Search Results: MCH Organizations

Annotation: Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit charitable organization with the following mission: to serve as a resource for patient assistance and emotional support; to provide educational materials and updated medical information; and to financially support research to find effective treatment for aplastic anemia (AA), myelodysplastic syndromes (MDS), and other related bone marrow failure diseases. Services to consumers include inquiry responses, publications, and reference information. Some materials are available in Spanish, French, and other languages. The foundation publishes a newsletter and sponsors conferences.

Keywords: Blood and lymphatic diseases, Fanconis anemia, Neural tube defects

Annotation: The National Council on Folic Acid (NCFA) is a partnership of over 80 national organizations and associations, state folic acid councils, and government agencies whose mission is to improve health by promoting the benefits and consumption of folic acid. NCFA is managed by the National Healthy Mothers, Healthy Babies Coalition through a cooperative agreement with the Centers for Disease Control and Prevention. The council distributes guidelines on folic acid consumption for women of childbearing age and promotes emerging and new science on folic acid (especially as it relates to maternal and child health). NCFA distributes monthly news alerts and provides electronic access to sources of information on folic acid (available in multiple languages).

Keywords: Nutrition, . Foreign language materials, Consumer education, Folic acid, Information sources, Maternal nutrition, Neural tube defects, Preventive health services, Public health nutrition

Annotation: The Spina Bifida Association of America (SBAA) is a national organization dedicated to increasing awareness and prevention of spina bifida and serving as an advocate in an effort to enhance the lives of all affected by spina bifida. In a continuing commitment to educate the public on preventing spina bifida and improving the quality of life for persons with spina bifida, SBAA is active in efforts to influence public policy to assist persons with disabilities. Among other services offered are a free information and referral service, a newsletter, publications, an annual national conference, a scholarship fund and a research fund. Some materials are available in Spanish.

Keywords: Spina Bifida, Advocacy, Health education, Information services, Meningocele, Meningomyelocele, Nervous system diseases, Neural tube defects