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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

CHARGE Syndrome Foundation

Annotation: The CHARGE Syndrome Foundation is a nonprofit, nonpartisan, nonsectarian service organization offering information, parent to parent link networking, and support for research. Since 1989 the newsletter, CHARGE Accounts, has provided parents with a way to exchange information, experiences, and mutual support. Other publications include CHARGE Syndrome: A Management Manual for Parents (2 vols.), available in both English and Spanish. The Foundation also sponsors international conferences for families and professionals.

Keywords: Heart malformations, Atresia of the choanae, Developmental disabilities, Ear malformations, Genital hypoplasia, Information services
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.