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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Association for Glycogen Storage Disease (AGSD)

Annotation: The Association for Glycogen Storage Disease (AGSD) protects and promotes the interests of people affected by glycogen storage disease, disseminates information, provides parental support and referral services, sponsors an annual conference, and facilitates communication among professionals in related fields. Publications include a quarterly newsletter, The Ray, and a parent handbook.

Keywords: Glycogen storage disease, Health promotion, Information dissemination, Information services, Metabolic diseases, Parent support services