Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

G.I. Polyposis and Hereditary Colon Cancer Registry

Annotation: The G.I. Polyposis and Hereditary Colon Cancer Registry is one of a national network of gastrointestinal polyposis and hereditary colon cancer registries. It includes physicians, a coordinator, and other paramedical professionals who work to find families with heritable conditions, provide genetic counseling or referrals, communicate with their physicians, and educate them on the physical and emotional problems that may result from a heritable diagnosis. Publications include a quarterly newsletter, Hereditary Colon Cancer.

Keywords: Colon cancer, Familial adenomatous polyposis, Gardner syndrome, Gastrointestinal polyposis, Genetic counseling, Juvenile polyposis, Patient education, Patient identification, Peutz-Jeghers syndrome

Hereditary Colorectal Cancer Registry

Annotation: The Johns Hopkins Hereditary Colorectal Cancer Registry provides genetic counseling, information for patients and professionals about cancer genetics and research, and referrals to community and hospital resources. The organization develops research studies and literature for use by public and private agencies and individual patients and their families.

Keywords: Colon cancer, Patient identification, Peutz-Jeghers syndrome