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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 6 (6 total).

American Academy of Physical Medicine and Rehabilitation (AAPM&R)

Annotation: The American Academy of Physical Medicine and Rehabilitation (AAPM&R) is a national medical society representing physicians who are specialists in the field of physical medicine and rehabilitation. The academy sponsors educational conferences and programs; publishes Archives (a scholarly journal) and Physiatrist (a newsletter); and promotes legislative advocacy. An online discussion forum is open to members.

Keywords: Rehabilitation, Advocacy, Chronic illnesses and disabilities, Legislation, Musculoskeletal diseases, Professional societies

Freeman-Sheldon Parent Support Group (FSPSG)

Annotation: The Freeman-Sheldon Parent Support Group (FSPSG), now part of the Freeman-Sheldon Rsearch Group, provides emotional support to families affected by Freeman-Sheldon syndrome, also known as whistling face syndrome and cranio-carpal-tarsal dysplasia. Families share their experiences in coping with the syndrome, information about treatments, and pertinent medical literature. The group also supports national and international research on the syndrome.

Keywords: Musculoskeletal diseases, Chronic illnesses and disabilities, Coping, Cranio-carpal-tarsal dysplasia, Facial abnormality, Family support, Information services, Medical research, Parent groups, Support groups, Whistling face syndrome

National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (NIAMS Information Clearinghouse)

Annotation: The NIAMS Information Clearinghouse is a public service sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) that provides health information and information sources. NIAMS, a part of the National Institutes of Health (NIH), leads the Federal biomedical research efforts in arthritis and musculoskeletal and skin diseases. The Clearinghouse distributes NIAMS publications. Some materials are available in Spanish. Additional information and research updates can be found on the NIAMS web site.

Keywords: Arthritis, Alopecia, Arthroscopy, Ichthyosis, Information dissemination, Lyme disease, Musculoskeletal diseases, Self help clearinghouses, Skin diseases, Women's health

National Association of Orthopaedic Nurses (NAON)

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

Scoliosis Association

Annotation: The Scoliosis Association provides support and nonmedical information for people with scoliosis and related spinal deformities, their families, and the community. The association supports research and helps its members to cope with the physical, psychological, and emotional problems associated with scoliosis and related spinal deformities through local chapters throughout the United States. Publications include Scoliosis Fact Sheet, Scoliosis—An Adult Perspective (audiovisual), 2001 Minneapolis Spinal Conference Video - 2 Videos, and a quarterly periodical, Backtalk. Available videos include: Dealing with Scoliosis: A Patient's Guide to Diagnosis and Treatment, and Preparing Yourself for Spinal Surgery: For Teenagers with Severe Scoliosis. Numerous book titles are also available, as well as other scoliosis-related materials. Online fact sheets are available in Spanish and French.

Keywords: Scoliosis, Information services, Medical research, Musculoskeletal diseases, Support groups


This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.