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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 4 (4 total).

California Lyme Disease Association (CALDA)

Annotation: California Lyme Disease Association (CALDA), an affiliate of the national Lyme Disease Association, Inc. , is a 501(c)(3)nonprofit educational organization focusing on support, education, and advocacy. CALDA collects and disseminates data on behalf of the Lyme community through the Lyme Times; shares best practices with other state and national organizations; acts as a central resource for patients, physicians, and support groups; and provides technical support for local education and advocacy efforts. California residents can join the association's list serve.

Keywords: Bacterial diseases, Infectious arthritis, Lyme borreliosis, Lyme disease

Lyme Disease Association (LDA)

Annotation: The Lyme Disease Association (LDA), an all volunteer 501(c)(3) non-profit, raises money for Lyme disease (LD) research and education. LDA provides programs with doctors who speak about LD, and has a video of an accredited medical conference for doctors on LD in adolescents and children. A free brochure called ABCs of Lyme Disease is designed for parents and educators, and a brochure called Lymer Primer discusses symptoms and prevention. Doctor referrals are avavilable. LDA published a book for adolescents entitled "Lyme Disease is No Fun - Let's Get Well," by Mary Walsh. The LDA also conducts a medical conference each year. Some information in Spanish is provided on the Web site. General questions are answered online as time permits - referral lists are not given out. LDA's street address is 5019 Megill Rd, Farmingdale, NJ 07727.

Keywords: Bacterial diseases, Infectious arthritis, Lyme borreliosis, Lyme disease

Lyme Disease Foundation (LDF)

Annotation: The Lyme Disease Foundation (LDF) operates the National Lyme Disease 24 hour Hotline for people with Lyme disease, their families and friends, and concerned health professionals. The foundation serves as a patient and health care referral network, distributes educational materials in English and Spanish, sponsors scientific conferences and national public forums, trains community educators, conducts public awareness campaigns, and funds research to develop direct detection methods and a vaccine. The foundation has sponsored the National Tick Testing Project, the national Lyme Disease and Pregnancy Registry, and the Congenital Lyme Disease Registry. Publications include a newsletter and a peer reviewed scientific journal.

Keywords: Bacterial diseases, Infectious arthritis, Lyme borreliosis, Lyme disease

National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (NIAMS Information Clearinghouse)

Annotation: The NIAMS Information Clearinghouse is a public service sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) that provides health information and information sources. NIAMS, a part of the National Institutes of Health (NIH), leads the Federal biomedical research efforts in arthritis and musculoskeletal and skin diseases. The Clearinghouse distributes NIAMS publications. Some materials are available in Spanish. Additional information and research updates can be found on the NIAMS web site.

Keywords: Arthritis, Alopecia, Arthroscopy, Ichthyosis, Information dissemination, Lyme disease, Musculoskeletal diseases, Self help clearinghouses, Skin diseases, Women', s health

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.