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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

5p– Society (Five P Minus Society)

Annotation: The 5p– Society is a parent support organization for families of children with 5p– Syndrome (also known as Cri-du-Chat and Cat Cry Syndrome). The society's mission is to encourage and facilitate communication among families having a child with 5p–Syndrome and to spread the awareness and education of the syndrome to these families and their service providers. The society works with leading genetics and medical researchers to further research efforts, and holds an annual national meeting. Publications are available to consumers. Publications include the 5p– Newsletter.

Keywords: Cri du chat syndrome, Family support services, Information services, Parent groups, Support groups, Medical research

Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND)

Annotation: Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND) offers support and encouragement to parents who have lost an infant. Bereaved parents have one-to-one contact with a trained counselor who has also experienced a loss due to miscarriage, stillbirth, or neonatal death. Several local chapters exist without formal national affiliation. St. Louis AMEND was established in 1974. Los Angeles AMEND was established in 1977 and can be reached at P.O. Box 30, Harbor City, CA 90710-0030; (818) 887-7999. Services to consumers include publications and reference information. Some materials are available in Spanish.

Keywords: Grief, Neonatal death, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion, Support groups, Parent support services
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.