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Strengthen the Evidence for Maternal and Child Health Programs

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Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 1 (1 total).

Twin to Twin Transfusion Syndrome Foundation (TTTSF)

Annotation: The Twin to Twin Transfusion Syndrome Foundation is an international, nonprofit organization solely dedicated to saving babies afflicted with Twin to Twin Transfusion Syndrome (TTTS), improving their future health and care, and keeping them together the way twins are meant to be. The foundation provides educational, emotional, and financial support to families and caregivers before, during, and after pregnancies diagnosed with TTTS, and helps to further medical research into this disease and its related complications. Services are also provided to help families and caregivers with multiple birth loss deliveries and recoveries as well as multiple birth babies born with physical challenges. Participation in their international TTTS registry is encouraged and support and education is provided through parent packets, telephone contact, hospital and home visitation, parent to parent connections, a referral database, books and articles, assistance to authors, researchers and lawyers, conferences, workshops, public speaking and the Internet. Materials on the web site will be available in 12 languages including Spanish, French, Asian, Dutch and German.

Keywords: Fetofetal transfusion, Twins
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.