including interactive maps and data tables. The display options provide users with the ability to identify location-specific data for a single time period, along with multiple time period trends. Users can view the data by states, territories, divisions, and regions. The tool was developed by the Centers for Disease Control and Prevention in the Division of Human Development and Disability at the National Center on Birth Defects and Developmental Disabilities.

Keywords: Assessment, Data sources, Disabilities, Health care costs, Population surveillance, State initiatives, Stress

Annotation: Disability Resources, inc. is a nonprofit 501(c)(3) organization established to promote and improve awareness, availability, and accessibility of information that can help people with disabilities live, learn, love, work and play independently. The organization disseminates information about books, pamphlets, magazines, newsletters, videos, databases, government agencies, nonprofit organizations, telephone hotlines, and online services that provide free, inexpensive, or hard-to-find information to help people with disabilities live independently. Targeted audiences for services and publications include libraries, disability organizations, independent living centers, rehabilitation facilities, educational institutions, and health and social service providers.

Keywords: Chronic illnesses and disabilities, Independent living

Annotation: Disability Rights Education and Defense Fund is a nonprofit organization run primarily by persons with disabilities to achieve the goals of the disability rights movement. It monitors legislative and educational efforts and conducts training and research programs. The organization trains persons with disabilities and their families in the application of their rights under laws such as the Individuals with Disabilities Education Act (IDEA), the Americans with Disabilities Act (ADA), and Section 504 of the Rehabilitation Act of 1973. It offers information on the civil rights of persons with disabilities to attorneys, federal agencies, and legislators and their staffs, and provides referrals and publications for consumers. The Disability Rights Education and Defense Fund News the organization's free quarterly newsletter, reports on legislative and judicial activities affecting disability rights. Some materials are available in Spanish.

Keywords: Civil rights, Disabilities, IDEA, Individuals with Disabilities Education Act, Research, Training

Annotation: Disability Rights Wisconsin (DRW) is a private non profit organization which was founded in 1977. Designated by the Governor to ensure the rights of all state citizens with disabilities through individual advocacy and system change, DRW is part of a national system of federally mandated independent disability agencies. DRW helps people across Wisconsin gain access to services and opportunity through its advocacy and legal expertise. DRW regularly challenge systems and society to create positive change and improve the lives of people with disabilities. The agency also works on disability issues with state and local governments.

Keywords: Access to health care, Advocacy, Disabilities, Legal aid, Patient advocacy, State organizations, Wisconsin

Annotation: The Disability Statistics Center is a program funded by the National Institute on Disability and Rehabilitation Research to train individuals and develop statistical information on disability in the United States. It provides statistical information on a wide variety of topics concerning disability in the United States, and responds to questions using a library of books, reports, research papers, and technical information on surveys and databases. The center produces a catalog and a journal, provides publications and reference information for consumers, and sponsors conferences.

Keywords: Chronic illnesses and disabilities, Disabilities, Statistics

Annotation: Disabled and Alone/Life Services for the Handicapped is a national nonprofit organization that works to ensure the well-being of people with disabilities after their parents die. Disabled and Alone helps parents of a handicapped child plan for when they will no longer be around; provides an alternative service program if other financial arrangements can not be made; advises parents, relatives, attorneys, and financial planners about planning for a handicapped individual; and provides advocacy and oversight for handicapped individuals whose families have left funds for their care. Local nonprofit direct service organizations are enlisted as partners in this endeavor. Services offered to consumers include referrals, publications, and reference information. The organization publishes a newsletter and sponsors conferences, workshops, and training seminars.

Keywords: Children with special health care needs, Counseling, Disabilities, Estate planning, Financial planning, Financial support, Health care financing, Information services

Keywords: Chronic illnesses and disabilities, Employment, Equal opportunities, Health services, Parenting, Poverty, Pregnancy, Sexuality, Special health care needs, Violence, Women

Annotation: The Early Intervention Program (EIP) provides educational and other services to Louisiana children 0–3 years old with developmental disabilities, including direct services, information, support, and statewide referrals. The program also provides in-service training and technical assistance on developmental disabilities and early education, publishes a newsletter, and maintains a library of information on Down syndrome, early intervention, and developmental disabilities. EIP also provides an Inclusive Day School; a learning center for typical and special needs children (ages 6 weeks to 6 years).

Keywords: Developmental disabilities, Down syndrome, Early intervention, Educational programs, Information services, Louisiana, Technical assistance