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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

National MPS Society

Annotation: The National MPS Society, Inc., previously known as the National Mucopolysaccharidosis Society, serves parents of affected children through support, networking, physician referrals, professional and public education, and fundraising for research into mucopolysaccharidosis (MPS) disorders. Services to consumers include referrals, publications, and reference information. Publications include What Is MPS? , a newsletter, Courage, and booklets on MPS disorders. Some materials are available in Spanish.

Keywords: Health education, Lipochondrodystrophy, Maroteaux-Lamy syndrome, Metabolic diseases, Mucolipidosis, Mucopolysaccharidosis, Parent groups, Sanfilippo syndrome, Scheie syndrome, Support groups