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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

CHARGE Syndrome Foundation

Annotation: The CHARGE Syndrome Foundation is a nonprofit, nonpartisan, nonsectarian service organization offering information, parent to parent link networking, and support for research. Since 1989 the newsletter, CHARGE Accounts, has provided parents with a way to exchange information, experiences, and mutual support. Other publications include CHARGE Syndrome: A Management Manual for Parents (2 vols.), available in both English and Spanish. The Foundation also sponsors international conferences for families and professionals.

Keywords: Atresia of the choanae, Developmental disabilities, Ear malformations, Genital hypoplasia, Heart malformations, Information services