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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 2 (2 total).

FRAXA Research Foundation (FRAXA)

Annotation: FRAXA is a nonprofit private organization which funds medical research on fragile X syndrome. FRAXA offers postdoctoral fellowships of up to $40,000 per year and investigator-initiated awards (no funding limit). FRAXA also provides information for families and professionals, including publications (a newsletter), monographs, and a Web site and discussion listserve. Local parent chapters provide additional support. Grant and fellowship applications are accepted May 1 and December 1 of each year (application materials and a listing of funded projects are available at www.fraxa.org

Keywords: Chromosome abnormalities, Fragile X syndrome, Listservs, Mental retardation, X-linked mental retardation

National Fragile X Foundation (NFXF)

Annotation: Established in 1984, the National Fragile X Foundation (NFXF) is a nonprofit organization that informs professionals, parents, and the public about the diagnosis and treatment of Fragile X syndrome. The foundation supports related research and clinical applications, organizes support groups for parents nationwide, provides referrals, holds biannual international conferences for professionals and parents, sponsors training seminars and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Chromosome abnormalities, Fragile X syndrome, Genetic disorders, Genetics, Biochemical genetics, Medical research, Mental retardation, X-linked mental retardation
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.