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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

Alagille Syndrome Alliance

Annotation: The Alagille Syndrome Alliance is a support network for individuals and families with this liver disorder. The alliance publishes a newsletter, Liver Link, and other informational materials. It also provides networking (the Alliance hosts a chat room and electronic bulletin board); parent matching services; and consultation through a medical advisory board. The Alliance also sponsors conferences.

Keywords: Chronic illnesses and disabilities, Liver diseases, Support groups

American Liver Foundation

Annotation: The American Liver Foundation (ALF) is a national nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education, and advocacy on behalf of those at risk of or affected by liver disease. The foundation has state and regional chapters across the United States. Services to consumers include publications and reference information.

Keywords: Hepatitis, Alagille syndrome, Alpha-1-antitrypsin deficiency, Galactosemia, Liver cirrhosis, Liver diseases, Organ transplantation
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.