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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Organic Acidemia Association (OAA)

Annotation: The Organic Acidemia Association (OAA) encourages communication and support among families and professionals dealing with organic acidemias and related rare metabolic disorders. Services to consumers include parent to parent networking and an internet listserv. Some materials are available in Spanish. The association publishes a newsletter three times a year and sponsors family conferences.

Keywords: Metabolic diseases, Argininosuccinic acidemia, Carbamyl phosphate synthetase deficiency, Citrullenemia, Ethylmalonic adipic acidemia, Homocystinuria, Methylmalonic acidemia, OTC deficiency, Organic acidemia, Propionic acidemia, Rare diseases, Support groups
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.