Search Results: MCH Organizations

Annotation: The Adoption Exchange Association (AEA) provides a forum for the exchange of ideas and strategies, collaboration on issues of mutual interest, and increased effectiveness in using resources to provide waiting children permanent homes. AEA connects representatives of state, regional, and national adoption exchanges, including placement agencies, parents, child welfare professionals, and concerned citizens across the United States. The association has developed Standards for Adoption Exchanges, which can be ordered from the Web site, along with other materials exploring various aspects of the adoption process. AEA also offers information packets on children waiting for adoption and resources within individual states.

Keywords: Adoption, Agencies, Collaboration, Information networks, Information services, Standards

Annotation: Peers for Progress is a program of the American Academy of Family Physicians Foundation and supported by the Eli Lilly and Company Foundation. The program was founded in 2006 to promote peer support as a key part of health, health care, and prevention around the world. Activities include promoting peer support programs, developing a global network of peer support programs, and hosting a global web page to circulate program materials and curricula.

Keywords: Information networks, International programs, Networking, Peer counseling, Peer education, Peer groups, Peer support programs

Annotation: ARCH National Respite Network and Resource Center assists and promotes the development of quality respite and crisis care programs in the United States. The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community; the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels; and the Respite Technical Assistance Center, which is funded by the U.S. Administration on Aging. ARCH National Respite Network and Resource Center is a project of the Chapel Hill Training-Outreach Project.

Keywords: Advocacy, Coalitions, Crisis intervention, Family support services, Information networks, Life course, Resource centers, Respite care, Special health care needs, Technical assistance

Annotation: California Distance Learning Health Network (CDLHN), a non-profit organization under the Graduate School of Public Health at San Diego State University, utilizes technology to bring educational opportunities to people in the state, across the nation, and around the world. CDLHN utilizes satellite broadcasts, webcasts, video and CD-ROM presentations, as well as live on-site training through the Skills Training Institute (a division of the California Distance Learning Health Network) to inform health care workers and the general public interested in the health related issues.  CDLHN links clients to the latest information on public health and safety issues, as well as provides access to continuing educational opportunities. The Web site offers a course listing, a discussion forum, an online skills institute, news, a course facilitator list, and more.

Keywords: Distance education, Information networks, Public health, Technology

Annotation: The Early Childhood Comprehensive Systems Collaborative Improvement and Innovation Network (ECCS CoIIN) is a five-year initiative that supports 12 states and their communities in an effort to enhance early childhood systems and demonstrate improved outcomes in population-based children’s developmental health and family well-being indicators.

Keywords: Child development, Collaboration, Community programs, Early childhood development, Model programs, Provider networks, Service delivery systems, Young children

Annotation: The Healthy Child Care America (HCCA) campaign is a nationally focused initiative jointly sponsored by the U.S. Department of Health and Human Services Child Care Bureau (CCB) and Maternal and Child Health Bureau (MCHB) and was originally implemented from 1995 through 2005. The campaign focused on linking together pediatricians, other health professionals, child care providers, and parents to ensure that all children have access to quality, nurturing child care environments and a medical home. The campaign continues to be funded though the Child Care and Health Partnership grant from the CCB and MCHB. The website contains health and safety fact sheets, a list of child care contacts for the American Academy of Pediatrics, policy materials, and other resources.

Keywords: Access to health care, Campaigns, Child care, Child health, Child safety, Government programs, Information dissemination, Provider networks

Annotation: The HHS Center for New Media promotes and supports the strategic implementation of new media across the U.S. Department of Health and Human Services in health, communications, and government. The website provides a list of tools and providers that offer federal-compatible terms of service; standards and policies that impact the use of new media, and other resources. Media described on the site include social networks, photo and video networks, blogs, podcasts, and others.

Keywords: Communications, Federal agencies, Information networks, Interactive media

Annotation: The Home Visiting Applied Research Collaborative (HARC) at Johns Hopkins University is a national network to strengthen the role of home visiting as part of a comprehensive system of services for expectant families and families with young children. The website provides information about professional development for home visiting researchers and HVRN presentations, publications, and other media. HVRN is funded by the Maternal and Child Health Bureau.

Keywords: Home visiting, Information networks, MCH research, National initiatives, Professional education

Annotation: The Mountain States Genetics Regional Collaborative (MSGRC) -- formerly the Mountain States Genetic Network -- is a consortium of providers and consumers of genetic services in Arizona, Colorado, Montana, New Mexico, Texas, Utah, Wyoming, and Nevada. Members include representatives of state health departments, university medical schools, genetic services laboratories, hospitals, private medical practices, and various consumer organizations. The group is a regional network that provides a forum for problem sharing and solving, provides referrals, promotes efficient use of resources, and facilitates improvement of the quality and quantity of genetic services offered in the Mountain States region. The network maintains an online events calendar and provides links to genetics centers and resources.

Keywords: Arizona, Colorado, Consortia, Data collection, Genetic counseling, Genetics, Genetic services, Information services, Montana, New Mexico, Problem solving, Regional genetics networks, Utah, Wyoming

Annotation: The National Alliance for Grieving Children (NAGC) promotes awareness of the needs of children and adolescents grieving a death and provides a network for nationwide communication between professionals and volunteers who want to share ideas, information and resources with each other to better support the children and families they serve in their own communities. NAGC offers online education, hosts an annual symposium on children's grief, maintains a national database of children's bereavement support programs, and promotes national awareness to enhance public sensitivity to the issues impacting grieving children and adolescents.

Keywords: Adolescents, Advocacy, Bereavement, Children, Communication, Community based services, Databases, Distance education, Families, Family support programs, Information networks, National initiatives

Annotation: The purpose of the National Center for Cultural Competence (NCCC) is to increase the capacity of health and mental health programs to design, implement, and evaluate culturally and linguistically competent service delivery systems. The Center provides technical assistance and consultation, networking opportunities, and information for health professionals and policymakers about designing, implementing, and evaluating culturally competent health services, including services for children with special health care needs and their families. Resources and publications include policy briefs, checklists, self assessments, promising practices, distance learning, and conference information. The center's Web site includes a Spanish language portal for families.

Keywords: Children with special health care needs, Cultural diversity, Culturally competent services, Cultural sensitivity, Guidelines, Infant care, Information networks, Information sources, Linguistic competence, National MCH resource center, Networking, Program development, Program evaluation, Publications, Resource centers, SIDS, Spanish language materials, Title V programs, Training

Annotation: The National Coordinating Center for the Genetics and Newborn Screening Regional Service Collaboratives (NCC) -- which was established along with seven Genetics and Newborn Screening Regional Collaborative Groups (RCs) in 2004 -- is part of the federal initiative to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC provides infrastructure, coordination, technical assistance, and resources to the various RCs. The coordinating center also facilitates local projects and uses communities identified through the RCs to pilot test materials for policymakers, health professionals and families. Technical assistance is provided to the RCs in the areas of telemedicine, legal issues, and the assessment of state and federal legislation that may affect the delivery of genetic and newborn screening services. NCC's webcasts on topics such as financing of newborn screening and genetic services and the use of telegenetics to increase access to services are archived at www.mchcom.com. Other online resources include a page for parents and families; resources for professionals; links to glossaries and reference services; newsletters, reports, and other publications; and advocacy and support group information. The NCC is formed as a partnership with the Genetic Services Branch of the Maternal and Child Health Bureau (HRSA) through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee which includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.

Keywords: Federal programs, Genetics, Genetics education, Genetic services, National MCH resource center, Neonatal screening, Newborn infants, Public health, Regional genetics networks, Resource centers

Annotation: The National Dental Practice-Based Research Network (NDPBRN) provides an opportunity for oral health professionals to propose or participate in research studies that address day-to-day issues in oral health care. The NDPBRN's headquarters at the University of Alabama at Birmingham serves as the national administrative hub that leads and oversees six regional research sites in Rochester, NY; Gainesville, FL; Birmingham, AL; Minneapolis, MN: San Antonio, TX; and Portland, OR. The website provides regional contact information; study highlights; and news, announcements, and participant interviews.

Keywords: Dentistry, Federal initiatives, Information networks, Oral health, Research, Resources for professionals

Annotation: The National Network of Perinatal Quality Collaboratives (NNPQC) provides resources and expertise to state and multi-state perinatal quality collaboratives (PQCs) with the goal of deepening and accelerating improvement efforts for maternal and infant health outcomes The mission of the NNPQC is to support the development and enhance the ability of state perinatal quality collaboratives to make measurable improvements in statewide maternal and infant healthcare and health outcomes. A map linking to state and regional quality collaboratives across the country is included on the website.

Keywords: Collaboration, Networks, Perinatal care, Perinatal health, Postpartum care, Quality improvement

Annotation: The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. The mission of the NNSGRC is to: 1) provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and 2) serve as a national resource center for information and education in the areas of newborn screening and genetics. The NNSGRC serves as a focal point for national newborn screening and genetics activities, and provides related resources to benefit health professionals, the public community, consumers, and government officials. The center also provides technical assistance to assist states in refining their newborn screening activities and enhancing their capacity to incorporate new developments in genetics, health promotion, and disease prevention. The NNSGRC coordinates and facilitates national discussions of pertinent topics in the areas of newborn screening and genetics, assists in developing and implementing related demonstration projects of national interest., and produces annual national information reports on state and territorial newborn screening activities. The Web site provides downloadable newborn screening and disease-specific brochures in various languages, a guide to regional genetics and newborn screening collaboratives as well as state-specific contact information; and the National Newborn Screening Information System, which services as a information collection and reporting system for capturing state and territorial newborn screening information. In September 2009 it was funded to create the National Newborn Screening Clearinghouse.

Keywords: Genetics, National MCH resource center, Neonatal screening, Online databases, Regional genetics networks, Resource centers

Annotation: NERGG, Inc., formerly known as the New England Regional Genetics Group, is a consortium of providers and consumers of genetic services in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. Members include representatives of state health departments, university medical schools, genetic services laboratories, hospitals, private medical practices, and various consumer organizations. The group is a regional network that collects data, provides a forum for problem sharing and solving, promotes efficient use of resources, and facilitates improvement of the quality and quantity of genetic services offered in the New England region. The NERGG Web site was funded in part by a grant from the Maternal and Child Health Bureau.

Keywords: Genetic counseling, Genetics, Genetic services, Regional genetics networks, Spanish language materials

Annotation: The New England Genetics Collaborative (NEGC) works to promote and improve the health and social well-being of those with inherited conditions through collaborations among public health professionals, private health professionals, educators, consumers and advocates in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut. The primary goal of the NEGC is to assure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information in the context of a medical home that provides accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care. NEGC provides online educational materials, a regional resource directory, and links to other genetics centers. The NEGC is a partnership between the Dartmouth Hitchcock Medical Center, the New Hampshire Institute for Health Policy and Practice, and the University of New Hampshire Institute on Disability. The collaborative is supported by a cooperative agreement with the US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Genetic Services Branch.

Keywords: Consortia, Genetics, Genetic services, Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, Connecticut., Federal programs, Public health, Newborn infants, Neonatal screening, Genetic counseling, Regional genetics networks

Annotation: New York State Genetic Services Program and Newborn Screening Program coordinates state grants to comprehensive and noncategorical clinical genetics units throughout the state. This assures that all residents of the state can access genetic diagnosis, testing, counseling and treatment regardless of their social, economic, or geographic circumstances. The state newborn screening program tests all newborns born in New York State for 40 congenital diseases and HIV. Program follow-up assures that all children identified by the program are properly referred to specialty care centers. These centers are approved by New York state to provide quality medical care to all children identified by the program. Educational materials are available in Spanish, French, Chinese, and other languages.

Keywords: Genetic counseling, Genetics, Genetic services, Health education, Medical research, New York, Regional genetics networks, Spanish language materials, Virgin islands

Annotation: The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC) was established in September 2004 as one of seven regional collaboratives in the country funded by the Genetic Services Branch in the Health Resources and Services Administration (HRSA)'s Maternal and Child Health Bureau. The charge of this group is to develop a regional approach to address the maldistribution of genetic resources in the New York-Mid-Atlantic region, which includes Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia and West Virginia. The Wadsworth Center, New York State Department of Health is the lead institution for this project.

Keywords: Federal programs, Genetics, Newborn infants, Neonatal screening, Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia, West Virginia., Public health, Genetic services, Regional genetics networks

Annotation: The Oral Health Progress and Equity Network (OPEN) is a social impact network composed of members from national, state, and community-based organizations nationwide and in all 50 states. Its goals and targets focus on framing oral health as health and focusing on oral health across the lifespan. OPEN is an initiative of the Partnership for Oral Health Advancement (formerly DentalQuest Institute and DentalQuest Foundation). OPEN was originally launched as the Oral Health 2020 Network.

Keywords: Networks, Oral health, Professional societies