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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

National Fragile X Foundation (NFXF)

Annotation: Established in 1984, the National Fragile X Foundation (NFXF) is a nonprofit organization that informs professionals, parents, and the public about the diagnosis and treatment of Fragile X syndrome. The foundation supports related research and clinical applications, organizes support groups for parents nationwide, provides referrals, holds biannual international conferences for professionals and parents, sponsors training seminars and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Chromosome abnormalities, Fragile X syndrome, Genetic disorders, Genetics, Biochemical genetics, Medical research, Mental retardation, X-linked mental retardation
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.