Search Results: MCH Organizations

Annotation: The American Academy of Pediatrics, Developmental and Behavioral Pediatrics (AAP SODBP), founded in 1960, works to optimize the relationship between primary care and subspecialists, provide education and disseminate strategies to support quality clinical practice, and advocate on behalf of children and providers. The website provides information about educational activities and a toolbox of resources and tools to help physicians advocate for children at the federal, state, or local practice level; screen and assess developmental and behavioral concerns; and support developmental and behavioral services and policies related to developmental and behavioral pediatrics. Additional contents include the Learning Disabilities Navigator, a comprehensive resource guide for learning difficulties and disabilities.

Keywords: Advocacy, Behavior development, Child development, Continuing education, Developmental screening, Emotional development, Pediatric care, Resources for professionals

Annotation: The American Optometric Association (AOA), founded in 1898, works to improve the quality, availability, and accessibility of eye care, vision care, and related health care. The association promotes standards of patient care and represents the optometric profession to government and other health care-related organizations. Publications include three periodicals: Journal of the American Optometric Association, American Optometric Association News, and Optometric Economics. The organization also sponsors conferences and training seminars. The association maintians offices in St. Louis, MO and metropolitan Washington, DC. Some materials are available in Spanish.

Keywords: Optometry, Eye care, Patient care, Standards, Vision screening

Annotation: The Association of Public Health Laboratories is a nonprofit, private organization representing public health laboratories throughout the United States. The organization's mission is to promote the role of public health laboratories in support of national and global health objectives, and to promote policies and programs which assure continuous improvement in the quality of laboratory practice. The association was previously known as the Association of State and Territorial Public Health Laboratory Directors (ASTPHLD).

Keywords: Neonatal screening, Health promotion, Laboratory techniques, Public health, Training

Annotation: Baby's First Test: the Newborn Screening Clearinghouse (NBSC) is funded to increase awareness of newborn screening, and to improve the understanding and informed decision-making capacity of expectant and new parents, health professionals, industry representatives, and the public. Information available in the NBSC includes: condition-specific information, contact information for the condition-specific advocacy organizations, information about what conditions each state screens for, data supplied by the public health laboratories, and general information about the process of newborn screening. It is funded through a cooperative agreement with the Maternal and Child Health Bureau.

Keywords: Clearinghouses, Neonatal screening

Annotation: The Better Hearing Institute (BHI) is a nonprofit educational organization that implements national public information programs on hearing loss and available medical, surgical, hearing aid, and rehabilitation assistance for millions with uncorrected hearing problems. Its award winning series of television, radio, and print media public service messages include many celebrities who overcame hearing loss. BHI maintains a toll-free "Hearing HelpLine" service that provides information on hearing loss and hearing help to callers in the U.S. and Canada. Publications include a catalog and a newsletter. Some materials are available in Spanish.

Keywords: Hearing disorders, Screening

Annotation: The Brazelton Institute is dedicated to promoting the healthy development of infants and families, through research and education programs for people who care for children and their families in the first years of life. The Institute is based in the Department of Pediatrics at the Children's Hospital in Boston, which is an affiliate of the Harvard Medical School. The Institute is the home of the Neonatal Behavioral Assessment Scale and provides training for clinicians and researchers on the Neonatal Behavioral Assessment Scale (NBAS) (Brazelton and Nugent, 1995) and of the Newborn Behavioral Observations (NBO) system. (Nugent, Keefer, O'Brien, Johnson, Blanchard, 2005)

Keywords: Infant development, Neonatal screening

Annotation: The Congenital Heart Public Health Consortium (CHPHC) is a group of organizations uniting resources and efforts in public health activities to prevent the occurrence of congenital heart disease (CHD) and to enhance and prolong the lives of those with CHD through surveillance, population-based research, education, health promotion, advocacy, and policy development. The website provides information about the consortium's history, founding organizations, logic model, structure, committees, membership, and annual meeting. Additional contents include news, a calendar of events, a fact sheet, and information on CHD prevention, screening, and research. Information is available for clients, families, and health professionals.

Keywords: Advocacy, Congenital heart defects, Consortia, Health promotion, Policy development, Population surveillance, Prevention, Public health, Research, Screening

Annotation: Educational Opportunities for Children & Families (EOCF) has been serving the southwest community of Washington state since 1967, when it was formed as a Community Action Agency to fight the War on Poverty. EOCF provides services to more than 2,000 low-income children and families in four southwest Washington counties through programs as Head Start, Early Head Start and Early Childhood Education and Assistance Program (ECEAP). EOCF offers a wide range of critical services to low-income children and families, including early childhood education; comprehensive health, mental health, nutrition, and disabilities; physical and developmental assessments; and support to families through case management, training and parent education. Translators are available for Russian, Spanish, and Vietnamese.

Keywords: Community health services, Child health services, Early childhood development, Family support services, Head Start, Low income groups, Screening, Washington

Keywords: Genetic screening, Genetic services, Hawaii, Neonatal screening

Annotation: The Heartland Regional Genetics and Newborn Screening Collaborative -- formerly the Great Plains Regional Network -- encompasses the eight states of Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota, all working together to promote access to quality clinical genetic services, genetic testing, and public health programs for the citizens of the states within the Heartland collaborative. The collaborative works to improve access to expanded newborn screening, professional and public genetics literacy, equitable access to genetics evaluation, counseling and testing services, and cooperation between neighboring states within the region. The collaborative aims to facilitate and promote collaboration, assessment, planning, program development and evaluation, education, research and public policy activities related to these issues. The web site is designed to facilitate communication within the collaborative and to inform the collaborative of regional genetics resources, projects and events. The collaborative is one of seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) designated by the Genetics Services Branch, Bureau of Maternal and Child Health, Health Resources and Services Administration in 2004.

Keywords: Genetics, Genetic services, Newborn infants, Neonatal screening, Regional genetics network, Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, Public health, Federal programs

Annotation: He B United is a national coalition to address the public health challenge of hepatitis B. The coalition supports and leverages the success of local community coalitions across the United States to increase hepatitis B awareness, screening, vaccination, and linkage to care for all Americans and, in particular, for high-risk populations who are disproportionately impacted. The website contains facts on hepatitis B and information on local campaigns, policy initiatives, news, events, and resources such as webinars, hangouts, trainings, campaign materials, and a speakers bureau.

Keywords: Access to care, Asian Americans, Coalitions, Hepatitis B, High risk groups, Public awareness campaigns, Screening, Training, Vaccines

Annotation: Kids Smiles non-profit dental centers provide oral health services and outreach programs to children from birth to age 18. The centers address the oral health of children at risk for dental caries with an integrated program of oral health care, in-house education, and outreach education and screening. Headquartered in Philadelphia, centers currently operate in Southwest Philadelphia, West Philadelphia, and Washington, DC.

Keywords: Dental care, Health education, High risk children, Oral health, Screening, Service integration

Annotation: The Maternal and Child Health Bureau (MCHB) is charged with primary responsibility for promoting and improving the health of our Nation's mothers and children. As part of the Health Resources and Services Administration, U.S. Department of Health and Human Services, MCHB administers Title V of the Social Security Act. MCHB's mission is to provide national leadership and to work in partnership with States, communities, public-private partners, and families to strengthen the maternal and child infrastructure, assure the availability and use of medical homes, and build knowledge and human resources in order to assure continued improvement in the health, safety, and well-being of the maternal and child health population. MCHB administers major programs including the Maternal and Child Health Services Block Grant, the Healthy Start Initiative, the Emergency Medical Services for Children Program, Traumatic Brain Injury, and the Universal Newborn Hearing Screening Program. Services to consumers include referrals, publications, and reference information. MCHB also provides a national hotline for prenatal care information.

Keywords: Adolescent health, Block grants, Brain injuries, Child health, Children with special health care needs, Emergency medical services for children, Federal agencies, Healthy Start, Hearing screening, Hotlines, Infant health, MCH programs, MCH services, Maternal health, Perinatal health, Title V programs

Annotation: The goal of the National Center for Hearing Assessment and Management (NCHAM) is to promote the earliest possible detection of hearing loss and the best possible techniques for assisting people with hearing loss. The center aims to establish universal newborn hearing screening as an accepted, national standard of care, in order to dramatically lower the age at which children with congenital hearing loss are identified and served. The center conducts research, develops training materials and publishes a newsletter, provides training and technical assistance, and disseminates information about early identification and management of hearing loss. The center was established in 1995 and is supported by the U.S. Maternal and Child Health Bureau to serve as a resource center to support screening programs nationwide through a comprehensive National Early Hearing Detection and Intervention Technical Assistance System.

Keywords: Infants, Hearing screening, National MCH resource center, Neonatal screening, Resource centers

Annotation: The National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention (NCHSTP) is responsible for public health surveillance, prevention research, and programs to prevent and control HIV, AIDS, other sexually transmitted diseases, and tuberculosis. NCHSTP works in collaboration with governmental and nongovernmental partners at the community, state, national, and international levels conducting research, surveillance, technical assistance, and evaluation. It includes the Division of HIV/AIDS Prevention, the Division of Viral Hepatitis, the Division of STD Prevention, the Division of TB Elimination, and the Division of Adolescent and School Health.

Keywords: AIDS, Data, HIV, HIV screening, Preventive health services, Sexually transmitted diseases, Tuberculosis

Annotation: The Early Hearing Detection and Intervention (EHDI) program at the National Center on Birth Defects and Hearlng Disorders collaborates with federal, national, and state agencies and organizations in assisting states and territories to develop and implement EHDI programs and assists states in building EHDI data and surveillance systems to improve their capacity to ensure that all infants are screened for hearing loss and receive appropriate follow-up services. It supports research efforts to identify causes of hearing loss, determines developmental outcomes and family issues, collectsInformation on referral rates from EHDI programs, assesses the effectiveness and cost of EHDI programs, uses information gained through the EHDI surveillance systems to find new and preventable causes of hearing loss, and maintains an information clearinghouse on issues related to EHDI that will be available through the EHDI web site and bi-monthly teleconferences.

Keywords: Hearing screening, Hearing tests, Neonatal screening, Newborn infants

Annotation: The National Cervical Cancer Coalition (NCCC) is a coalition of individuals and organizations interested in grass roots efforts to educate the public about cervical cancer prevention and outreach, new screening and treatment options, cervical cancer screening and follow-up programs, HPV, and the Pap Smear (both its limitations as well as its success). The NCCC also provides outreach support to women and family members going through the battle against cancer.

Keywords: Cervical cancer, Family support services, Outreach, Preventive health services, Screening

Annotation: The National Coordinating Center for the Genetics and Newborn Screening Regional Service Collaboratives (NCC) -- which was established along with seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) in 2004 -- is part of the federal initiative to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC provides infrastructure, coordination, technical assistance, and resources to the various RCs. The coordinating center also facilitates local projects and uses communities identified through the RCs to pilot test materials for policymakers, health professionals and families. Technical assistance is provided to the RCs in the areas of telemedicine, legal issues, and the assessment of state and federal legislation that may affect the delivery of genetic and newborn screening services. NCC's webcasts on topics such as financing of newborn screening and genetic services and the use of telegenetics to increase access to services are archived at www.mchcom.com. Other online resources include a page for parents and families; resources for professionals; links to glossaries and reference services; newsletters, reports, and other publications; and advocacy and support group information. The NCC is formed as a partnership with the Genetic Services Branch of the Maternal and Child Health Bureau (HRSA) through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee which includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.

Keywords: Genetics, Resource centers, Federal programs, Genetic services, Genetics education, National MCH resource center, Neonatal screening, Newborn infants, Public health, Regional genetics networks

Annotation: The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. The mission of the NNSGRC is to: 1) provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and 2) serve as a national resource center for information and education in the areas of newborn screening and genetics. The NNSGRC serves as a focal point for national newborn screening and genetics activities, and provides related resources to benefit health professionals, the public community, consumers, and government officials. The center also provides technical assistance to assist states in refining their newborn screening activities and enhancing their capacity to incorporate new developments in genetics, health promotion, and disease prevention. The NNSGRC coordinates and facilitates national discussions of pertinent topics in the areas of newborn screening and genetics, assists in developing and implementing related demonstration projects of national interest., and produces annual national information reports on state and territorial newborn screening activities. The Web site provides downloadable newborn screening and disease-specific brochures in various languages, a guide to regional genetics and newborn screening collaboratives as well as state-specific contact information; and the National Newborn Screening Information System, which services as a information collection and reporting system for capturing state and territorial newborn screening information. In September 2009 it was funded to create the National Newborn Screening Clearinghouse.

Keywords: Genetics, National MCH resource center, Neonatal screening, Online databases, Regional genetics networks, Resource centers

Annotation: The National Resource Center for Early Hearing Detection and Intervention (NRC EHDI) assists state agencies and other federal and non-federal partners in the development and operation of sustainable statewide EHDI systems. It provides technical assistance activities, including resource development, education and training, policy initiatives, and evidence-based data collection. The Web site lists technical assistance contacts by federal region, collaborating agencies, and information and resources for components of EHDI, such as newborn hearing screening, diagnostic audiology, early intervention, legislation, program evaluation, and financing. Educational and training videos and information about state programs are also available.

Keywords: Infants, Hearing screening, National MCH resource center, Neonatal screening, Resource centers