Search Results: MCH Organizations

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Strengthen the Evidence for Maternal and Child Health Programs

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This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Lowe Syndrome Association (LSA)

Annotation: The Lowe Syndrome Association (LSA) promotes understanding of Lowe syndrome and the potential of people with the syndrome, provides referrals, fosters communication among families, disseminates information, and encourages and supports medical research. Publications include Lowe Syndrome Association (pamphlet); Living with Lowe Syndrome (booklet); a newsletter produced three times a year, On the Beam; and an annual Parent Directory. The association sponsors conferences every two years.

Keywords: Lowe syndrome, Medical research, Metabolic diseases, Support groups