Search Results: MCH Organizations

Annotation: The Foundation for Ichthyosis and Related Skin Types (FIRST) is a national non-profit organization dedicated to helping individuals and familes affected by ichthyosis. Ichthyosis is a rare genetic skin disease characterized by very dry, cracked, scaling, and thickened skin. The Foundation provides support, information, education, and advocacy for its members. The Foundation supports research into causes, treatment, and cures for ichthyosis. Informational brochures and booklets are available in English and Spanish. The Foundation also publishes a newsletter and sponsors conferences.

Keywords: Ichthyosis, Chanarin-Dorfman Syndrome, Chondrodysplasia Punctata Syndromes, Colloidion baby, Darier disease, Epidermal Nevus syndrome, Epidermolytic Hyperkeratosis, Erythrokeratodermas, Keratitis-Ichthyosis-Deafness (KID) syndrome, Multiple Sulfatase Deficiency, Palmoplantar Keratoderma syndromes, Peeling skin syndrome, Pityriasis Rubra Pilaris, Refsum disease, Rud syndrome, Skin diseases, Tay Sachs disease

Annotation: The NIAMS Information Clearinghouse is a public service sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) that provides health information and information sources. NIAMS, a part of the National Institutes of Health (NIH), leads the Federal biomedical research efforts in arthritis and musculoskeletal and skin diseases. The Clearinghouse distributes NIAMS publications. Some materials are available in Spanish. Additional information and research updates can be found on the NIAMS web site.

Keywords: Arthritis, Alopecia, Arthroscopy, Ichthyosis, Information dissemination, Lyme disease, Musculoskeletal diseases, Self help clearinghouses, Skin diseases, Women', s health