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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 14 (14 total).

American Academy of Family Physicians Foundation, Peers for Progress

Annotation: Peers for Progress is a program of the American Academy of Family Physicians Foundation and supported by the Eli Lilly and Company Foundation. The program was founded in 2006 to promote peer support as a key part of health, health care, and prevention around the world. Activities include promoting peer support programs, developing a global network of peer support programs, and hosting a global web page to circulate program materials and curricula.

Keywords: Information networks, International programs, Networking, Peer counseling, Peer education, Peer groups, Peer support programs

Beckwith-Wiedemann Support Network (BWSN)

Annotation: The Beckwith-Wiedemann Support Network (BWSN) is a national nonprofit organization for parents of children with Beckwith-Wiedemann syndrome (BWS) and concerned professionals. It provides information and peer support to people and families affected by BWS, works to increase public and professional awareness of BWS, and encourages research into the cause, early (including prenatal) detection, and treatment of BWS. Publications include a parent directory for family members, a newsletter produced three times a year, and a brochure, What is Beckwith-Wiedemann Syndrome? The network is a member of the International Beckwith-Wiedemann Association. BWSN also does cross references to Simpson-Golabi-Behemel Syndrome. SGBS has similar characteristics and parents with children diagnosed with SGBS can be members here and receive information.

Keywords: Beckwith-Wiedemann syndrome, Early intervention, Information services, Parent groups, Peer support Programs, Simpson-Golabi-Behemel syndrome, Support groups

Camp Fire USA

Annotation: Camp Fire USA, with national headquarters in Kansas City, Mo., provides coeducational programming for more than 670,000 participants annually, through 120 councils in 40 states and the District of Columbia. As a not-for-profit organization, Camp Fire provides programs that include mentoring opportunities through community clubs and environmental education through direct child care services. Other innovative activities include an in-school, community-service curriculum, gang peace programs, pregnancy prevention programs, and a course that teaches teens to provide respite care for children with disabilities. Publications include a catalog and newsletter. Some materials are available in Spanish. The organization sponsors some conferences and training seminars.

Keywords: Advocacy, Curricula, Mentors, Peer education, Peer support programs

FosterClub

Annotation: FosterClub is a 501(c)3 non-profit organization that supports youth in care by providing information about how foster care works, connecting them to peers and other resources in their community, and providing guidance on self-advocacy within the system and in the foster home. FosterClub also supports foster parents, child welfare professionals, and concerned citizens through connections to mentoring or coaching opportunities. The website provides access to research, stories, and discussion groups on topics such as adoption, sex trafficking, grief, healthy relationships, and transitioning. Information about training and state resources are also included.

Keywords: Residential care, Adolescents, Advocacy, Children, Foster care, Mentors, Peer support programs, Self care, Service delivery systems, Transitions, Young adults

Gift from Within

Annotation: Gift from Within is a non-profit organization dedicated to those with post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. It develops and disseminated educational materials, including videotapes, articles, books, and other resources and maintains a roster of survivors who are willing to participate in an international network of peer support.

Keywords: Posttraumatic stress disorder, Trauma, Peer support programs, Resource centers

Girls Incorporated

Annotation: Girls Incorporated has developed several programs and curricula to promote the health of girls and young women, including Friendly PEERsuasion and Preventing Adolescent Pregnancy. Programs may be licensed to youth-serving agencies. The Girls Incorporated National Resource Center furnishes research materials to organizations, individuals, and the media. The resource center is located at 441 West Michigan Street, Indianapolis, IN 46202; (317) 634-7546. The organization provides publications to consumers.

Keywords: Advocacy, Adolescent parents, Adolescent pregnancy, Curricula, Health promotion, Peer education, Peer support programs, Women

HealthConnect One

Annotation: HealthConnect One focuses on collaborative work with grassroots maternal and child health (MCH) and social service providers. Activities include training community health workers (CHWs), including doulas and breastfeeding peer counselors, to improve the health of their own community; assisting organizations in developing programs that use peer support, incorporating trained CHWs into paid positions in outreach, health education, and community health advocacy; and mobilizing diverse stakeholders to build policies and programs that improve MCH in some of the most distressed communities in the country. The website provides information on advocacy; programs and training; news, events and resources; and ways to get involved.

Keywords: Breastfeeding, Community based services, Community health aides, Home visiting, Indigenous outreach workers, MCH services, Model programs, Peer counseling, Peer support programs, Social support, Training

Kids as Self Advocates (KASA)

Annotation: Kids as Self Advocates (KASA), a project of Family Voices co-sponsored by the Diana, Princess of Wales Memorial Fund and the U.S. Maternal and Child Health Bureau (MCHB), is a national network made up of adolescents with special health care needs and their families and friends. KASA's mission is to educate society about issues concerning youth with disabilities and special health care needs and works to empower youth to learn how to self-advocate. KASA also assists with building support networks for youth with special needs to share information with their peers. Members of KASA serve as youth advisors to Family Voices and work to educate policymakers, medical students, physicians, and fellow students on issues such as living with special health care needs, health care transition, education, and employment. The organization publishes a newsletter, sponsors a listservice and an electronic bulletin board and offers payment to youth for Web site contributions. KASA also operates the KASA National Youth Information, Training, and Resource Center with funding from the Administration on Developmental Disabilities.

Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Advocacy, Listservs, Peer education, Peer support programs

PAVE (PAVE)

Annotation: PAVE (Partnerships for Action Voices for Empowerment) is a parent-directed organization that provides information, training, and support for individuals with disabilities, parents, and professionals in Washington. PAVE staff comprise individuals with disabilities and parents of individuals with disabilities who have a good understanding of the challenges of accessing services. PAVE's resources include a quarterly newsletter (PAVE Pipeline), Web site, a Facebook page, You Are the Expert Conference, bilingual and bicultural staff, and free and low-cost materials in a variety of formats and languages. Programs cover a variety of areas and resources including the Family to Family Health Information Center.

Keywords: Children with special health care needs, Disabilities, Parent education programs, Parent professional relations, Parent support services, Parent training, Peer support programs

Postpartum Progress

Annotation: Postpartum Progress is a national nonprofit focused on improving support for women with perinatal mood and anxiety disorders. The website offers information and community for pregnant and new moms with postpartum depression and other mental illnesses related to pregnancy and childbirth including postpartum anxiety, postpartum obsessive compulsive disorder, depression during pregnancy, post-adoption depression, postpartum post-traumatic stress syndrome, depression after miscarriage or perinatal loss, and postpartum psychosis. The organization produces a blog to raise awareness, fight stigma, and provide peer support to women with maternal mental illness.

Keywords: Childbirth, Mental disorders, Mental health, Peer support programs, Perinatal bereavement, Perinatal health, Perinatal influences, Postpartum care, Postpartum depression, Postpartum women, Pregnancy, Pregnant women, Puerperal disorders, Women', s health

Prevent Child Abuse America (PCAA)

Annotation: Prevent Child Abuse America (PCAA), formerly the National Committee to Prevent Child Abuse, seeks to increase public awareness of the incidence, origins, nature, and effects of child abuse. The organization serves as a national advocate to prevent the neglect and physical, sexual, and emotional abuse of children. It sponsors their state chapters and the Healthy Families America home visitor prevention program. The organization sponsors conferences and training seminars and publishes a number of pamphlets and brochures on parenting for consumers. Some materials in Spanish.

Keywords: Advocacy, Child abuse, Injury prevention, Parent support services, Parenting, Peer support programs, Public education

Recovery, Inc.

Annotation: Recovery, Inc. is a self-help mental health organization which offers training in cognitive/behavioral techniques to prevent relapses in former mental patients and chronic suffering in nervous persons. Over 600 recovery groups meet weekly throughout the U.S. and Canada at no required cost to participants. In addition to English, many of their materials are available in Spanish, and some in French. Their publications include newsletters for consumers and mental health professionals, and a quarterly newsletter for members only. Recovery Inc. is a member managed organization.

Keywords: Mental health, Peer support programs

SANDS

Annotation: SANDS, a national charity established by bereaved parents in 1981, provides support to those who have lost a baby during pregnancy or after a birth, works in partnership with health professionals to improve the quality of care and services offered to bereavedfamilies, and promotes research and changes in practice that could help to reduce the loss of babies' lives. It offers brochures and books for bereaved families, for children, and for professionals.

Keywords: Bereavement, Family support, Grief, Peer support programs, SIDS, United Kingdom.

Sudden Unexplained Death in Childhood Foundation (SUDC Foundation)

Annotation: The Sudden Unexplained Death in Childhood (SUDC) Foundation (formerly the SUDC Program created in 2001) provides information, support, and advocacy for families and professionals affected by sudden unexplained death in childhood (SUDC), and promotes awareness of SUDC in communities. The foundation funds research, provides grief support services for families, shares information, builds public awareness and understanding of SUDC, and raises donations.

Keywords: Cause of death, Child death, Family support programs, Infant death, Outreach, Peer support programs, SIDS, Stillbirth

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.