Search Results: MCH Organizations

Annotation: The American Association of Kidney Patients (AAKP) works to educate and support kidney patients and their family members. Its mission is to improve the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. Members are people on hemodialysis or peritoneal dialysis, people with kidney transplants, their families and friends, and professionals in the dialysis field. Publications include a newsletter, a bimonthly magazine and a magazine for those who may be at risk for kidney disease. Several materials are available in Spanish. The organization sponsors conferences and hosts an annual convention.

Keywords: Kidney diseases, Chronic kidney failure, Dialysis, Organ transplantation, Patient education

Annotation: The American Kidney Fund is a national, non-profit voluntary health organization providing direct financial aid to needy kidney patients, transplant recipients and donors to help cover the cost of treatment-specific expenses. Grants are available to assist patients afford medication, transportation, emergency transient dialysis, and special diet needs diet. In addition, the Fund supports public and professional education, kidney donor development and sponsors clinical scientist nephrology fellowship awards. AKF publishes a newsletter and many brochures about kidney diseases and its treatment, including selections in Spanish. The organization also sponsors conferences. Eligibility for financial assistance must be demonstrated by filing an application, available through the patient's renal social worker or nephrologist.

Keywords: Chronic kidney failure, Dialysis, Financial support, Kidney diseases, Organ transplantation

Annotation: The AUA Foundation is a partnership of physicians, researchers, health-care professionals, patients, caregivers, families and the public established to support and promote research, patient/public education and advocacy. Originally established in 1987 as the American Foundation for Urologic Disease (AFUD), the organization entered a new era of service in 2005 when it consolidated its programs with the American Urological Association . Information for researchers, health professionals, and patients is available via the Web site.

Keywords: , Foundations, Health education, Sexual health, Urologic diseases, Advocacy, Consumer education, Fundraising, Infertility, Kidney diseases, Preventive health services, Reproductive health, Research

Annotation: The National Diabetes Information Clearinghouse (NDIC) is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases, one of the National Institutes of Health. The clearinghouse responds to written inquiries, develops and distributes publications about diabetes, and provides referrals to diabetes organizations. The NDIC maintains a database of patient and professional educational materials from which literature searches are generated. The clearinghouse will provide bulk orders of publications to health and information professionals planning patient health education programs at a minimal cost. Some publications are available in Spanish. The organization also sponsors an email newsletter Diabetes Dateline.

Keywords: Diabetes, Digestive system diseases, Kidney diseases, Metabolic diseases, Self help clearinghouses

Annotation: The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) supports a wide range of medical research through grants to universities and other medical research institutions across the country. The Institute also supports government scientists who conduct basic, translational and clinical research across a broad spectrum of research topics and serious, chronic diseases and conditions related to the institute's mission. In addition, the NIDDK supports research training for students and scientists at various stages of their careers and a range of education and outreach programs to bring science-based information to patients and their families, health care professionals and the public.

Keywords: Diabetes, Cystic fibrosis, Digestive system diseases, Endocrine disorders, Information dissemination, Kidney diseases, Medical research, Medical research, Metabolic diseases

Annotation: The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases, one of the National Institutes of Health. A central information resource on the prevention and management of kidney and urologic conditions, the clearinghouse responds to written inquiries, develops and distributes publications about kidney and urologic diseases, and provides referrals to kidney and urologic organizations. The NKUDIC maintains a database of patient and professional educational materials from which literature searches are generated. The clearinghouse will provide bulk orders of publications at a minimal cost to health and information professionals planning patient health education programs. Publications include a newsletter, and limited materials are available in Spanish.

Keywords: Kidney diseases, Clearinghouses, Diabetes, Digestive System diseases, Health education, Kidney diseases, Urologic diseases

Annotation: The National Kidney Foundation, a voluntary health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well being of individuals and families affected by these diseases and increasing the availability of all organs for transplantation. The foundation conducts programs in research, professional education, patient and community services, public education and donation. Publications include several newsletters and journals, and numerous pamphlets. Some materials are available in Spanish.

Keywords: Chronic kidney failure, Dialysis, Kidney diseases, Organ transplantation, Urologic diseases

Annotation: The PKD Foundation (formerly the Polycystic Kidney Research Foundation) promotes research to find a treatment and cure of polycystic kidney disease. It develops funding for peer-approved biomedical research projects and works to educate the public by promoting programs of research and fostering the public awareness among medical professional and the general public. Services to consumers include publications and reference information. The PKD Foundation publishes a newsletter and sponsors conferences and training seminars. Materials are available in English, Spanish, French, German, Italian, Korean, Chinese, and Japanese.

Keywords: Kidney diseases, Fundraising, Health education, Information services, Medical research, Polycystic kidney disease