Search Results: MCH Organizations

Annotation: The Beckwith-Wiedemann Support Network (BWSN) is a national nonprofit organization for parents of children with Beckwith-Wiedemann syndrome (BWS) and concerned professionals. It provides information and peer support to people and families affected by BWS, works to increase public and professional awareness of BWS, and encourages research into the cause, early (including prenatal) detection, and treatment of BWS. Publications include a parent directory for family members, a newsletter produced three times a year, and a brochure, What is Beckwith-Wiedemann Syndrome? The network is a member of the International Beckwith-Wiedemann Association. BWSN also does cross references to Simpson-Golabi-Behemel Syndrome. SGBS has similar characteristics and parents with children diagnosed with SGBS can be members here and receive information.

Keywords: Beckwith-Wiedemann syndrome, Early intervention, Information services, Parent groups, Peer support Programs, Simpson-Golabi-Behemel syndrome, Support groups

Annotation: BUILD is a national initiative that helps state leaders prepare young children aged birth to five to succeed by helping their families access high quality early learning; family and parenting support; early intervention for children with special needs; and comprehensive health mental health and nutritional services. BUILD assists states in planning and implementing a comprehensive early childhood “system of systems” that crosses policy domains and helps ensure that families get the services they need. It was created in 2002 by the Early Childhood Funders Collaborative (ECFC), a consortium of private foundations.

Keywords: Child mental health, Early intervention, Families, Family support services, Infants, Young children, Special health care needs

Annotation: The Catherine E. Cutler Institute for Child and Family Policy is funded by the Child Care Bureau to conduct a mixed method, in-depth case study in Colorado to examine current practice across systems in order to determine the degree to which the educational needs of children younger than five in the child welfare system are being addressed through collaborations between child welfare agencies, early intervention/preschool special education programs under IDEA and quality early care and education programs. The Institute also identifies best practices and develops policy recommendations for how the multiple agencies which provide these services can better coordinate their efforts.

Keywords: Child development, Child welfare, Collaboration, Early childhood education, Early intervention services, School readiness, Service integration, Young children

Annotation: The Center for Parent Information and Resources (CPIR) serves as a central source of information and products for the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs) so that they can focus their efforts on serving families of children with disabilities. The Center also works to increase the coordination of parent training efforts throughout the network and to increase Parent Centers’ knowledge and capacity in specific domains. CPIR's online resource cover key topics, K-12 issues, early intervention/early childhood, and parent centers' 14 priorities. Users can customize their online searches by audience, format, language, and resource producer. Resources are available in English and Spanish. It is funded by the Office of Special Education Programs at the U.S. Department of Education. This center continues the work of the Technical Assistance ALLIANCE for Parent Centers.

Keywords: Children with special health care needs, Early intervention, Family centered services, Information sources, Parenting, Resource centers, Spanish language materials, Special education

Annotation: The Early Childhood Technical Assistance Center (ECTAC) supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA). Their mission is to strengthen service systems to ensure that children with disabilities (birth through age five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services. The center is funded by the U.S. Department of Education. A publications list and online discussion lists are available on the Web site. The center was formerly called the National Early Childhood Technical Assistance System (NECTAS).

Keywords: Children with special health care needs, Early childhood education, Early intervention, Information services, Outreach, Special education

Annotation: The Early Intervention Program (EIP) provides educational and other services to Louisiana children 0–3 years old with developmental disabilities, including direct services, information, support, and statewide referrals. The program also provides in-service training and technical assistance on developmental disabilities and early education, publishes a newsletter, and maintains a library of information on Down syndrome, early intervention, and developmental disabilities. EIP also provides an Inclusive Day School; a learning center for typical and special needs children (ages 6 weeks to 6 years).

Keywords: Developmental disabilities, Down syndrome, Early intervention, Educational programs, Information services, Louisiana, Technical assistance

Annotation: This Minnesota non-profit organization, formed in 1935, has been helping children, adolescents and adults in the greater Twin Cities area reach their potentials. Fraser offers a lifelong spectrum of services including diagnostic evaluations, comprehensive mental health services including individual and group therapy, rehabilitation services including physical, occupational, speech-language, and music therapy, child care and education for children with typical needs and special needs, housing for adults and children with developmental disabilities, and workshops and seminars for parents, caregivers and professionals

Keywords: Children with special health care needs, Early intervention, Health services delivery

Annotation: The Prenatal-to-3 Policy Impact Center provides states with rigorous evidence to implement effective policies supporting children from the prenatal period through age three. The Center conducts original research, provides state services to lawmakers and advocates, and focuses on translating science into practical policy solutions. The site highlights various policy areas including home visiting programs, which provide education and support to parents through trained professionals or paraprofessionals. Online resources include the Prenatal-to-3 State Policy Roadmap and Policy Clearinghouse, which review scientific research to identify evidence-based interventions.

Keywords: Early intervention, Financing, Home Visits, MCH programs, Medicaid, Parent support services, Policy, Prenatal care, State policy

Annotation: The USC University Center for Excellence in Developmental Disabilities (USC UCEDD) at Children's Hospital Los Angeles works in developing and supporting quality services and systems for individuals with, or at risk for, behavioral, developmental, and/or special health care needs and their families. The Center's purpose is to provide leadership in strengthening family-centered, consumer responsive, culturally-competent services and systems for the benefit of individuals and their families. The USC UCEDD, founded in 1966, is one of over 67 UCEDDs in the nation, authorized under the Developmental Disabilities Assistance and Bill of Rights Act (DD Act), and a member of the Association of University Centers on Disabilities (AUCD). Programs and services include clinical services, diagnosis and evaluation, feeding development, behavioral pediatrics, community mental health, learning abilities program, and other community-based programs. Special programs emphasize individual, family, and community capacity building; prevention and early intervention; and cultural competence.

Keywords: Behavior development, Child development, Children with special health care needs, Early intervention services, Mental health, Needs assessment, Screening, Special health care services

Annotation: The WestEd Center for Child & Family Studies (CCFS) is dedicated to helping America's children get a healthy start in life. It does this by promoting the availability of research-based quality care for children birth to three; improving the effectiveness of supportive intervention for all children and families living in poverty; and influencing national, regional, and local policies and practices that have an impact on young children and their families.

Keywords: Child care, Children, Early intervention, Families, Family support services