Search Results: MCH Organizations

Annotation: The American Academy of Ophthalmology is a national association of ophthalmologists, Eye M.D.s who provide total eye care, including medical, surgical, and optical care. The organization is dedicated to helping the public maintain healthy eyes and good vision. It develops and disseminates a wide range of print and audiovisual instructional materials to assist ophthalmologists and other ophthalmic providers in the diagnosis and treatment of eye disease. The Academy also offers practice management programs, patient information materials, and a variety of publications including Ophthalmology, a monthly scientific journal, and EyeNet, a monthly clinical publication. A catalog is available. Some materials are available in other languages. The academy foundation also sponsors an annual meeting and consumer web site at www.eyesmart.org

Keywords: Eye care, Ophthalmologists, Professional societies, Vision disorders

Annotation: The American Council of the Blind (ACB) is a national membership organization established to promote the independence, dignity, and well-being of blind and visually impaired people. Members are blind, visually impaired, or fully sighted people from all walks of life. ACB helps to improve the lives of blind Americans by working to enhance civil rights, employment, rehabilitation services, safe and expanded transportation, travel and recreation, accessibility, and Social Security benefits. Frequently ACB works in coalition with other disability groups in this regard. ACB hosts an annual convention, bringing together blind and visually impaired people for programs, product exhibitions, and social events. Services to consumers include referrals, publications, and an open list service. ACB publishes a magazine, "The Braille Forum," which is available in braille, large print, cassette, computer disk, online and e-mail. The magazine is free of charge to individuals living in the United States; schools, organizations, libraries, companies, and those living overseas pay $25 per format per year.

Keywords: Blindness, Listservs, Vision disorders

Annotation: The Benign Essential Blepharospasm Research Foundation (BEBRF) is an international clearinghouse for information on spasms of the facial musculature (blepharospasm, Meige's syndrome, and hemifacial spasms). The foundation works to eradicate blepharospasm and to support people with the disorder. Activities include sponsorship of continuing education and an annual international conference. The foundation provides referrals, publications, and reference information to consumers. Publications include Benign Essential Blepharospasm, Meige's and Other Related Disorders , a bimonthly newsletter, and a catalog of audiovisual materials. Some materials are available in Spanish. The Foundation also sponsors conferences and workshops.

Keywords: Benign essential blepharospasm, Facial dystonia, Meige syndrome, Neuromuscular diseases, Support groups, Information services,, Vision disorders

Annotation: Blind Children's Fund promotes the development of materials and methods regarding how to care for and work with and educate infants and young children. The fund develop articles, handouts and video materials for use by both parents and professionals.

Keywords: Blindness, Children with special health care needs, Vision disorders

Annotation: The Blind Children's Center publishes booklets for parents of young children who are blind or visually impaired. The booklets are available in Spanish or English and cover a variety of topics. The center maintains a toll-free telephone service and a correspondence program to provide information, resources, referrals, and support. The Center also publishes a newsletter and a catalog.

Keywords: Blindness, Children, Vision disorders

Annotation: The Council of Citizens with Low Vision International(CCLVI), an affiliate of the American Council of the Blind, is an advocacy membership organization. It offers scholarships to undergraduate and graduate college students, has volunteers who assist those who experience vision loss, and publishes a magazine, Vision Access,which is available free on the council's Web site.

Keywords: Blindness, Vision disorders

Annotation: Lighthouse International works with the families of children who are visually impaired and blind, professionals and the general public. The Lighthouse main purpose is to establish connections among the many people who can enhance the early development of children who are visually impaired and blind. The staff design and offer individualized training programs in parent education, eye/vision care, special education, and resource development for people working with children and adolescents who are blind and visually impaired. The Lighthouse provides referrals and reference information and develops print and audio/visual products about vision and child development for families, professionals and the general public. A catalog and newsletter are published by the organizationr and some materials are available in Spanish. The Lighthouse also sponsors conferences, workshops, and training seminars.

Keywords: Blindness, Vision disorders

Annotation: The National Association for Parents of the Visually Impaired (NAPVI) includes parents, parent organizations, agencies, and others who support parents of visually impaired children. The organization provides referrals and publications, including the newsletter Awareness i (published quarterly). A publications catalog is available. The organization also sponsors conferences, training seminars, and workshops.

Keywords: Blindness, Support groups, Vision disorders, Visually impaired

Annotation: The National Braille Press (NBP) is a nonprofit Braille printing and publishing house offering low-cost Braille publications. Offers free catalogs in print or Braille.

Keywords: Blindness, Vision disorders

Annotation: The National Eye Institute (NEI) supports and conducts research on the prevention, diagnosis, rehabilitation, and treatment of eye disorders. NEI responds to consumer inquiries and produces publications include reports on research supported by the Institute, public education materials, and patient brochures. Some materials are available in Spanish.

Keywords: Blindness, Vision disorders

Annotation: The organization's services include referrals, networking, advocacy, publications, and reference information. Publications include a magazine, a newsletter, and a catalog. Some materials are available in Spanish. The organization also hosts a list serve and sponsors conferences, training seminars, and workshops.

Keywords: Blindness, Vision disorders

Annotation: The New Mexico School for the Blind and Visually Impaired was founded in 1903 as a land grant school governed by a Board of Regents. It is a specialized school which provides residential, academic, support, and outreach services to the blind and visually impaired students of New Mexico. NMSBVI is an entirely special education school.

Keywords: Blindness, Child development services, Children with special health care needs, Education, Vision disorders

Annotation: Prevent Blindness America is a volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care, Prevent Blindness America touches the lives of millions of people each year through public and professional education, certified vision screening training, community and patient service programs and research. These services are made possible through the generous support of the American public. Together with a network of affiliates, divisions and chapters, it's committed to eliminating preventable blindness in America. Catalogs of publications, audiovisual materials, and posters are available to the public and health care professionals. Limited materials are available in Spanish.

Keywords: Blindness, Eye care, Health education, Medical research, Preschool children, Vision disorders, Vision screening

Annotation: Recording for the Blind and Dyslexic is a national nonprofit organization that provides recorded and computerized textbooks at all academic levels to people who cannot effectively read standard print because of a visual impairment, learning disability or other physical disability. The organization's 78,000 volume library contains a broad selection of titles, from literature and history to math and the sciences. Recording for the Blind and Dyslexic also offers individuals and institutional memberships, scholarship programs and a custom recording service. Services to consumers include publications and reference information. A catalog is also available.

Keywords: Blindness, Dyslexia, Learning disabilities, Vision disorders

Annotation: Retinitis Pigmentosa International offers referrals, peer support, and education. The organization has twenty chapters nationwide and operates a school for blind adults and sponsors conferences. Publications include a quarterly newsletter, brochures, research news items and videotapes. Through TheatreVision (description for the blind) major movies are becoming available to the blind community. RPI is actively involved nationally with organizations representing the blind, and offers a national radio program. Some materials are available in Spanish.

Keywords: Bassen-Kornzweig Syndrome, Best disease, Blindness, Choroideremia, Gyrate atrophy, Laurence Moon Biedl Syndrome, Leber congenital amaurosis, Refsum disease, Retinitis pigmentosa, Stargardt disease, Usher Syndrome, Vision disorders, Visually impaired

Annotation: The Texas Association of Retinitis Pigmentosa (TARP) provides information sharing, advocacy, referral, and emotional support services for people with retinitis pigmentosa, Usher syndrome, and other progressive visual and hearing conditions. The association provides referrals and reference information to consumers. Publications include four books on RP and Usher Syndrome II by author Dorothy Stiefel. A new publication (disk/book), Dealing with the Threat of Loss, is also available.

Keywords: Advocacy, Blindness, Deafness, Information services, Retinitis pigmentosa, Support groups, Texas, Usher syndrome, Vision disorder

Annotation: Vision World Wide, Inc. is a non-profit organization offering referrals, publications, and reference information to consumers with vision loss, families, and health care professionals who serve them. The organization offers a journal, Vision Enhancement, in a variety of formats, that contains a resource directory, discussions of emotional and physical issues, current medical research, assistive devices, tips on coping with vision loss, new books, videos, magazines, noteworthy events, and more.

Keywords: Blindness, Vision disorders