Search Results: MCH Organizations

Annotation: The Human Growth Foundation (HGF) disseminates information on short stature and its causes, supports medical research on growth disorders, and sponsors educational and parent support activities. Publications include Achondroplasia, Growth Hormone Deficiency, Intrauterine Growth Retardation, Patterns of Growth, Turner's Syndrome,and many more. HGF hosts a list serv and publishes a quarterly newsletter. Patient advocacy information, training, and assistance is also an evolving area of Foundation activity, given increasingly difficulty in obtaining medical insurance coverage for Idiopathic Short Stature with underlying etiologies. These activities take place principally through the HGF Internet support Lists (HGF-PEDS and HGF-ADULTS). Limited resources may be obtained in Spanish. The organization also sponsors Annual conferences.

Keywords: Achondroplasia, Fetal growth retardation, Growth disorders, Growth hormone, Hypopituitarism, Russell-Silver syndrome, Short stature, Turners syndrome

Annotation: The MAGIC(Major Aspects of Growth in Children)Foundation is a national nonprofit organization serving children and adults with critical and or chronic illnesses affecting their growth, including Precious Puberty, Congenital Adrenal Hyperplasia, Septo Optic Dysplasia, Adult Growth Hormone Deficiency, McCune Albright syndrome, Truner syndrome, Genital and Reproductive Anomalies, Hypophosphatasia, Panphypopituitarism, Congenital Hypothyroidism, Growth Hormone Deficiency, Russell-Silver Syndrome and many other Rare Disorders. Incorporated within MAGIC are families, children, and medical professionals in various fields of children's health. Services available through the foundation include support groups, referrals, a financial assistance fund, a birthday club for kids, kid's pen pal program, community outreach programs, family networking, quarterly newsletters, kids' newsletters, and a toll free parent help line (1-800-3 MAGIC 3). Services to consumers include referrals and publications. Educational brochures available include: Congenital Hypothyroidism, Intrauterine Growth Retardation, Hypophosphatasia, Underlying Conditions of Growth Abnormalities, Growth Hormone Deficiency ,The Most Frequently Asked Questions When Beginning Growth Hormone Therapy, Constitutional Growth Delay, Precocious Puberty, Turner's Syndrome, Congenital Adrenal Hyperplasia, Clinical Hypothyroidism, McCune Albright Syndrome, Psychosocial Issues of Growth Delayed Children, Dental Problems Associated with GHD, Me and My Growth Hormone - A Child's View, Septo Optic Dysplasia, Panhypopituitarism, Failure to Thrive, Russell-Silver Syndrome, Newborns with Non-typical Genital Appearance, When My Child May Have Fertility Problems, Adult Growth Hormone Deficiency, etc. The MAGIC Foundation also publishes a magazine and sponsors an annual convention in July.

Keywords: Chronic illnesses and disabilities, Child health, Congenital adrenal hyperplasia, Congenital hypothyroidism, Development, Down syndrome, Education, Financial support, Growth disorders, McCune Albright syndrome, Russell Silver syndrome, Short stature, Support groups, Support groups, Turners syndrome