Annotation: The National Birth Defects Prevention Network (NBDPN) is a network of individuals working at the national, state, and local level in birth defects surveillance, research, and prevention. It serves as a forum for exchanging ideas about the prevention of birth defects, developing uniform methods of birth defect surveillance and research, and providing technical support for state and local programs. It was incorporated as a 501c3 non-profit organization in 2000, and aims to improve the quality of birth defect surveillance data; promote scientific collaboration for the prevention of birth defects; provide technical assistance for the development of uniform methods of data collection; facilitate the communication and dissemination of information related to birth defects; collect, analyze and disseminate state and population-based birth defect surveillance data; and encourage the use of birth defect data for decisions regarding health services planning (secondary disabilities prevention and services). The network holds annual meetings, and publishes an annual report on birth defects surveillance and prevention, a newsletter, and other materials.
Keywords: Collaboration, Congenital abnormalities, Data, Data collection, Genetic disorders, Information dissemination, Population surveillance, Prevention programs, Research, Research methodology, Technical assistance