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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.


Displaying records 1 through 6 (6 total).

American Academy of Allergy, Asthma and Immunology (AAAAI)

Annotation: The American Academy of Allergy, Asthma, and Immunology (AAAAI) is a professional society of physicians specializing in allergy, asthma, and allergic diseases. The Academy enhances and supports allergy/immunology programs; fosters and disseminates research; provides advocacy and support for patients and the allergy/immunology specialists who provide their care; and provides education and information for members, other healthcare professionals, patients and the public. The Web site provides online access to brochures, allergy guides, tip sheets, research findings, and video guides. Included are school tools, parent resources, a food allergy library, The Virtual Allergist™ -- an interactive tool to help diagnose asthma and allergy symptoms -- and The National Allergy Bureau™ -- the section of the AAAAI's Aeroallergen Network that is responsible for reporting current pollen and mold spore levels to the public.

Keywords: Allergies, Asthma, Immunologic diseases, Respiratory diseases

American Autoimmune Related Diseases Association (AARDA)

Annotation: Services to consumers include physican referrals, information referrals, publications, and reference information. The Association publishes a quarterly newsletter, advocates for research, and sponsors public forums and scientific conferences.

Keywords: Immunologic diseases, Information services

CFIDS Association of America (CFIDS)

Annotation: The CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) Association of America (CFIDS) is a nonprofit organization dedicated to conquering Chronic Fatigue and Immune Dysfunction Syndrome by supporting research, education and public policy programs. The association serves as a clearinghouse for information on chronic fatigue syndrome. Members are people with chronic fatigue syndrome, their families, and others interested in the disease. The association provides information packets at no charge to the public, provides referrals, publishes The CFIDS Chronicle, sponsors conferences, and provides funding.

Keywords: Balance disorders, Chronic fatigue syndrome, Cytomegalovirus infections, Epstein-Barr virus, Human B-lymphotropic virus, Immunologic diseases

Lupus Foundation of America (LFA)

Annotation: The Lupus Foundation of America (LFA) is a nonprofit voluntary health organization dedicated wholly to lupus. LFA's mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness among public and health professionals, and find the causes and cure for lupus. LFA conducts research and provides education, advocacy, and support through its nationwide network of chapters, branches and support groups.

Keywords: Autoimmune diseases, Immunologic diseases, Support groups, Systemic lupus erythematosus

National Sjogren's Syndrome Association (NSSA)

Annotation: The National Sjogren's Syndrome Association (NSSA) offers education and support to people with Sjogren's syndrome, their families, and concerned health care providers. Publications include the Sjogren's Digest and the Patient Education Series. NSSA sponsors conferences and publishes a newsletter.

Keywords: Dry eyes, Dry mouth, Immunologic diseases, Parent groups, Sjogrens syndrome, Women

Sjogren's Syndrome Foundation (SSF)

Annotation: The Sjogren's Syndrome Foundation (SSF) helps people with Sjogren's syndrome and their families to cope with the problems and frustrations of this chronic disease. The foundation sponsors Local Support Groups and national symposia. Publications include The Sjogren's Syndrome Handbook: An Authoritative Guide for Patients and a newsletter, The Moisture Seekers, produced nine times a year. Some materials are available in Spanish. The foundation also provides referrals and reference information and sponsors conferences and workshops.

Keywords: Sjogrens syndrome, Immunologic diseases, Parent groups, Support groups, Women

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.