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Strengthen the Evidence for Maternal and Child Health Programs

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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Fatty Oxidation Disorder Family Support Group (FOD Family )

Annotation: The Fatty Oxidation Disorders Family Support Group provides emotional support and practical information to Families living with a Fatty Oxidation Disorder (FOD), such as MCAD, LCHAD, MADD/GA2, SCAD, and VLCAD. The network also informs families of new developments in research and treatment and provides referrals,publications, and an Email List for families and interested professionals. The FOD Communication Network newsletter is published semi-annually and also posted on the organization's Web site.

Keywords: Fatty oxidation disorder, Medium-chain acyl CoA dehydrogenase (MCAD), Metabolic diseases, Parent groups