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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

American Parkinson Disease Association (APDA)

Annotation: The American Parkinson Disease Association (APDA) funds medical research, organizes support group chapters, and provides information and referral services to patients, their families, and the public. Publications include Be Active, Good Nutrition and Coping with Parkinson Disease, Parkinson's Disease Handbook (in English and Spanish), Speaking Effectively, and a quarterly newsletter. The association also provides materials in Spanish, Italian, Chinese and Japanese languages. The association sponsors conferences. The association's West Coast office is located at 10850 Wilshire Boulevard, Suite 730, Los Angeles, CVA 90024, (800) 908-2732.

Keywords: Medical research, Support groups, Information services, Nervous system diseases, Parkinson disease

Dystonia Medical Research Foundation

Annotation: The Dystonia Medical Research Foundation is a nonprofit organization that works to build awareness of dystonia, a neurological disorder characterized by involuntary muscle spasms that twist the body into painful and disabling postures. The foundation promotes research on the causes of dystonia and sponsors chapters and support groups for people with dystonia and their families. Services to consumers include referrals, publications and reference information. Publications include a newsletter, a quarterly magazine, and pamphlets and age-specific guide books for dystonia families. Audiovisual materials include documentaries, public service announcements on dystonia and a new children's video, I Am Not Dystonia. A catalog is available. Some materials are available in Spanish and French. The foundation sponsors conferences and training seminars.

Keywords: Dystonia, Medical research, Support groups, Information services, Neuromuscular diseases
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.