Search Results: MCH Organizations

Annotation: DES Action is a consumer advocacy group for people exposed to diethylstilbestrol (DES) in utero, for the mothers given this drug during pregnancy and also for the 3rd Generation exposed (grandchildren of women prescribed the drug). DES was prescribed to prevent miscarriage. DES Action provides inquiry responses, medical and legal referral lists and a quarterly newsletter, DES Action Voice.

Keywords: Adenosis, Breast cancer, Cervical cancer, Clear-cell adenocarcinoma, Diethylstilbestrol, Infertility, Pregnancy complications, Preterm birth, Spontaneous abortion, Tubal pregnancy, Vaginal cancer

Annotation: The March of Dimes (MOD) works to prevent birth defects and infant mortality through research, education, and advocacy programs. MOD's Pregnancy and Newborn Health Education Center provides information and referral services for the general public and professionals on topics such as preconception health, pregnancy, childbirth, genetics, and birth defects. MOD also produces educational materials on these and other topics such as prematurity, baby care, adolescent pregnancy, folic acid, nursing, and bereavement. A publications catalog is available, and some materials are available in Spanish. Anyone can subscribe to MOD's free electronic newsletter. MOD also sponsors the Prematurity Research Initiative, which provides funding for research into the causes of prematurity, and has developed PeriStats -- an online source for maternal, infant, and child health-related data at the state level and for many indicators at the county and national level (available at http://peristats.modimes.org/). The website can be viewed in English and Spanish.

Keywords: Congenital abnormalities, Adolescent pregnancy, Advocacy, Childbirth education, Genetic disorders, Genetics education, Infant mortality, Information services, Medical research, Patient education, Prenatal care, Preterm birth, Professional education, Public awareness materials, Spanish language materials, Spanish language website

Keywords: Congenital abnormalities, Genetic disorders, Genetics education, Prenatal care, Preterm birth

Annotation: The National Child and Maternal Health Education Program (NCMHEP) provides a forum for reviewing, translating, and disseminating new research in the field of maternal and child health, using a coalition of health care provider associations, federal agencies, nonprofit maternal and child health organizations, and other partners. It addresses one maternal and child health issue at a time; the first is late preterm birth.

Keywords: Child health, Federal agencies, Information dissemination, Maternal health, Preterm birth, Research

Annotation: The National Coalition for Infant Health (NCfIH) is a collaborative of professional, clinical, community health, and family support organizations focused on improving the lives of premature infants and their families. NCfIH promotes lifelong clinical, health, education, and supportive services needed by premature infants and their families. The program brings together parents, multidisciplinary leaders of national and community-based movements, nurses, social workers, neonatalogists, and others all working together to focus on equal access to a continuum of quality care, patient safety, education, and policy to meet a clear need at the family, community, state, and federal levels. The website provides resources for parents and professionals; information about events and observances including Preemie Matters, a national policy summit; and membership.

Keywords: Access to health care, Advocacy, Collaboration, Education, Equal opportunities, Family support services, High risk infants, Infant health, Life course, Parent support services, Policy development, Premature infants, Prematurity, Preterm birth, Quality assurance, Safety