Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

FRAXA Research Foundation (FRAXA)

Annotation: FRAXA is a nonprofit private organization which funds medical research on fragile X syndrome. FRAXA offers postdoctoral fellowships of up to $40,000 per year and investigator-initiated awards (no funding limit). FRAXA also provides information for families and professionals, including publications (a newsletter), monographs, and a Web site and discussion listserve. Local parent chapters provide additional support. Grant and fellowship applications are accepted May 1 and December 1 of each year (application materials and a listing of funded projects are available at www.fraxa.org

Keywords: Chromosome abnormalities, Fragile X syndrome, Listservs, Mental retardation, X-linked mental retardation

National Fragile X Foundation (NFXF)

Annotation: Established in 1984, the National Fragile X Foundation (NFXF) is a nonprofit organization that informs professionals, parents, and the public about the diagnosis and treatment of Fragile X syndrome. The foundation supports related research and clinical applications, organizes support groups for parents nationwide, provides referrals, holds biannual international conferences for professionals and parents, sponsors training seminars and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Chromosome abnormalities, Fragile X syndrome, Genetic disorders, Genetics, Biochemical genetics, Medical research, Mental retardation, X-linked mental retardation