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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 3 (3 total).

Children's PKU Network (CPN)

Annotation: Founded in 1991, the Children's PKU Network (CPN) is a national nonprofit organization that addresses the special needs and concerns of people with phenylketonuria (PKU) and related metabolic disorders. The organization provides networking services, referrals, references information and resources, a hotline (during business hours), and support for people living with PKU and other rare inherited metabolic diseases. Publications include a newsletter and some materials are available in Spanish.

Keywords: Metabolic diseases, Phenylketonuria

Inherited Metabolic Disease Clinic (IMD Clinic)

Annotation: The Inherited Metabolic Disease Clinic (IMD Clinic) at the Children's Hospital in the Denver, Colorado area is a treatment center for children with inherited metabolic diseases in the Rocky Mountain states. The clinic conducts research on these diseases and educates health care trainees and professionals.

Keywords: Children, Medical research, Education, Metabolic diseases, Phenylketonuria

National PKU News

Annotation: National PKU News provides referrals, reference information, and publications for consumers, including a newsletter.

Keywords: Metabolic diseases, Phenylketonuria
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.