Search Results: MCH Organizations

Annotation: The Acoustic Neuroma Association (ANA) is a national, patient-founded support and information organization for people who have experienced acoustic neuroma or other benign tumor affecting the cranial nerves. The association promotes and supports education and research. Publications for consumers include a booklet, Acoustic Neuroma; a brochure, Acoustic Neuroma? Inside—Some Answers; and a quarterly newsletter, Notes. ANA also sponsors a biennial national conference.

Keywords: Acoustic neuroma, Nervous system diseases, Support groups, Tumors

Annotation: The American Brain Tumor Association (ABTA) provides publications which address brain tumors, their treatment, and coping with the disease; nationwide resource listings of brain tumor support groups and physicians offering investigative treatments;Connections pen-pal program; a national brain tumor symposium for patients and their families; and free social service consultations. ABTA also sponsors regional Town Hall meetings across the country which focus on state-of-the-art treatment options. ABTA funds brain tumor research at institutions throughout the United States and Canada. A tri-annual newsletter, the Message Line, describes those research advances as well as other ABTA activities. ABTA also publishes booklets.

Keywords: Brain diseases, Brain tumors, Cancer, Information services, Medical research

Annotation: Services for families of children with brain and spinal cord tumors include dissemination of informational materials, an annual conference for parents, distribution of a quarterly newsletter, activities and support groups for children and parents, and financial assistance for families in the state of Georgia.

Keywords: Brain tumors, Cancer

Annotation: The Brain Tumor Society provides services to consumers that include reference information and publications. The organization publishes a newsletter and resource guide. The organization also sponsors conferences and workshops.

Keywords: Brain tumors, Cancer

Annotation: The Children's Brain Tumor Foundation (CBTF), a nonprofit organization, is dedicated to funding scientific research, and providing support and educational services to patients and families. The Foundation provides the following free support services: an extensive telephone information and referral service, a national parent-to-parent network, and educational teleconferences and telephone support groups for families and survivors. Publications include a newsletter and two free books, "A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors", which is available in Spanish and "Parker's Brain Storm".

Keywords: Brain tumors, Cancer

Annotation: The National Brain Tumor Foundation (NBTF) was established by a group of brain tumor patients and their families. The foundation supports research, provides information and support services, and sponsors a biennial conference. NBTF publications include Brain Tumors: A Guide, a quarterly newsletter called Search, a publication for parents Understanding your Child's Brain Tumor, Understanding Your Brain Tumor: Glioblastoma Multiforme, several fact sheets, and a directory of support groups in North America. NBTF sponsors conferences, training seminars, workshops, and teleconferences. Some materials are available in Spanish.

Keywords: Brain diseases, Cancer, Brain tumors, Information services, Medical research, Support groups