Search Results: MCH Organizations

Annotation: The Atlantic Coast Child Welfare Implementation Center is one of five regional training and technical assistance (TTA) centers funded by the Children's Bureau to partner with states and tribes to execute projects that will focus on the implementation of strategies that their child welfare systems have identified to improve the quality and effectiveness of child welfare services for children, youth, and families.

Keywords: Training, Child welfare, Region III, Region IV, Regional programs, Technical assistance

Annotation: From the First Tooth (FTFT) began as a pilot program of the Sadie and Harry Davis Foundation in 2008 and grew to a statewide effort in 2010 through the leadership of MaineHealth in partnership with EMHS and MaineGeneral. An Advisory Committee and National Advisors continue to guide the initiative. In 2015, the pediatric oral health initiative expanded to include a focus on pregnant and postnatal women. FTFT is now a six state collaborative located in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. Each state offers slightly different assistance to medical practices but all are working together with health professionals to improve children’s oral health in the region. Before the First Tooth provides information about prenatal dental care.

Keywords: Collaboration, Dental care, Geographic regions, New England, Pediatric care, Prenatal care, State initiatives, Training

Annotation: The Heartland Regional Genetics and Newborn Screening Collaborative -- formerly the Great Plains Regional Network -- encompasses the eight states of Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota, all working together to promote access to quality clinical genetic services, genetic testing, and public health programs for the citizens of the states within the Heartland collaborative. The collaborative works to improve access to expanded newborn screening, professional and public genetics literacy, equitable access to genetics evaluation, counseling and testing services, and cooperation between neighboring states within the region. The collaborative aims to facilitate and promote collaboration, assessment, planning, program development and evaluation, education, research and public policy activities related to these issues. The web site is designed to facilitate communication within the collaborative and to inform the collaborative of regional genetics resources, projects and events. The collaborative is one of seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) designated by the Genetics Services Branch, Bureau of Maternal and Child Health, Health Resources and Services Administration in 2004.

Keywords: Genetics, Genetic services, Newborn infants, Neonatal screening, Regional genetics network, Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, Public health, Federal programs

Annotation: The Inland Northwest SIDS Foundation offers public education on safe sleep practices for infants, bringing awareness to SIDS and other Sudden Unexpected Infant Death (SUID) and providing grief support to those who have experienced the loss of an infant. The Foundation provides educational materials on SIDS, safe sleep, and grief support; professional training for child care centers, classrooms; and hospitals; monthly safe sleep classes for parents, caregivers, and medical providers; and grief support meetings for those who have experienced a loss.

Keywords: Bereavement, Grief, Idaho, Prevention, Regional programs, SIDS

Annotation: The Mountain States Genetics Regional Collaborative (MSGRC) -- formerly the Mountain States Genetic Network -- is a consortium of providers and consumers of genetic services in Arizona, Colorado, Montana, New Mexico, Texas, Utah, Wyoming, and Nevada. Members include representatives of state health departments, university medical schools, genetic services laboratories, hospitals, private medical practices, and various consumer organizations. The group is a regional network that provides a forum for problem sharing and solving, provides referrals, promotes efficient use of resources, and facilitates improvement of the quality and quantity of genetic services offered in the Mountain States region. The network maintains an online events calendar and provides links to genetics centers and resources.

Keywords: Genetics, Arizona, Colorado, Consortia, Data collection, Genetic counseling, Genetic services, Information services, Montana, New Mexico, Problem solving, Regional genetics networks, Utah, Wyoming

Annotation: The National Coordinating Center for the Genetics and Newborn Screening Regional Service Collaboratives (NCC) -- which was established along with seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) in 2004 -- is part of the federal initiative to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC provides infrastructure, coordination, technical assistance, and resources to the various RCs. The coordinating center also facilitates local projects and uses communities identified through the RCs to pilot test materials for policymakers, health professionals and families. Technical assistance is provided to the RCs in the areas of telemedicine, legal issues, and the assessment of state and federal legislation that may affect the delivery of genetic and newborn screening services. NCC's webcasts on topics such as financing of newborn screening and genetic services and the use of telegenetics to increase access to services are archived at www.mchcom.com. Other online resources include a page for parents and families; resources for professionals; links to glossaries and reference services; newsletters, reports, and other publications; and advocacy and support group information. The NCC is formed as a partnership with the Genetic Services Branch of the Maternal and Child Health Bureau (HRSA) through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee which includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.

Keywords: Genetics, Resource centers, Federal programs, Genetic services, Genetics education, National MCH resource center, Neonatal screening, Newborn infants, Public health, Regional genetics networks

Annotation: The Greater Midwest Regional Medical Library serves Iowa, Illinois, Indiana, Kentucky, Michigan, Minnesota, North Dakota, Ohio, South Dakota, and Wisconsin. The NN/LM GMR provides training classes and demonstrations on information technology, health information on the world wide web, and the National Library of Medicine's databases. The staff exhibits at a number of state and national meetings and holds training sessions at professional meetings.

Keywords: Libraries, Goverment programs, Midwest region, Region III, Regional programs

Annotation: The National Network of Libraries of Medicine - Midcontinental Region (NN/LM-MR) serves Colorado, Kansas, Missouri, Nebraska, Utah, and Wyoming. NN/LM-MR strives to promote health information services and access to all health care providers and consumers. The organization offers referrals, publishes a newsletter, and sponsors conferences, training seminars, and workshops.

Keywords: Libraries, Government programs, Midcontential region, Region IV, Regional programs

Annotation: The National Network of Libraries of Medicine, Middle Atlantic Region, is the Regional Medical Library for Delaware, New Jersey, New York, and Pennsylvania. The NN/LM MAR provides training classes and demonstrations on information technology, health information on the world wide web, and the National Library of Medicine's databases. The staff exhibits at a number of state and national meetings and holds training sessions at professional meetings.

Keywords: Libraries, Government programs, Middle Atlantic region, Region I, Regional programs

Annotation: The National Network of Libraries of Medicine, Southeastern/Atlantic Region at the Health Sciences and Human Services Library, University of Maryland, Baltimore is the Regional Medical Library for Alabama, Florida, Georgia, Maryland, Mississippi, North Carolina, South Carolina, Tennessee, Virginia, West Virginia, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands. The NN/LM SE/A provides training classes and demonstrations on information technology, health information on the world wide web, and the National Library of Medicine's databases. The staff exhibits at a number of state and national meetings and holds training sessions at professional meetings. Consumers may call the office for information referrals. SEA Currents is the SE/A newsletter.

Keywords: Libraries, Government programs, Region II, Regional programs, Southeastern region, Atlantic region, Southern United States

Annotation: The Native American Professional Parent Resources' Albuquerque Area Dental Support Center provides training, technical assistance, and other support to dental clinics in the Albuquerque area of the Indian Health Service, which includes all of New Mexico, as well as southern Colorado and El Paso, Texas. Through continuing education opportunities, the development and distribution of culturally relevant materials, and other activities, the Dental Support Center works to improve the oral health status of American Indians/Alaska Natives.

Keywords: Alaska Natives, American Indians, Dental clinics, Oral health, Regional programs, Technical assistance, Training

Annotation: The New England Genetics Collaborative (NEGC) works to promote and improve the health and social well-being of those with inherited conditions through collaborations among public health professionals, private health professionals, educators, consumers and advocates in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut. The primary goal of the NEGC is to assure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information in the context of a medical home that provides accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care. NEGC provides online educational materials, a regional resource directory, and links to other genetics centers. The NEGC is a partnership between the Dartmouth Hitchcock Medical Center, the New Hampshire Institute for Health Policy and Practice, and the University of New Hampshire Institute on Disability. The collaborative is supported by a cooperative agreement with the US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Genetic Services Branch.

Keywords: Genetics, Consortia, Genetic services, Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, Connecticut., Federal programs, Public health , Newborn infants, Neonatal screening, Genetic counseling, Regional genetics networks

Annotation: New York State Genetic Services Program and Newborn Screening Program coordinates state grants to comprehensive and noncategorical clinical genetics units throughout the state. This assures that all residents of the state can access genetic diagnosis, testing, counseling and treatment regardless of their social, economic, or geographic circumstances. The state newborn screening program tests all newborns born in New York State for 40 congenital diseases and HIV. Program follow-up assures that all children identified by the program are properly referred to specialty care centers. These centers are approved by New York state to provide quality medical care to all children identified by the program. Educational materials are available in Spanish, French, Chinese, and other languages.

Keywords: Regional genetics networks, Genetic counseling, Genetic services, Genetics, Health education, Medical research, New York, Spanish language materials, Virgin islands

Annotation: The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC) was established in September 2004 as one of seven regional collaboratives in the country funded by the Genetic Services Branch in the Health Resources and Services Administration (HRSA)'s Maternal and Child Health Bureau. The charge of this group is to develop a regional approach to address the maldistribution of genetic resources in the New York-Mid-Atlantic region, which includes Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia and West Virginia. The Wadsworth Center, New York State Department of Health is the lead institution for this project.

Keywords: Regional genetics networks, Federal programs, Genetic services, Genetics, Newborn infants, Neonatal screening, Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia, West Virginia., Public health

Annotation: The Northeast and Caribbean Child Welfare Implementation Center is one of five regional training and technical assistance (TTA) centers funded by the Children's Bureau to partner with States and Tribes to execute projects that will focus on the implementation of strategies that their child welfare systems have identified to improve the quality and effectiveness of child welfare services for children, youth, and families. This center serves Regions I and II.

Keywords: Training, Child welfare, Region I, Region II, Regional programs, Technical assistance

Annotation: The Region 4 Midwest Genetics Collaborative is one of seven groups using a regional approach to improve access to services, quality care, and genetics expertise in a medical home environment that is culturally sensitive. The region 4 collaborative comprises public health agencies, geneticist and other subspecialists, primary care providers, newborn screening and genetic testing laboratories, and families of children with genetic conditions from seven states (Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio, and Wisconsin). The website provides news and resources including information about partners, forums, workgroups, education, and regional meetings. The project is administered by the Michigan Public Health Institute and supported by the Health Resources and Services Administration Maternal and Child Health Bureau.

Keywords: Federal programs, Genetics, Genetic services, Regional genetics network, Newborn infants, Neonatal screening, Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio, Wisconsin, Public health

Annotation: The Southeastern Regional Genetics Group (SERGG) is a network of providers of clinical genetic services, public health departments, consumers, and related laboratory services working together with affected individuals and their families. SERGG collects and disseminates information about genetic services, newborn screening programs, and other public health services related to genetics in the region, and supports research to promote better genetic services. The Group works to enhance the quality of genetic services in the Southeastern Region which includes the states of Alabama, Florida, Georgia, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee, Puerto Rico, and the Virgin Islands and to provide a forum for exchange of information among professionals who provide genetic services and the consumers of these services in the southeastern region of the United States.

Keywords: Regional genetics networks, Alabama, Consortia, Data collection, Florida, Genetic counseling, Genetic services, Genetics, Georgia, Information services, Kentucky, Louisiana, Mississippi, North Carolina, Problem solving, Puerto Rico, South Carolina, Tennessee, Virgin Islands

Annotation: The Health Sciences and Human Services Library (HS/HSL) serves as the Regional Medical Library in Region 2 of the National Network of Libraries of Medicine. Services to consumers include referrals, reference information, and access to the library's Web-based collection via HS/HSL's home page. Publications include a newsletter. The library also sponsors training seminars.

Keywords: Health sciences libraries, Maryland, Region II, Regional programs, State agencies

Annotation: The Western and Pacific Child Welfare Implementation Center is one of five regional training and technical assistance (TTA) centers funded by the Children's Bureau to partner with States and Tribes to execute projects that will focus on the implementation of strategies that their child welfare systems have identified to improve the quality and effectiveness of child welfare services for children, youth, and families. This center serves Regions IX and X.

Keywords: Training, Child welfare, Region IX, Region X, Regional programs, Technical assistance

Annotation: The Western States Regional Genetics Services Collaborative (WSGSC) is a federally funded project that seeks to improve the health of children living in the Western states who have disorders detected by the newborn screening blood test, birth defects and with other genetic disorders. WSGSC (working with California, Guam, Alaska, Hawaii, Idaho, Oregon, and Washington state) has three main goals: 1) to establish and maintain the infrastructure needed to support WSGSC activities; 2) to refine, pilot, and evaluate a regional practice model that improves access to specialty genetic services, comprehensive primary care, and care coordination for children with heritable conditions living far away from comprehensive genetics and metabolic centers; and 3) to increase the capacity of the collaborating states' and territory's public health agencies to perform their genetics-related assessment, policy development, and assurance functions. The project is a cooperative agreement funded by the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Children with Special Health Needs Program, Genetic Services Branch.

Keywords: Genetics, Federal programs, Genetic services, Newborn infants, Neonatal sceening, California, Guam, Alaska, Hawaii, Idaho, Oregon, Washington, Public health, Regional genetics network