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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCH Organizations

This list of organizations is drawn from the MCH Organizations Database. Contact information is the most recent known to the MCH Digital Library.

Displaying records 1 through 20 (21 total).

U.S. Administration for Children and Families (ACF)

Annotation: The U.S. Administration for Children and Families (ACF) administers programs focusing on the well-being of children and the self-sufficiency of families. Some services at ACF include programs involving persons with developmental disabilities, child care, child welfare services, prevention and treatment of child abuse and neglect, runaway and homeless youth, Head Start, Temporary Assistance for Needy Families (TANF), and child support enforcement issues. ACF also supports an Healthy Marriage Initiative which focuses on low-income married couples with children, the Fatherhood Initiative, and the Family Violence Prevention and Services Program. ACF provides consumers with referrals, publications, and reference information. Some materials are available in Spanish. The agency also publishes newsletters, and sponsors conferences and training seminars.

Keywords: Child abuse, Child care, Child support, Domestic violence, Family centered care, Family economics, Family relations, Family support programs, Fathers, Head Start, Spanish language materials, Training materials, Young children

Alliance for Transforming the Lives of Children

Annotation: The Alliance for Transforming the Lives of Children (TLC) promotes optimal human development from preconception through early childhood, offering guidance about consciously conceiving, birthing, and nurturing children. The Alliance synthesyzes age-old wisdom and leading scientific research in its efforts to champion a compassionate culture, capable of enjoying, learning from, and responsively and lovingly interacting with children. TLC hosts an online discussion group, produces an electronic newsletter, and provides parent mentoring and educational services through its WarmLine family support program. The alliance also posts annoted reading lists and publications produced by affiliate organizations.

Keywords: , Mentors, Human development, Child care, Community participation, Family support programs, Infant care, Parent education, Parenting, Preconception care, Prenatal care

American SIDS Institute (ASI)

Annotation: The American SIDS Institute (ASI) is a national nonprofit health care organization dedicated to the prevention of sudden infant death and the promotion of infant health. ASI's mission is to: conduct research related to the cause of sudden infant death and its prevention; provide clinical services to assist pediatricians in managing high risk infants; provide education about prevention methods aimed at the public and medical community; and offer family support services including crises phone counseling, grief literature, and referrals.

Keywords: Consumer education, Family support, Infant health, Infant mortality, Prevention programs, Professional education, Research, SIDS

Craniosynostosis And Positional Plagiocephaly Support, Inc.

Annotation: Craniosynostosis And Positional Plagiocephaly Support, Inc. (CAPPS) is a national non-profit organization that offers information and support to families who have a child with either positional plagiocephaly or craniosynostosis. The organization's primary goal is to raise awareness through education.  (Although these two conditions are very different in cause, in many cases they have a similar outward appearance, which causes many mis-diagnoses.)  CAPPS sponsors fundraising and public awareness events; provides resources and services fo families; hosts an electronic support board; and posts fact sheets and how-to guidance. The organization also maintains state-specific contact lists.

Keywords: Children with special health care needs, CSHN programs, Craniofacial abnormalities, Family support

First 5 Humboldt

Annotation: FIRST 5 HUMBOLDT, together with families and communities, promotes comprehensive, integrated systems of services for early childhood development in order to foster secure, healthy and loving children eager to learn and develop their full potential. Services include parent and family support; early childhood care and education; and health and well being support including mental, dental, emotional, social, and financial support.

Keywords: Local MCH programs, California, County programs, Family support services, School age children, Young children

FRIENDS National Resource Center for Community-Based Child Abuse Prevention (FRIENDS CBCAP)

Annotation: The FRIENDS National Resource Center for Community-Based Child Abuse Prevention (CBCAP) Programs provides training and technical assistance to federally funded CBCAP Programs. The Center assists in building networks, collecting data, promoting stakeholder involvement, and providing access to resources. The Web site provides access to online learning tools, print materials, a listserv, weblinks, and information on upcoming meetings and events. The Center is a participant in the Children's Bureau Training and Technical Assistance Network (TTA).

Keywords: Child abuse, Child neglect, Child welfare, Community programs, Family centered services, Family resource centers, Family support programs, Parent support services, Prevention programs, State programs

National Alliance for Grieving Children

Annotation: The National Alliance for Grieving Children (NAGC) promotes awareness of the needs of children and adolescents grieving a death and provides a network for nationwide communication between professionals and volunteers who want to share ideas, information and resources with each other to better support the children and families they serve in their own communities. NAGC offers online education, hosts an annual symposium on children's grief, maintains a national database of children's bereavement support programs, and promotes national awareness to enhance public sensitivity to the issues impacting grieving children and adolescents.

Keywords: Adolescents, Advocacy, Bereavement, Children, Communication, Community based services, Databases, Distance education, Families, Family support programs, Information networks, National initiatives

National Children's Advocacy Center (NCAC)

Annotation: The National Children's Advocacy Center (NCAC) is a non-profit organization that provides training, prevention, intervention and treatment services to fight child abuse and neglect. NCAC hosts the National Symposium on Child Abuse and the National Conference on Child Abuse Prevention; provides training seminars and online training programs for professionals; conducts research and develops best practice models; offers family-support services, including home visitation programs, and school-based programs for children; and provides intervention programs and therapy services for victims of child abuse. Additional information for children, families, and professionals is posted on the Web site.

Keywords: Child abuse, Child neglect, Crisis intervention, Distance education, Electronic publications, Family support services, Maltreated children, Model programs, Prevention, Professional education, Research, Training, Victims

National Organization on Fetal Alcohol Syndrome (NOFAS)

Annotation: The National Organization on Fetal Alcohol Syndrome (NOFAS) is a non-profit public health advocacy organization that develops and implements innovative ideas in prevention, education, intervention, and public policy in the United States and internationally. It provides materials for educators, advocacy groups, expectant mothers, those living with fetal alcohol spectrum disorders, and health care professionals.

Keywords: Alcohol abuse, Drug use during pregnancy, Family support programs, Fetal alcohol effects, Fetal alcohol syndrome, Teratogens, Teratology

National Partnership for Community Leadership (NPCL)

Annotation: The National Partnership for Community Leadership (NPCL), formerly known as the National Center for Strategic Nonprofit Planning and Community Leadership, is a nonprofit organization created for charitable and educational purposes. The organizations works to strengthen community leadership through family and neighborhood empowerment and to improve the governance and administration of nonprofit, tax-exempt organizations. NPCL offers an array of services to community-based organizations, including guidance on starting nonprofit organizations, financial and program management services, outreach and service delivery, administrative support, and leadership development. The organization has developed the Partners for Fragile Families program, which is a national initiative working at the federal, state, and local levels to help fathers overcome poverty and build stronger links to their children and their children's mothers.

Keywords: Strategic plans, Community programs, Family support programs, Father child relations, Fathers, Initiatives, Leadership training

National Wraparound Initiative (NWI)

Annotation: The National Wraparound Initiative (NWI) is a collaborative effort that promotes the implementation of high quality wraparound (a team-based, holistic approach to service and support planning for children, youth, and their families) . NWI seeks to accomplish this work through the creation of a learning and sharing community that includes a range of stakeholders (caregivers, educators, mental health professionals, etc.) with a high level of expertise in Wraparound. NWI provides conceptional background materials, implementation and fidelity tools, and handbooks for team participants.

Keywords: Collaboration, Child health programs, Community based services, Family support services, Holistic health, Program planning, Youth services

Nurse-Family Partnership (NFP)

Annotation: The Nurse-Family Partnership (NFP) is a nonprofit organization committed to improving the health and well being of low-income, first-time parents and their children. NFP helps communities replicate and sustain an evidence-based program of home visiting by registered nurses. NFP sites (currently located in 20 states) are supported by a team of public health policy and administration, nursing, education and program evaluation professionals at the national office in Denver. NFP helps establish new sites and provides consultation, technical support, reporting services, and professional development for existing sites. The NFP Web site includes a directory of local sites, news updates, and fact sheets.

Keywords: Family support, Consultation, Evidence based medicine, Model programs, Nursing, Professional training, Program evaluation, Public private partnerships, Visting nurses

Ohio Coalition for the Education of Children with Disabilities (OCECD)

Annotation: The Ohio Coalition for the Education of Children with Disabilities (OCECD) is a statewide, nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, and the agencies who provide services to them. The coalition's mission is to ensure that every Ohio child with special needs receives a free, appropriate, public education in the least restrictive environment to enable that child to reach his/her highest potential. Programs are designed to help parents become informed and effective representatives for their children in all educational settings. PACER's Family-to-Family Health Information Center provides a single source of information, including resources and support, for families whose children have disabilities and complex health care needs. The coalition provides programs for Native American, African American, Hispanic/Latino, Somali and Southeast Asian communities, and many publications have been translated into Hmong, Somali and Spanish. Other programs focus on grandparents, housing, and bullying prevention. Through the Technical Assistance ALLIANCE for Parent Centers, PACER offers consultation and technical assistance to the over 100 parent centers across the nation funded under the federal Individuals with Disabilities Education Act (IDEA).

Keywords: Special education, Children with special health care needs, Early Intervention, Education programs, Family resource centers, Nuvee, Ohio, Parenting, Public policies, Support groups

Oregon Center for Children and Youth with Special Health Needs (OCCYSHN)

Annotation: OCCYSHN is Oregon’s Title V program for children and youth with special health needs funded by the federal Maternal Child Health Bureau, through a grant which is administered through the Child Development and Rehabilitation Center at Oregon Health and Sciences University. The Center works to promote coordinated, family-centered, community-based systems of care; provide policy and program development, population-based assessment and surveillance, and leadership for health systems and services in Oregon.

Keywords: Children with special health care needs, Family support programs, MCH programs, Oregon, Service coordination, Social Security Act, Title V, State programs

Parent to Parent USA (P2PUSA)

Annotation: Parent to Parent USA (P2PUSA) is a national nonprofit organization committed to promoting access, quality and leadership in parent to parent support across the country. The website highlights statewide organizations that have parent to parent support as a core program and demonstrate a commitment to implementing evidence-based P2P USA endorsed practices.

Keywords: CSHN programs, Family support services, Parent education programs, Training materials


Annotation: SANDS, a national charity established by bereaved parents in 1981, provides support to those who have lost a baby during pregnancy or after a birth, works in partnership with health professionals to improve the quality of care and services offered to bereavedfamilies, and promotes research and changes in practice that could help to reduce the loss of babies' lives. It offers brochures and books for bereaved families, for children, and for professionals.

Keywords: Bereavement, Family support, Grief, Peer support programs, SIDS, United Kingdom.

Starlight Children's Foundation

Annotation: Starlight Children's Foundation is a non-profit organization dedicated to brightening the lives of seriously ill children and their families. Working with pediatricians, technology experts, and the entertainment industry, Starlight Starbright creates programs to address the various social, emotional, and medical aspects of living with a chronic, serious, or life threatening illness or injury. The foundation's programs -- available not only to children and families, but also hospitals, clinics, schools, support groups, faith based organizations, and healthcare centers -- are designed to empower children and families to take charge of their illness, play a more active role in their treatment, and better cope with the challenges that accompany prolonged illness. The foundation has regional and international chapters, and was formed by a merger of the Starlight Foundation and the Starbright Foundation. Detailed information on the foundation's products and programs, including its electronic newsletter, are available on the Web site.

Keywords: Child health programs, Electronic newsletters, Family support, Terminal illness, Child health, Children with special health care needs, Chronic illnesses and disabilities, Coping, Emotional adjustment, Family support programs, Foundations, Hospital programs, Injuries, Materials for children, Mental health, Patient care

STOMP (Specialized Training of Military Parents)

Annotation: STOMP (Specialized Training of Military Parents) is a parent-directed program working to assist military families who have children with special health or education needs. STOMP works to connect families to other families; provides a voice to raise awareness of issues faced by military families of children with disabilities; assists parents and professionals in developing their own community parent education/support groups; and provides information and training about laws, regulations and resources for military families of children with disabilities. STOMP, which began in 1985, is a project of Washington PAVE, a parent organization providing support, advocacy, training and informational resources to empower all families and individuals with disabilities.

Keywords: Children with special health care needs, Families, Family support, Federal programs, Parent support services, Special education

Sudden Unexplained Death in Childhood Foundation (SUDC Foundation)

Annotation: The Sudden Unexplained Death in Childhood (SUDC) Foundation (formerly the SUDC Program created in 2001) provides information, support, and advocacy for families and professionals affected by sudden unexplained death in childhood (SUDC), and promotes awareness of SUDC in communities. The foundation funds research, provides grief support services for families, shares information, builds public awareness and understanding of SUDC, and raises donations.

Keywords: Cause of death, Child death, Family support programs, Infant death, Outreach, Peer support programs, SIDS, Stillbirth

U.S. Department of Labor, Women's Bureau

Annotation: The Women's Bureau develops policies and standards and conducts inquiries to safeguard the interests of working women; to advocate for their equality and economic security for themselves and their families; and to promote quality work environments. The website provides data, statistics, publications, and resources such topics such as age, wages, and pregnancy discrimination, sexual harassment, women of color, the Family Medical Leave Act, employer sponsored child care, and eldercare programs.

Keywords: Child care, Family support programs, Working parents

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.