Search Results: MCH Organizations

Annotation: The mission of the American Association of the Deaf-Blind (AADB) is to assure that a comprehensive, coordinated system of services is accessible to all deaf-blind persons enabling them to achieve their maximum potential through increased independence, productivity and integration into the community. Services to consumers include referrals, publications, and reference information. Some materials are available in large print, Braille, and on disk (MS Word).. AADB prints a quarterly magazine, The Deaf-Blind American. The organization also sponsors conferences.

Keywords: Advocacy, Civil rights, Deafness, Disabilities, Hearing disorders, Information services, Visually impaired, Youth services

Annotation: The American Foundation for the Blind (AFB) advocates for blind and visually impaired people by developing and implementing programs and services to help them achieve independence with dignity in all sectors of society. Services to consumers include referrals, publications, and reference information. Publications include the AFB News, and the peer reviewed monthly Journal of Visual Impairment and Blindness. Catalogs of audiovisual materials and books are available. Materials are available in Braille or audio forms. AFB conducts policy research and provides statistical and other nonmedical information about blindness and low vision. AFB also sponsors conferences and training seminars.

Keywords: Blindness, Visually impaired

Annotation: The Association for Macular Diseases provides information, referrals, emotional support and counseling, and educational resources for people and their families who are adjusting to the effects of macular disease. The association publishes a quarterly newsletter and maintains a telephone hotline for members. The association also sponsors conferences.

Keywords: Blindness, Macular degeneration, Visually impaired

Keywords: Blindness, Macular degeneration, Visually impaired

Annotation: The National Association for Parents of the Visually Impaired (NAPVI) includes parents, parent organizations, agencies, and others who support parents of visually impaired children. The organization provides referrals and publications, including the newsletter Awareness i (published quarterly). A publications catalog is available. The organization also sponsors conferences, training seminars, and workshops.

Keywords: Blindness, Support groups, Vision disorders, Visually impaired

Annotation: The National Association for Visually Handicapped (NAVH) provides information, referrals, counseling, and guidance for people with partial sight, their families, and concerned professionals and paraprofessionals. Memberships to the association are available for a fee; however, no one is denied services due to inability to pay. The association maintains a large-print lending library with over 9,000 titles and sponsors training seminars. Publications include a quarterly update, catalogs and informational booklets and brochures (most in large print). Some materials are provided in Spanish, Russian, and Chinese.

Keywords: Blindness, Counseling, Information services, Visually impaired

Annotation: The National Library Service for the Blind and Physically Handicapped (NLS/BPH) works through local and regional libraries to distribute Braille and recorded materials for people with visual or physical impairments. The service provides information on blindness and physical disabilities for professionals and consumers. Some materials are available in Spanish and other languages. A list of participating libraries is available. The service also publishes a newsletter.

Keywords: Blindness, Braille, Libraries, Physical disabilities, Visually impaired

Annotation: Retinitis Pigmentosa International offers referrals, peer support, and education. The organization has twenty chapters nationwide and operates a school for blind adults and sponsors conferences. Publications include a quarterly newsletter, brochures, research news items and videotapes. Through TheatreVision (description for the blind) major movies are becoming available to the blind community. RPI is actively involved nationally with organizations representing the blind, and offers a national radio program. Some materials are available in Spanish.

Keywords: Bassen-Kornzweig Syndrome, Best disease, Blindness, Choroideremia, Gyrate atrophy, Laurence Moon Biedl Syndrome, Leber congenital amaurosis, Refsum disease, Retinitis pigmentosa, Stargardt disease, Usher Syndrome, Vision disorders, Visually impaired

Annotation: VISION Community Services, previously known as the VISION Foundation, is a private, nonprofit consumer-based organization that provides self-help programs and referral services for people who are visually impaired or newly blind or who have progressively degenerative eye diseases. The organization is a division of the Massachusetts Association for the Blind and maintains an information center, a digital recording studio and braille transcript program, an elderly outreach program, self-help support groups, and a buddy telephone system (in Massachusetts only). Publications include a newsletter and the Vision Resource List . Some materials are available in Spanish.

Keywords: Vision disorders, Blindness, Eye diseases, Information services, Support groups, Visually impaired