Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

Intersex Society of North America (ISNA)

Annotation: The Intersex Society of North America (ISNA) is a public awareness, education, and advocacy organizations that works to create a world free of shame, secrecy, and unwanted surgery for intersex people (individuals born with anatomy or physiology that differs from cultural ideals of male and female). ISNA publishes a newsletter and offers referrals, publications, and reference information to consumers. Spanish-language materials are available.

Keywords: Congenital adrenal hyperplasia, Consumers, Endocrine sexual disorders, Gonadal dysgenesis, Hermaphroditism, Informatoin sources, Klinefelters syndrome, Reference materials, Sex differentiation disorders, Testicular feminization

Klinefelter Syndrome and Associates ( )

Annotation: Klinefelter Syndrome and Associates, founded in 1989, is a nonprofit educational organization that works to increase public awareness of Klinefelter syndrome and its variations and to provide support and information to people with the syndrome. They also have families with 47XYY, and 47XXX plus variants of these conditions. The organization conducts workshops; holds an annual national conference and periodic regional meetings; and provides referrals, reference information, and publications (including a brochure on Klinefelter syndrome, a list service, and a newsletter). Some materials are available in Spanish.

Keywords: Chromosome abnormalities, Family support groups, Genetic disorders, Klinefelter syndrome, Listservs